This Is MS Multiple Sclerosis Knowledge & Support Community

very nice last words courtesy of frank o'hara -- thanks for a lovely thread and lovely people :-) A True Account of Talking to the Sun on Fire Island The Sun woke me this morning loud and clear, saying "Hey! I've been trying to wake you up for fifteen minutes. Don't be so rude, you are only the...

Good morning. :-) I would love to hear from anyone on your experiences with your MRIs and how your disease activity is or is not reflected on them. Would you say it is an absolute given that disease activity will leave its mark on an MRI? I have heard conflicting ideas from different "experts,&...

Willowford, if you would be so kind, I am very interested in some specific issues regarding lesions and MRI. * Some doctors diagnose people with MS even if their MRI is completely clear. Therefore that must mean that some people can have flare-ups and disability and progression that is not reflected...

I would also suggest contacting your local representative and indicating on your letter that a copy is going there. You could also send a copy to members of the Congressional Multiple Sclerosis Caucus. With luck, your representative is on the caucus. (Maybe she or he will join!) http://msactivist.bl...

Neurotransmitters? I think it looks suspiciously like an astrology chart. "I'm a Gaba, Taurine rising . . " :-) I wish I knew more about regulating serotonin. 5htp is a great idea, but what if the root problem was absorbing it? Have you got l-glutamine in your supplement cupboard? Here's a...

Well, Gary, there's natural and there's natural. I didn't mean listening to Donovan, or finding your inner angel, who clearly needs soothing. :-) I was thinking of magnesium, taurine, that sort of thing. (Although it sounds like you've already researched this angle.) Where is jimmylegs? Jimmylegs is...

I'm so excited for you! Congrats on finding RELIEF from symptoms already! But I'm so sorry you now have the flu. I hope you have a good support system. Make sure you rest, stay well hydrated, and take care of yourself! Are you in New York?

About the steroids . . . lyme-literate doctors steer lymies away from steroids because they suppress symptoms but do nothing to get rid of the little buggers. :-) Many lymies say steroids ultimately make their recovery longer, harder, more protracted. There are natural ways of calming the brain and ...

Well, I think this is one explanation:

http://www.anapsid.org/cnd/diffdx/hypercoagulation.html

Forgive me for saying that is cool, because it isn't cool to have abnormal clotting, but what a great piece of information. Thank you for posting this.

And can any lab test for it if they have the right codes?

Did you have any pre-procedure blood thinners? Or only afterward?

Disgusting. There is no doubt that my health was IMPROVED by having that procedure, which would SAVE an insurance company future money. Do they ever think about that? Isn't it more cost-effective to pay for one, or even two or three venoplasties, than to pay for monthly infusions, ER visits, more an...

Hi griff. I am not sure you had a chance to see my question on your other thread, but I had a sincere question. Where in Europe do you live? What is your native language? Thank you.

That is an excellent point -- the weight of each and every person filing an appeal would make a difference. It would be perfect if all the important medical information were gathered succinctly so the appeal was most effective.

Excellent discussion point! So many of us have had infusions of some type, and who knows what vascular effects ANY of the DMDs have? I think it could be useful to do a multifactorial spreadsheet and include past/current DMD use. Personally, mine include Avonex and Rebif, then infusions of IVIg -- tw...