Search found 26 matches

by ramairdad
Thu Jan 27, 2005 12:24 pm
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 32568

Novantrone

I took my lifetime supply of Novantrone by infusions and my doctor feels I've levelled off. That being said, I still have the same mobility problems I had before, just not worse. I'm really hoping to be approved for tysabri, my doctor seems to think it's worth a try, possibly getting some of my func...
by ramairdad
Fri Jan 21, 2005 9:14 am
Forum: General Discussion
Topic: Questions about Antegren? Post them here
Replies: 13
Views: 5201

antegren

iI was told by my nuro that it is about $2000 an infusion. Has anyone heard if there is any improvement with this drug( by means of better functioning)? I'm wondering if it's worth the risks and expence.
by ramairdad
Tue Jan 18, 2005 11:22 am
Forum: General Discussion
Topic: Teri Garr on Larry King tonight
Replies: 36
Views: 11175

general discussion

I have been told" at least MS isn't painful". Yea right! I'd like to have one day that is pain free! (without taking a bunch of pain killers and making myself loopy) Does anybody else get the burns? They hurt! I'm going to watch Larry King tonight. I think Montel is a good advicate to have...
by ramairdad
Mon Jan 17, 2005 12:45 pm
Forum: Stem Cells
Topic: Stem Cells-now named Regenerative Therapy
Replies: 1
Views: 2472

Stem cells

I would like to see this program also! If anyone knows of a time it's going to be on again,post it.
by ramairdad
Mon Jan 17, 2005 12:39 pm
Forum: Stem Cells
Topic: Very interesting...
Replies: 11
Views: 4716

Stem cells

I would like to volenteer for stem cell research here in the US,If there is any! I can see that this is our only hope for remylination .
by ramairdad
Mon Jan 17, 2005 12:16 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 26235

I'm sure he will. He is a very good doctor and really understands MS. He has a lot of patients with MS. He is the one doctor who ruled I have MS, when others were just shaking their heads not knowing what was wrong with me at the time. :!:
by ramairdad
Sun Jan 16, 2005 12:21 pm
Forum: General Discussion
Topic: Fish oil?
Replies: 21
Views: 6522

supplements

I agree with Rev. Leonidas. I have not experieced any good effects adding supplements, but have noticed a healthier diet helps with energy.
by ramairdad
Sun Jan 16, 2005 12:01 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 26235

changes

Michelle,
Have you noticed any improvement anywhere? I know this is short time frame.
by ramairdad
Sun Jan 16, 2005 11:46 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Calling all Tysabri Users...
Replies: 52
Views: 26235

tysabri

DenverCo, I'm glad for you! I'm also trying to get approved for tysabri. I'm unable to walk without a walker or hanging on to something. I'm hoping for some improvement also. I've was diagnosed with MS about 17 years ago(started with tingling legs and has progressed to where I am now). Your story gi...
by ramairdad
Sun Jan 16, 2005 11:13 am
Forum: Novantrone
Topic: Novantrone and Copaxone
Replies: 1
Views: 8297

Novantrone

I took my lifetime dosage of Novantrone and stopped about a year ago. My doctor(neurologist) says he thinks my progression has stopped. I'm trying to get natalizumab approved to see if it will help my function. He believes it may help with the swelling in my plaques. I'll post my results after I've ...
by ramairdad
Fri Jan 14, 2005 11:42 am
Forum: Introductions
Topic: introductions and question
Replies: 1
Views: 2198

introductions and question

Hi! I,m a new member. I've had MS for about 17 years. I'm not able to walk without the use of a walker for short distances or my scooter for longer ones. Question, Has anyone been on Tysalri and found any improvements in their mobility? My Dr is trying to get me approved for it.

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