Search found 574 matches
- Mon Apr 23, 2012 10:15 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How many times have you had venoplasty for CCSVI?
- Replies: 30
- Views: 6561
Re: How many times have you had venoplasty for CCSVI?
Three times for me, but not only because of restenosis, but because of missed blockages too.
- Sat Apr 21, 2012 1:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My Two Year Follow-Up with Dr. Sclafani
- Replies: 6
- Views: 2106
Re: My Two Year Follow-Up with Dr. Sclafani
I am so happy to read your update! Congrats to you!!!
- Sat Apr 21, 2012 1:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Hi from Jeff, re. my stent treatment at Stanford
- Replies: 268
- Views: 68393
Re: Hi from Jeff, re. my stent treatment at Stanford
Fantastic results and a very happy outcome! If it weren't for you and Jeff, we would not be here celebrating all of our recoveries. Actually, most are out living, and not spending too much time here any longer. That's a good thing!
Hope you two have fun celebrating!
Hope you two have fun celebrating!
- Fri Mar 23, 2012 9:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4585
Re: Third CCSVI treatment tomorrow
Yes, my legs feel lighter and I haven't had any shooting pains or stiffness in my calves.
All the best to you too!!
All the best to you too!!
- Fri Mar 23, 2012 5:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4585
Re: Third CCSVI treatment tomorrow
It's been two weeks since my third treatment. I feel amazing! This time I feel even lighter and more energetic. I have no symptoms now. There is something different about this time. Even though I felt relief after the previous treatments, this time I feel incredible. I've been sleeping less and doin...
- Fri Mar 23, 2012 5:30 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI without MS diagnosis?
- Replies: 30
- Views: 5557
Re: CCSVI without MS diagnosis?
Karen,
Haacke is the best when it comes to flow and MRV. I think that is a really good idea. Once you see the blockages (assuming there are any) it will be easier to make a decision about treatment. I hope you find some answers!
Haacke is the best when it comes to flow and MRV. I think that is a really good idea. Once you see the blockages (assuming there are any) it will be easier to make a decision about treatment. I hope you find some answers!
- Fri Mar 23, 2012 4:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI without MS diagnosis?
- Replies: 30
- Views: 5557
Re: CCSVI without MS diagnosis?
I did have balance issues, stiffness in my legs, weakness in my hands, and some neuropathy. They all improved, although they do crop up from time to time. It's been two weeks since my last treatment with McGuckin (in Durham, NC) and I feel even more improvement this time than I did the first two tim...
- Thu Mar 22, 2012 4:29 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI without MS diagnosis?
- Replies: 30
- Views: 5557
Re: CCSVI without MS diagnosis?
Seabea, A lot of your symptoms were very familiar to me prior to my CCSVI treatment. I have benefitted greatly from this treatment. Dr. McGuckin did my last two procedures. (Yes, you will probably have to be treated more than once.) It was covered by insurance. He is amazing and is more thorough tha...
- Thu Mar 22, 2012 9:42 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371924
Re: DrSclafani answers some questions
Hope everything is okay!!!!!
- Tue Mar 13, 2012 1:12 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: MY BI-LATERAL VEIN BYPASS SURGERY
- Replies: 53
- Views: 7995
Re: MY BI-LATERAL VEIN BYPASS SURGERY
I'm so happy for you! Keep the updates coming!!
- Sat Mar 10, 2012 4:05 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4585
Re: Third CCSVI treatment tomorrow
Thank you. I hadn't even considered the lesion reacting or healing because of the treatment this time. But, my MRI was improved prior to this latest scan and I know of others who have had their lesions disappear after ccsvi treatment. If this new lesion reacts to the treatment I will be thrilled!!
- Sat Mar 10, 2012 3:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and children..
- Replies: 11
- Views: 2836
Re: CCSVI and children..
There is more benefit in focusing on diet and supplements than we really realize. I think it is VERY important. Best of luck.
- Sat Mar 10, 2012 11:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4585
Re: Third CCSVI treatment tomorrow
I meant the arch. Both jugulars are normal size. You understand the flow better than I. The doctors thought the problem would be jugular related. The 20% does not seem significant. Dr. Dake will be comparing my MRIs. I am wondering if the lesion really is new. He will know for sure. Doesn't seem lik...
- Sat Mar 10, 2012 6:28 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: MY BI-LATERAL VEIN BYPASS SURGERY
- Replies: 53
- Views: 7995
Re: MY BI-LATERAL VEIN BYPASS SURGERY
Haha! Congrats! When your body doesn't work normally, these small things are important when they come back.
- Sat Mar 10, 2012 6:02 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4585
Re: Third CCSVI treatment tomorrow
So, he went in and found that my left iliac had a 50% blockage. Last time it was 70%, I believe. He placed a large 20mm stent there. Next, he studied the left renal vein. It was 70% blocked. Last time it was 80%, I believe. He stented that vein too with a 14mm stent. He said the drainage was really ...