Search found 785 matches
- Mon Nov 18, 2013 5:38 pm
- Forum: General Discussion
- Topic: Ottawa doctors behind breakthrough multiple sclerosis study
- Replies: 11
- Views: 3650
Re: Ottawa doctors behind breakthrough multiple sclerosis st
Taurus Any comments I've two comments: 1. I can't understand why someone would release the same press release in November that was first released in April. I wonder if the recent reported lawsuit has anything to do with it and if this second release of the same info is an attempt to influence the ou...
- Wed Sep 04, 2013 6:58 pm
- Forum: Exercise and Physical Therapy
- Topic: Rehabilitation
- Replies: 16
- Views: 11524
Re: Rehabilitation
Brent Sorry you haven't had more responses. I am not aware of a specific MS rehab program in my area, but there is a Neurofit program that coordinates, if appropriate, with an iWalk Recovery Center . The link profiles the types of equipment they use. I don't know anyone with MS who has utilized eith...
- Wed Aug 14, 2013 12:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Could be traffic accidents the reason for MS increase?
- Replies: 16
- Views: 2938
Re: Could be traffic accidents the reason for MS increase?
This document (although dated) is one of the best "summaries" I've come across re: trauma and MS. Thought it may be of interest to some.
Analysis of research into the role of trauma and stress in the etiology of multiple sclerosis 2007
All the best
Sharon
Analysis of research into the role of trauma and stress in the etiology of multiple sclerosis 2007
All the best
Sharon
- Thu Jul 11, 2013 9:01 am
- Forum: General Discussion
- Topic: Is perimenopause making my ms symptoms worse?
- Replies: 46
- Views: 11116
Re: Is perimenopause making my ms symptoms worse?
Lynn62 Hi! I was wondering if any ladies out there noticed their ms symptoms worsening during perimenopause/menopause? I was diagnosed at the age of 57 after they took me off HRT so I naturally associated menopause and no HRT with worsening MS symptoms. Simultaneously the initial research on estriol...
- Sun Jun 30, 2013 3:12 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A New Review About Diagnosing CCSVI
- Replies: 4
- Views: 1855
A New Review About Diagnosing CCSVI
Hi all I've been away but don't think this has been posted yet-- The role of noninvasive and invasive diagnostic imaging techniques for detection of extra-cranial venous system anomalies and developmental variants that was published by Buffalo (BNAC group). The full article is open access complete w...
- Thu Apr 18, 2013 12:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
- Replies: 92
- Views: 13849
Re: Embry: Actual data from PREMiSe suggests CCSVI is of val
Cheer wrote: Phase 2 patients did not have their CCSVI corrected any better than the placebo patients. The Venous Insufficiency Severity Scores were the same for treated and untreated patients!! Agreed and I think by virtue of the title of the poster from the AAN site I think some people at BNAC kno...
- Wed Apr 03, 2013 12:01 pm
- Forum: Friends and Family
- Topic: My mum was diagnosed with MS today... advice please?
- Replies: 2
- Views: 5872
Re: My mum was diagnosed with MS today... advice please?
Hi Lisa I'm sorry about your dear Mom's diagnosis of MS and as you know, no one can tell you how likely it is if or when she may experience disease progression. I was diagnosed at the age of 57 (about 10 years ago) and so far am doing "relatively" ok--EDSS 1 or less (altho it's never been ...
- Mon Mar 25, 2013 9:50 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Vein-opening for multiple sclerosis investigations continue
- Replies: 1
- Views: 1396
Re: Vein-opening for multiple sclerosis investigations conti
Thanks Erin
Despite the title, I found this video/article to be fairly negative. If you're interested, the opportunity to comment on it ends tonight at 11:59 pm ET.
Take care all
Sharon
Despite the title, I found this video/article to be fairly negative. If you're interested, the opportunity to comment on it ends tonight at 11:59 pm ET.
Take care all
Sharon
- Sun Mar 17, 2013 1:13 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: PREMiSe study results
- Replies: 77
- Views: 13530
Re: PREMiSe study results
No mention of brain atrophy or iron deposition measurements. Thanks Cece. I find it difficult to believe that Buffalo didn't measure either one or both of those since they are well published in brain atrophy and iron deposition. Maybe that info will be forthcoming at the poster presentation, schedu...
- Sun Mar 17, 2013 11:00 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: PREMiSe study results
- Replies: 77
- Views: 13530
Re: PREMiSe study results
While I think the Buffalo results as far as we know them at this point are a serious blow and very discouraging, I think we all probably want to know more. I was interested in knowing more about the so-called “disease activity” that suggested angioplasty “may” make people worse and wondered if the “...
- Fri Mar 01, 2013 8:30 am
- Forum: Natural Approach
- Topic: Another benefit of green tea
- Replies: 8
- Views: 3004
Re: Another benefit of green tea
Hi all Recently came across an open access review article about green tea that I thought may be of interest to some. Epigallocatechin-3-gallate: a useful, effective and safe clinical approach for targeted prevention and individualised treatment of neurological diseases ? It's fairly technical but th...
- Tue Feb 19, 2013 6:29 pm
- Forum: General Discussion
- Topic: Brain Atrophy and MRI
- Replies: 5
- Views: 1896
Re: Brain Atrophy and MRI
Hi Scotto Can one have MS and very few plaques? I think one can have MS and very few plaques. One of the better articles I've read about MRIs is from the MS Discovery Forum entitled: More Than Meets the Eye: the promises and pitfalls of MRI imaging in multiple sclerosis It's rather lengthy but quite...
- Mon Jan 28, 2013 12:01 pm
- Forum: Introductions
- Topic: New, old member Loobie!
- Replies: 3
- Views: 1385
Re: New, old member Loobie!
Hi Loobie
Welcome back, for whatever reason. ) I remember you well and have often wondered how you fared. I'll read your blog to check that out....
All the best
Sharon
Welcome back, for whatever reason. ) I remember you well and have often wondered how you fared. I'll read your blog to check that out....
All the best
Sharon
- Thu Dec 13, 2012 6:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cochrane Review-Well-designed/robust studies are warranted
- Replies: 16
- Views: 3080
Re: Cochrane Review-Well-designed/robust studies are warrant
I am definitely of the opinion that we need this Cochrane Review and that it’s quite important and very valuable in our efforts to try to move research and clinical trials forward. Given the influence of the NMSS, my read of the “tea leaves” is that the NMSS is definitely opposed to CCSVI (no surpri...
- Tue Oct 30, 2012 6:48 am
- Forum: Regimens
- Topic: Gibbledygook's stents
- Replies: 125
- Views: 45330
Re: Gibbledygook's stents
I'm sorry you're having such a rough go of it. Hopefully your discussions with the neuros included info that interferons may worsen spasticity. Here's a link to dated (2006) info about MS from the Cleveland Clinic which notes: All interferon preparations can worsen spasticity, depression, and headac...