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Hi All, I was diagnosed with rrms June of last year (2009) I have recently started Copaxone (3 weeks) and all my neuro ever suggested for me was 4000 units of D3 and 1300mg of calcium daily........ PLEASE HELP!!!! If you're taking D3 and Calcium already, then I think you're pretty much done. There ...

Embry makes some valid points here regarding the need for an open and thorough look at CCSVI. But ultimately this article is a little bit hypocritical because he criticises the CRABS due to 3 studies which have not demonstrated clear efficacy in reducing disease progression. Yes I do work in the dr...

Lack of double-blinding and placebo controls is one criticism that cannot be raised in this instance. Yes it can, since the study was neither double-blinded nor placebo controlled. Both blinding and placebo controls are ways of controlling the effect of the patient and doctors expectations. This ef...

I've read and reread the piece in the BMJ. It's major focus is that an agreement reached between the NHS and the drug companies to revisit the price paid for the CRAB drugs once efficacy data was available was never put into action. It concludes that the price paid for the drugs is not worth the ef...

Isn't it widely believed that lesion size and location are at least as important as raw lesion count, and that this likely explains a lot of the variation in disability levels between people with similar lesion loads? More importantly, the DMD drug effectiveness studies I have read used relapse rate...

I strongly disagree with this paper's position. I deleted most of your post to reduce the size of the quote above, but wanted to repeat your excellent summary of some important points. I very much agree with what you say here. This procedure is performed all the time on the jugular veins of dialysi...

I strongly disagree with this paper's position. There are a lot more positions than the two starkly opposing possibilities that Embry presents. Secondly, I personally take a middle position of believing that we need preliminary objective research done to assess SOME level of effectiveness of the pr...

It seems to me that what you are saying could be applied to any medication. It is claimed that Tysabri slows the course of MS but if no one knows how fast it is progressing how can it be claimed that it is being slowed. For illnesses like MS, where the normal course of the disease involves fluctuat...

You should save your money. Homeopathy doesn't work. Scientifically, homeopathy cannot work, since the explanation of how it works defies what is known about physics and chemistry. It involves diluting ingredients to the point that a typical dose doesn't even contain any molecules of the original &q...

hey don't know how adjuvants work. I don't want to be called an anti vaccine person, but if they don't even know how it works, I presume they know less if those substance have deleterious, subtle or long term effects in our systems or not. That's not a correct presumption. Clinical trials and long-...

This post has been bothering me for a while. Overall, I liked Dr. Embry's article, though I do think the tone is overly defensive. More significantly, I have a problem with two false dichotomies presented in the article. The first is with the discussion of the cause-and-effect relationship between M...

my 2 cents: I agree with marc's assessment and found Embry's response to be overly defensive and paranoid. Well said, and I agree as well. I actually found the Annals of Neurology article to be pretty fair and positive. As much as I hope CCSVI pans out, the fact is that aggressive treatment is not ...

I gotta agree with Ozark. Just because no one has done a press release doesn't mean they are not looking at it. In fact my doc actually did mention he wasn't to impressed with press release medicine lol. Exactly. I believe it's considered poor form (and even a bit suspicious) to communicate via a p...

Why did they not do an MRI for the 26% normal, healthy that showed stensois? It sounds to me like we do not know if those healthy control people who have a stenosis have lesions on their brain! I suspect part of the reason is cost. MRI scans aren't cheap, since they tie up a very expensive piece of...

These results are significant enough for everybody to get screened for CCSVI when - MS is suspected - MS is confirmed - MS has been around a long, long time It should now be part of everyone's MS check up. I disagree, and in fact I think these results lead to the opposite conclusion: people should ...