This Is MS Multiple Sclerosis Knowledge & Support Community

NZ, I might have to write out a hundred times: Waiting ain't so bad Waiting ain't so bad Waiting ain't.... Cece fully understand, I havn't been able to wait...but now realise that waiting a few months more wouldn't have been too bad for several reasons...but these things you can never know before. ...

There is certainly a "patto Zambo" as Salvi himself called it in a recent presentation where stents placed outside the Italian territory were represented as devils - and only certain docs get access to that pact. And a certain attempt to monopolise/protect the invention with unfortunately ...

Just stumbled over the study in the MSIF e-mail news of this evening and was wondering about the authors behind it. Great you already discussed it. Below how the MS International Federation presented it in their e-mail news (and funny that this "interesting examination" was followed by an ...

Hi Esta, thanks for this info. I'm sure if they placed a stent it was necessary, as they only do so if the vein restenoses immediately. In my case (end May) the Simka team did not place it. They told me during the procedure that was not necessary for the stenosis I had (I felt they applied a very hi...

Yes, Erika, seems you could open a dizzy-MS back-burning club together with my friend. I'll inform him so he can ask the view of Dr Beelen and lets hope there can soon be found some solution for your cases! Me not really falling out except that I got my dizziness resolved (but in my case I had the s...

Endothelin-Plasma levels higher in MS patients, no did not know! By the way Dr Beelen who at first when started his research was a bit sceptical, is now convinced that the improvements seen in MS patients after procedure are not placebo. He said the statistics curve of research results seen on repor...

Hi esta, Very happy for you that some improvements came back :D You said Simka re-checked your azygos and also checked iliac vein in addition this time round. Did he find stenosis in azygos or iliac and were those veins then treated in your procedure? Or in your second procedure only the stent place...

4 months after my procedure: still feeling awake and no restenosis! I have been to Dr Beelen in Belgium this week for a doppler-check and had no restenosis. My blood flow in both jugulars perfect. Dr Beelen could see via the doppler-exam where the ballooning had been applied - there was also a piece...

My blood flow is very slow but maybe it is not a problem at all. Anyway, it is better than before: I had complete blockage because of pathological valves. So right now I cannot do anything. I still take 50 mg of Aspirin and 4,5 mg of LDN. Erika I still wonder Erika, why your blood flow very slow......

Hi Erika, very sorry for you that you still have this awful fatigue...I just got an gastrointestinal virus and not feeling well at all...but fortunately generally my fatigue much better. Next week Tuesday will see Dr Beelen in Belgium for a doppler check (to ensure no restenosis). Lets see what he w...

Erika take care...for s.o. not knowing sounds scary, but seems you have it under control...anyway: halt die Ohren steif! I'm thinking about you often. The symposium in Slovakia that's great news! Lets hope everything will work out for you as planned. Tomorrow morning have appointment in hospital for...

A well-deserved fantastic buzz !!

I have a question about the idea of increased blood flow having an effect on Angiotensin regulation - which might cause feeling of well-being and warm hands/feet (see mention of Dr Simka below). But was at first confused, as research was published in July saying the blocking of Angiotensin I recepto...

Could MTS or other stenosed lumbar area veins also cause a symptom such as numbness only with the SENSATION of swelling accompanied by pins&needles (without however a visible swelling of feet/legs)? Thanks a lot for getting a clearer idea on this. i think that those symptoms sound more like ner...

Thanks Erika, the paper from Simka to be published is really great news. As regards: >>Methods. Localization and degree of venous blockages in multiple sclerosis 381 patients were evaluated using catheter venography. Analysis of clinical severity included: Multiple Sclerosis Impact Scale-29 (MSIS-29...