This Is MS Multiple Sclerosis Knowledge & Support Community

Hi all, It seems Tim, as usual, has again proved his one answer leads to ten questions theory. Like you all, I am more interested in the ability to classify MS types than whatever my original question was. It would have saved a considerable amount of frustration to have had this typing done initiall...

Thanks Bob, The good news is that my Neuros never totally seem to care what I think. It seems the RRMS diagnosis is an easier place to start for the Neuros in my life. I appreciate the honest moniker, but really I am just much to tired to beat around the bush. I have shared all of this with my clini...

Hi all, Starting this trial path has made me wonder if anyone, in any stage of the trial has had or suspected they were in the "progressive ms" group. Were any of the initial phases open to progressive patients? What were the results etc.? I have long suspected I was in the progressive gro...

I am a bit curious if anyone knows how the mrtc test works? Is is a straight pass/fail. A certain percentage or number that is required? Cells per million or some such scale? Because like everyone else I wonder why, if all msers have mrtc's why are there any neg. tests.
Thanks,
Lars

Hi all,
Found out today that my mrtc was possitive. Apparently the Advair steriod in question made little or no difference. Maybe the bar has indeed been lowered. I have stopped Advair and swithed to Singular which seems to be working so far. I will schedule bag o' blood Monday.

NHE, Absolutely no need for regret. It is really impossible to get a complete picture of anyone from a series of letters. All questions, thoughts, advice and concern is greatly appreciated. No need to use up valuable energy. It is enough work to stay possitive, happy and deal with this MS thing ever...

NHE,
I don't smoke tobacco or pot. The cannibas reference was from my Nuero who seemed convinced it was the cause of neg. MRTC's in one of her patients. I do however advocate any therapy that helps no matter how unconventional.
Thanks,
Lars

Tim and all, I will do my best to relay this exactly as written, wish me luck. I tried to find this on the web site listed below. No luck. Opexa Therapeutics TERMS Study: Protocol 2005-00 Exclusionary Medications Corticosteriods * Cortisone * Hydrocortisone (Cortef) * Prednisone (Deltasone, Meticort...

Cure or bust, I have the list in front of me but I can't seem to locate a site to download it. I don't have a scanner but if I have to I will type it out. I e-mailed TERMS and asked. I'll post when I get some info. Pretty much ALL Corticosteroids and Ginseng are on the list. Tim may have better insi...

Thanks for the input Bob and Tim, It is an interesting dilema to be sure. First of all I am possitively convinced that the asthma business in ms related. I have no proof or medical backup but both started at the same time and I fit no real asthma profile. Absolutely NO previous issues. The problem i...

Hi all, I had my initial blood work done yesterday. Standard tests, questions and so on. I wanted to put in my 2 cents on the mrtc issue. I spoke in length about it with the clinic Neuro. I have heard a lot of theories about why folks test negative. First, my clinic has had only one negative mrtc ou...

Lyon, Thanks for the clarifications. I was already told by my Dr. that we would likely never know what we were on. It really doesn't matter to me, it was all part of the decision. It's just that I read a few post that really seemed compelled to find out. I suppose it is inevitable to be curious. To ...

Hello Lyon and all, I started wondering where the heck those involved with the Tovaxin trials have been hiding. I haven't been able to find more than a few people throughout the web with the exception of timswellness which seems to be everywhere. I thought of starting a site to corral the volunteers...