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by annbbe
Fri Jan 14, 2011 8:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question/kérdés fr-hu-ang
Replies: 7
Views: 2337

Pepe! It s fantastic! It's so good to hear....:)


Erika..i dont understand why this happened...i don't think it is a Simka's team mistake...I hope you would feel better after seeing Zamboni. Go girl! You should contact him!

Hugs!
by annbbe
Sun Jan 02, 2011 6:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question/kérdés fr-hu-ang
Replies: 7
Views: 2337

question/kérdés fr-hu-ang

Sziasztok! Kérdésem lenne: van itt valaki aki már egy éve a "szabadulás"-tól és még mindig rendben vannak az érei? Hi! Is there anybody who is a year after the liberation procedure without being collapse again? Salut! Y a-t-il quelqu'un ici qui est un an apres sa libération et dont les vei...
by annbbe
Thu Nov 04, 2010 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: answer for Pepe about polish doctor letter content
Replies: 2
Views: 1982

answer for Pepe about polish doctor letter content

Hi, this post is the answer for Pepe question about the content of letter our polish neurologist dr Ryglewicz has sent to our Health Department, but i thought there is much more interested in this than just Pepe. So, here it is for you all. Yes, you are right, Pepe, dr Ryglewicz wants prohibit docto...
by annbbe
Tue Sep 07, 2010 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Ann I am happy to hear of your recovery. I am a similar case like yours, 27, got dx in 2000 as well, had my liberation in Bulgaria in June. I feel my symptoms from time to time, esp when I am tired, but my energy level is better, I am not tired of life anymore. :) However, I am still on ldn. I am a...
by annbbe
Tue Sep 07, 2010 6:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Hi TIMS's Friends! My physical state is currently going better and better. Yesterday still I wasn't able to take this heel-toe walking test at all. And just a day later - today I am almost ready to take this walk. Just a day later! I couldn't believe it, so I sat on my exercice cycle and started to ...
by annbbe
Sat Sep 04, 2010 2:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: iron deficiency
Replies: 7
Views: 2232

iron deficiency

Hi! I don't know why for years I've been having iron deficiency anemia. Inspite of taking iron pills I am still "under the line" with my iron. What's going on. Zamboni said we all have iron depositions in the brain so...how come..? I don't understand it. Do you have similar problems? Maybe...
by annbbe
Sat Sep 04, 2010 2:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Hi!
Yesterday I tried to run and...I did it! I haven't run for ages! I wasn't able to do so.

It wasn't beutiful run, but I was able to move my legs normally. :)
by annbbe
Wed Aug 25, 2010 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

7mnths after liberation!

Hi Guys! Almost 7 months after procedure! My balance is much better. If I have to, I am able go go up/downstairs without handrail or wall for help. Or even with something in both hands. My left arm/hand is much stronger. I am able to keep going with a plate of pizza in the left hand. However, I am s...
by annbbe
Fri Apr 23, 2010 8:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Hi everybody!
I was in Katowice today morning- I visited Euromedic to check my left neck vein 3 month after procedure. Everything is ok- the vein is still wide enough:).

Next checktime in three months.

:)
by annbbe
Thu Apr 08, 2010 6:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Hi everybody! I had my 14 Tysabri inf. yesterday. I am not sure if I still need it, but my doctor said I should stay on Tysabri at least for 2 years - so: 10 infusions to take. I feel better. I don't have this dropping foot anymore. My balance is better but still not ideal. My left hand is a bit str...
by annbbe
Sun Apr 04, 2010 3:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

hi sunlounger! i don't really know why this foot is dropping. maybe is because of this kind of fatigue after excercices. maybe it could disappear after some time? we will see. the rest of things are still good.

fingers crossed for your stenting!

anna
by annbbe
Sat Apr 03, 2010 10:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

news from annbbe

Hi everybody! I am 2 months after my procedure. My EDSS came down from 4EDSS to 3.5EDSS. Not much, but still something. 3 weeks ago I started my rehabilitation stay in a hospital. I exercised 3 times a day. I walk without fear of falling down now, I don't have to grab a handrail while walking up/dow...
by annbbe
Mon Feb 22, 2010 2:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My legs ache
Replies: 8
Views: 3043

Let us know how things look like!
by annbbe
Wed Feb 17, 2010 9:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: María's update
Replies: 14
Views: 3986

Pepe!!! This post sounds great to me! I am on Tysabri since jan.27 2009. But a week before the op, and then the week after the op, I didn't want to take Tysabri. I had to check what was going to happen. Tysabri helped me a lot. You probably don't know that i have tried so far rebif, betaseron, mitox...
by annbbe
Sun Feb 14, 2010 9:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 20216

Hey, I have np MRI sheduled yet. Have a good day:)

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