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by HappyPoet
Wed Nov 06, 2013 1:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

dania is one of the loveliest and bravest women I've ever known. She's spent years trying to be properly diagnosed and kept searching and pushing against an arrogant medical establishment until she, herself, found the answer to her neurodegenerative condition. Doctors in mainstream medicine thought ...
by HappyPoet
Tue Nov 05, 2013 12:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

DrF, I forgot to tell you: 1) I have a new-patient appt for a full-spine chiro who has the table you recommended for me. 2) My husband is seeing his chiro again. 3) I found on the Internet a tens unit that looks just like yours (yes, I know you won't approve, but I have to try to be self-reliant--if...
by HappyPoet
Mon Nov 04, 2013 8:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

Thanks, Nigel. NZ is farther ahead than NYS; I'm happy you have the legal MM option. If you've ever tried or ever will try pot for your symptoms, I do hope it's helpful for you like it's been for me. I just read where Colorado, which is one of only two US states that have legal recreational pot use,...
by HappyPoet
Mon Nov 04, 2013 1:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

Hi Nigel, I've been wanting to ask you this for a while now: How is the medical marijuana situation in NZ? Can pot be grown outside in NZ's climate? Is pot for medicinal reasons legal? If not legal, are the penalties harsh? Personally, I find it very helpful for my pain, spasticity, and sleep. Right...
by HappyPoet
Thu Oct 17, 2013 8:49 am
Forum: General Discussion
Topic: Obtaining Social Security Disability
Replies: 6
Views: 3094

Re: Obtaining Social Security Disability

Filed by myself (am not a lawyer); approved in two weeks. Received first check after five-month waiting period. Gained Medicare eligibility 19 months after approval date. Tips if you apply yourself: 1. One of your doctors must agree to complete the required form in your favor; otherwise, you will no...
by HappyPoet
Tue Oct 08, 2013 9:19 am
Forum: General Discussion
Topic: PPMS and stem cell treatments
Replies: 1
Views: 1388

Re: PPMS and stem cell treatments

Hi peonypixie and welcome to TiMS, The chemotherapy drug, cytoxan, had an affect on your immune system, and because the cost of trials is so high, researchers must be very selective in which patients are admitted. Patients who had previous immune-modulating treatments, such as chemo, could skew the ...
by HappyPoet
Tue Oct 08, 2013 8:56 am
Forum: General Discussion
Topic: G.P and mri report
Replies: 1
Views: 1391

Re: G.P and mri report

Hi melsywooh, If your g.p. doesn't understand the report, he'll need to consult with a neurologist or MS specialist, especially if you're considering starting a DMD or if the MRI was done to evaluate a current DMD you've been taking. I'm not a doctor, but I can try to help you understand the MRI rep...
by HappyPoet
Mon Oct 07, 2013 5:54 am
Forum: General Discussion
Topic: Dietary Salt Associated With MS Activity - new study
Replies: 3
Views: 1704

Re: Dietary Salt Associated With MS Activity - new study

Cheer, thanks for providing all that information.

Those processed foods (usually frozen) you mention and salty snacks (potato chips, nuts, etc) are my downfalls, but I now intend to change my family's shopping/cooking/eating habits.
by HappyPoet
Sat Oct 05, 2013 6:06 pm
Forum: General Discussion
Topic: Dietary Salt Associated With MS Activity - new study
Replies: 3
Views: 1704

Dietary Salt Associated With MS Activity - new study

Has anyone with MS eliminated salt from their diet and experienced neurological benefit? http://www.medpagetoday.com/MeetingCoverage/ECTRIMS/42063?xid=nl_mpt_AAN_confreporter_2013-10-04&utm_source=aan-confreporter&utm_medium=email&utm_content=mpt&utm_campaign=10|04|2013&userid=40...
by HappyPoet
Sat Oct 05, 2013 7:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

uprightdoc wrote:Hello Poet,

I may need your husband to make a house call but that's a different story.
I'll send you his cell number. Also, thanks for all the answers to my questions.

Rob, thanks for posting your images. I (re)learned a lot of information! Please keep us posted.
by HappyPoet
Fri Oct 04, 2013 10:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

We cross-posted, DrF.
by HappyPoet
Fri Oct 04, 2013 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

Rob, my chiro took a special odontoid X-ray with my mouth open so a front view of the C1 vertebra could be seen. Maybe that's one of the types of "specific" upper cervical X-rays DrF mentions? DrF, do you happen to make house calls? J/k, but I do want to get back to you as soon as possible...
by HappyPoet
Fri Oct 04, 2013 8:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372248

Re: DrSclafani answers some questions

Hi DrS,

Can you please give us a report of your trip to Sherbrooke?
by HappyPoet
Fri Oct 04, 2013 7:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

Haha! You got me, Rob!! Freaky is right.

I'm very glad your ribcage is fine. :)
by HappyPoet
Fri Oct 04, 2013 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 762820

Re: CCSVI and CCVBP

YIKES! Am I really seeing what I think I'm seeing? Rob, are you missing segments from your ribs? The L T4 rib looks complete but ribbon thin, and the R T4 rib looks like it has a missing segment as do both sides of all ribs below. Can you feel with your fingers where the rib segments are missing whe...

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