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by LR1234
Sun Feb 23, 2014 2:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika`s procedure in Poland
Replies: 493
Views: 126643

Re: Erika`s procedure in Poland

Hi Erika, I have endometriosis so painful periods and cysts also make my ms worse. Currently I'm on provera but I'm planning to take this one...... http://qlaira.org It's a more natural form of oestrogen that the levels are changed to mimic cycle it's mixed with synthetic progesterone at different l...
by LR1234
Tue Jan 07, 2014 2:41 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 137
Views: 53883

Re: Rituximab iv and intrathecal with valtrex

Thanks for update xx hoping this is a blip
by LR1234
Sun Jan 05, 2014 3:28 pm
Forum: Diet
Topic: Has ANYONE reversed their MS BESIDES Dr Wahls?
Replies: 44
Views: 58903

Re: Has ANYONE reversed their MS BESIDES Dr Wahls?

I'm not sure she ever said exactly what chemo she took (I will check her first edition of minding my mitochondria which I have ) I dont dispute that her diet has maintained her health and that the diet greatly assisted her recovery but I do feel the chemo and other meds she took probably gave her ms...
by LR1234
Sat Jan 04, 2014 6:18 am
Forum: Diet
Topic: Has ANYONE reversed their MS BESIDES Dr Wahls?
Replies: 44
Views: 58903

Re: Has ANYONE reversed their MS BESIDES Dr Wahls?

I'm doing a paleo diet (low sugar no processed foods, juicing, lots of veg) ms not gone but I feel my energy better.

I hope people realise that dr wahls did take quite extensive chemo so perhaps this allowed her body to heal along with the diet.

I have not had chemo but I am not ruling it out.
by LR1234
Mon Dec 16, 2013 7:50 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 137
Views: 53883

Re: Rituximab iv and intrathecal with valtrex

I have to wait till feb now to start my meds but hopefully it will pass quickly
by LR1234
Sun Dec 15, 2013 3:52 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 137
Views: 53883

Re: Rituximab iv and intrathecal with valtrex

My eyes get real messed up in stores plus my vision is pretty gravelly/hazy:(
Glad to hear you got some improvements there! Looks like things seem to be on the up which is good news (can never get too excited though with ms as it has a tendency to disappoint but cautiously optimistic for you:) xxx
by LR1234
Tue Dec 03, 2013 3:43 pm
Forum: General Discussion
Topic: How many members in the UK
Replies: 5
Views: 1503

Re: How many members in the UK

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by LR1234
Tue Dec 03, 2013 3:41 pm
Forum: Introductions
Topic: Family History of MS
Replies: 5
Views: 1819

Re: Family History of MS

Thanks for posting link, I do all that stuff but good to hear another advocate!!

Maybe your dad could try some of the suggestions too
by LR1234
Tue Dec 03, 2013 3:29 pm
Forum: General Discussion
Topic: This may sound harsh
Replies: 21
Views: 5053

Re: This may sound harsh

Hi jerry a quick glimpse into my story. I was 17 years old when I could no longer go to college due to extreme fatigue and feeling really unwell all the time, eye issues, numbness, incontinence, flu like symptoms. I went to drs as I knew something was off and just wanted a magic pill to fix me. The ...
by LR1234
Wed Nov 27, 2013 1:14 pm
Forum: Rituxan (Rituximab)
Topic: My first Rituxan infusion
Replies: 6
Views: 7572

Re: My first Rituxan infusion

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by LR1234
Wed Nov 27, 2013 1:11 pm
Forum: Introductions
Topic: Newly diagnosed today
Replies: 13
Views: 2394

Re: Newly diagnosed today

I personally would get on a drug and my choice would be copaxone. I have to be honest and say that who knows if it's helping or not but I do lots of diet things too. I just kinda think anything that might help us worth trying.... For some they really work. I went many years on no drugs and got more ...
by LR1234
Wed Nov 27, 2013 1:06 pm
Forum: Diet
Topic: milks Kefir suitablity for MSers?
Replies: 4
Views: 4238

Re: milks Kefir suitablity for MSers?

I think the milk kefir has but people tend to drink more of the water one so get a lot more. Eat some raw low heated unpasturised fermented veg like saurkraut (has to be from a special health store though not supermarket) take raw cider vinegar daily and I take a good probiotic called bio kult but I...
by LR1234
Wed Nov 27, 2013 1:03 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 137
Views: 53883

Re: Rituximab iv and intrathecal with valtrex

Hey anonymoose,
Hang in there! Yes children are little germ spreaders lol:)
Glad to hear about extra sensation I hope your fatigue eases up soon,
Rituximab is pretty powerful so I imagine there are going to be lots of strange and new things happening, I hope they are for the better in the end x
by LR1234
Wed Nov 27, 2013 3:46 am
Forum: Diet
Topic: milks Kefir suitablity for MSers?
Replies: 4
Views: 4238

Re: milks Kefir suitablity for MSers?

I drink a little goats milk kefir, I also worry it might not be good for the MS but I'm just about to start growing water kefir instead which might be a better option for you too xx
by LR1234
Mon Nov 25, 2013 7:20 am
Forum: General Discussion
Topic: New neuroprotection compound - hope for Progressive MS?
Replies: 5
Views: 1501

Re: New neuroprotection compound - hope for Progressive MS?

We can hope though Harry.....one day they gotta hit on something!! Or maybe not ;) x

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