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by muse
Sat Jan 09, 2010 5:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News from Rici, a polish patient being operated
Replies: 105
Views: 32840

Hi all together,
I put Rici’s message and image on our German facebook site. If cheer want do the same with the US fb-site Rici does allow it!
Best
Arne http://www.csvi-ms.net/en
by muse
Fri Jan 08, 2010 12:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound test for CCSVI in Auckland New Zealand
Replies: 6
Views: 3689

Hi gazda, The newest MRV protocol of Prof. Haacke you can get here: http://www.ms-mri.com/potential.php & a doppler sonography protocol of Dr. Simka (one of the best doctors as well) here: http://csvi-ms.net/files/multiple%20sclerosis-USG.pdf Try to get so informed as possible! Our website: http...
by muse
Thu Jan 07, 2010 10:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound test for CCSVI in Auckland New Zealand
Replies: 6
Views: 3689

Hi gazda, that’s just great well done! :D I did spread the word in NZ some times ago (6 month+) and I informed around 30 hospitals and even the NZ MoH. NO honestly interest at all! Be prepared that at the end the radiologist is not able to read their own work/MRV or a doppler sonography properly. I ...
by muse
Thu Jan 07, 2010 7:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our NMSS and a puzzling review of CCSVI
Replies: 100
Views: 22180

It really doesen’t matter whether Arney & Co. are going to read that brilliantly written post by Sandy. What’s matter is that she had that necessity to write it and hundreds, nay thousands of people with MS all over the world are going to read it like me a German born woman (MS dx ’97, CCSVi dx ...
by muse
Thu Dec 24, 2009 2:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Doppler ultrasound in Melbourne
Replies: 69
Views: 20363

You are welcome and the best of luck Downunder! At the moment I’m waiting for an answer of a surgeon from Wellington/NZ, whether he is interested in such a job. :roll: But anyway nobody can stop me now to get fixed my V. jugularis! Best Arne aka muse http://www.csvi-ms.net/en p.s. That’s me http://i...
by muse
Tue Dec 22, 2009 6:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Doppler ultrasound in Melbourne
Replies: 69
Views: 20363

Does anyone know what 'dye' they use to help the veins be more visable? They're using 'gadolinium' in the MRI stage. I was wondering it it's the same for the veins? A German University in Frankfurt where you can get a MRV after the protocol of Prof. Haacke now does use exactly this contrast agent. ...
by muse
Mon Dec 21, 2009 6:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Loss of a chance of a cure
Replies: 44
Views: 9715

Ana, I’ve wrote it already in the csvi-forum and I’m going to repeat it here again that your thinking is spot-on! I will be happy to go the extra mile with you to stop "doctors" who are trying to hinder us in getting simplest human rights, in getting tested with a non-invasive MRV or a dop...
by muse
Wed Dec 09, 2009 4:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bad News --All Dake surgeries canceled even w/ appt.
Replies: 137
Views: 29616

Hi Algis, I've sent you a pn to let you know where it's technically possible to get the surgery done in Taiwan.
Best muse
http://www.csvi-ms.net/en
by muse
Fri Nov 27, 2009 5:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News from Rici, a polish patient being operated
Replies: 105
Views: 32840

Rici got stents.
Best muse
http://www.csvi-ms.net/en
by muse
Thu Nov 26, 2009 1:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Australia ??????????
Replies: 5
Views: 2676

Hi@,
in Australia is something on the way :D , as soon I get the facts I will inform you.
Best
muse
http://www.csvi-ms.net/en


My stenosis of the Vena jugularis:
Image
by muse
Wed Nov 25, 2009 12:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Canada: Who/What/Where
Replies: 116
Views: 37353

Hi Algis, That’s more an international cooperation. Our admin comes from Switzerland and he speaks three languages. I’m actually a German girl living in NZ and of course the most people in our German forum come from Germany. But there are some other great guys around like our dear ‘ErikaSlovakia”. ;...
by muse
Tue Nov 24, 2009 10:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Canada: Who/What/Where
Replies: 116
Views: 37353

Hi @, I would recommend you to try to get a “simple” MRV of your veins (jugularis or/and azygous). A proper doppler sonography needs a very, very experienced physician. I know a lot of Germans who wasted a huge amount of time & nerves because nobody there was able to do the job properly to find...
by muse
Tue Nov 24, 2009 7:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Canada: Who/What/Where
Replies: 116
Views: 37353

double posting, sorry
by muse
Sat Nov 21, 2009 9:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Documentary ????!!!!
Replies: 152
Views: 33762

My husband & I had to drive over 50km to the next town and back to see the documentary in an internet café because we are living in the sticks/in the woods of NZ without broadband. What a fantastic work by all of you! It’s really a long time ago I’ve seen such damned good documentary about a med...
by muse
Mon Nov 16, 2009 6:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 149888

Prof. Juergen Reichenbach, PhD address: Inst. fuer Diagnostische und Interventionelle Radiologie, Universitatsklinikum Jena MRT-Gebaude Am Steiger, Philosophenweg 3, D-07743 Jena, GERMANY email: Juergen.Reichenbach@med.uni-jena.de He is working together with Prof. M. Haacke (case 1) and he is a big...

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