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Can someone please define the criteria used to differentiate between these forms? I see Zamboni said that PPMS didn't respond so well to CCSVI treatment. I have never been given a firm dx, just progressing downhill for many years, but I did have just one attack which took me off my legs until predni...

I've been dx since the mid '80's, but have not been told what sort. I've presumed it is PPMS as it has been a gradual downhill struggle. MRI's were not commonly available at the beginning, in the late '70's. About 2002 a neuro offered me an MRI, but there didn't seem any advantage so I declined. He ...

I've been dx since the mid '80's, but have not been told what sort. I've presumed it is PPMS as it has been a gradual downhill struggle. MRI's were not commonly available at the beginning, in the late '70's. About 2002 a neuro offered me an MRI, but there didn't seem any advantage so I declined. He ...

As there are fewer of us PPMSers it seems to me important that those who have already had treatment should post their experiences over the long term, as, despite Zamboni not being very encouraging about the treatment on PPMSers, there are some such folk who have and are making progress. We need to h...

Bookings for scans and follow up are full for July and August 2010. Essential Health Clinic is now taking bookings for the next tranche. My ref. number is over 700, and it took me six hours online to achieve that as the site kept crashing due to overload of enquiries.

Badger, it's great to read of your continuing improvements!
It would be good for us to be reminded of how you were before going to Poland, compared to now.

Hi LR1234 I've sent a personal email to you

Trent

Thanks Badger.

It is good to read of the improvements in folk's conditions resulting from the Liberation treatment in Poland - and elsewhere - but I wonder if there is a downside to all this. Are there people who have been through this treatment who are NOT experiencing positive results? I have a sceptical wife to...

Thank you very much Badger, that is an excellent summary.

Thanks for that. I'm not into facebook - at least not yet! So your posts will help.

Thanks Liva. I'll read those avidly. At 68 with PPMS, wheelchair dependent everything matters!

Could we plese have some detailed feedback / blow by blow account of events from arriving to departing from Katowice, Poland, to help ease the minds of those yet to embark on this venture? I, for example, am wholly wheelchair dependant, so it really matters.

Could we plese have some detailed feedback / blow by blow account of events from arriving to departing from Katowice, Poland, to help ease the minds of those yet to embark on this venture? I, for example, am wholly wheelchair dependant, so it really matters.

Hey, I'm in the UK too - no probs of getting stuff. If you want more info just ask and I'll send a private message.