This Is MS Multiple Sclerosis Knowledge & Support Community

I'm happy that things are working out so well for you, MathD !!! Keep us posted on any continued progress.

ozarkcanoer

Cece.... Dr Dake's interpretation may also be true. I wish I knew. I know that BNAC really went out on a limb to investigate CCSVI. I know they were afraid of being the laughingstock and mocked by other neurologists and researchers for doing this. Now they are being mocked by patients. And no doubt ...

fiddler..... I love this "patient anecdote". It is the stories like yours that give us all hope

ozarkcanoer

hmmmmmm.... I'm 65 and I'm part of a punk rock movement, LOL.

ozarkcanoer

"You say to-MA-to and I say to-MAH-to..... let's call the whole thing off; OR let's call the calling off off !" - Cole Porter

ozarkcanoer

At my last US test about a month ago my right IJV was doing beautifully !!! I have no reason to suspect my right IJV or my azygos since Dr Haskal reinpected them and treated them in March.

Jimmylegs... The magnesium is NatureMade 250 mg.

ozarkcanoer

Thank you Jimmylegs !!!! You sure know your vitamins and minerals. I take a multivitamin everyday.

ozarkcanoer

Cece, You asked if the pain started right after the procedure. It wasn't right after. The day after the procedure we drove home from Baltimore to St Louis. Things seemed OK. But after I got home the headaches started. I also had the return of my burning mouth (ugh!!!!). My tongue feels like it is co...

Thanks for all your suggestions !! Everyone who has had bad headaches can understand. I am taking Vicodin and/or Fioricet and Xanax (yep, I'm addicted) for my pain and distress. My St Louis IR (who is tremendous BTW) is absolutely wonderful, but I can only talk to his nurse/assistant. The June appoi...

I had the CCSVI procedure last August 17 in Baltimore. I had to relief at all right away but a couple of weeks post procedure my pain and fatigue lifted and I was so happy. From September until November I was "normal". In November I started getting headaches again but by February things we...

Consult you doctor ? Not all doctors are created equal.

ozarkcanoer

Evidence based science is important. The new Pulitzer prize winning book : "The Emperor of all Maladies" (about the history and science of Cancer) is a fascinating book about the successes and follies and politics behind Cancer research and treatment. I'm almost through with this book and ...

I am not as pessimistic as many people are about the BNAC results. The correlation between CCSVI and MS is clearly demonstrated. The conclusion from the data that CCSVI is not the cause of MS must be made however. If the data are wrong then there must be another blinded control study to prove that. ...

I am truly saddened that we are breaking into factions over this matter. I assume the picture shows the mansion of some well-to-do neurologist who happens to have "an anti-CCSVI bias". We are not talking about the science anymore but attacking the people. When I met with Dr Z last summer i...

From my own personal experience I would advise any newbie to go for the angioplasty first and stay away from stents, or wait until more is known about the CCSVI procedures in general. By waiting a year or more, the doctors' experience with the procedure will grow and maybe there will be new techniqu...