This Is MS Multiple Sclerosis Knowledge & Support Community

That W5 video is really interesting! Speaking for Italy and Belgium I would confirm that the neurologists do not seem to push for med prescription. This indeed also for budgetary reasons and government rules on a limit of prescriptions and very strict criteria as of when CRABS can be prescribed. Whe...

Dr Sclafani, thank you for your reply and sorry for my questions that would be difficult for anyone to answer...and you always provide very clear answers. In fact the second vein issue - not only for my friend, but also for me still a mystery...My left jugular was clearly occluded by this pathologic...

IVUS is not reimbursed..Let me ask you this: if you had to pay for the catheter as an extra, would you pay it? Ditto (Hope) Idem. To get my azygos and lumbar veins checked for sure! Should it be the turn of those on your waiting list one day :D could you also include a check of the lumbar veins? I ...

http://a.imageshack.us/img822/1313/0255.jpg This is a picture from my MRV with a view from the top. The top of the image shows my left sinus and the bottom shows the right one which is considerably smaller. Bring it on nunzio dilate the jugulars and then see if flow improves in the sinuses Thanks N...

Hi Nick! What a nice surprise! A really lovely week! Just yesterday - what a coincidence - also received wishes from my room-mate friend from Katowice - and then got also in touch with other (girl)friend of our team ! Good news that both had suttle improvements - just as me, with slight differences ...

I am glad for all who have shown improvements. Wonderful. But going on with your life should include surveillance to assure that restenosis does not result in recurrence. So can you tell me, how you are being tested for this doppler? MRV? clinical examinations? how often? Who is following your prog...

For myself i've been liberated on 8th of july they hard a hard time finding one vein... (or have they find it)now i'm sittin home returned from Poland on the 12th of july with no improvement at all. anyone seen a restenosis in a week !! I feel like crap with 13.000 less in bank account. Very sorry ...

judipom wrote:Zuereka: Just posting my results. Didn't need a lecture.

Judi

Ok, sorry if came across like that also just posting my thoughts

Wish you all the best

Wow Katie thank you for report! That is tremendous news! So your left Iliac vein 90% stenosis...!

I look very much forward to see how you'll go on with your left leg in the next months! Great if you could keep us updated! Thanks so much.

Hello--I had the procedure done at Georgetown University 8 days ago. I had a considerable stenosis of the right IJV which was opened with balloon venoplasty. My left IJV and azygous were fine. To date I have not seen improvement in my MS symptoms. My circulation seems better which I judge from the ...

Thank you all for your encouraging words! For anyone interested in a more structured track, I have today updated my tracking. In English to start with here (see page 3 of the TIMS tracking thread): http://www.thisisms.com/ftopicp-87171.html#87171 In Italian will follow next days at the link you gave...

I wonder if the new understanding that M-T syndrome may be occurring and significant lower veins may also be blocked might also shed some light on why some people seem to worsen following vascular treatment. If only upper veins are unblocked, the increased flow throughout the entire closed circuit ...

Hi Katie, thank you so much for your report. This is great you are getting closer to the vein-puzzle of your body :D !!! And the scale is also a very good idea. It illustrates a trend that seems many are following after procedure: A higher up in the start, a period of ups and downs and then a kind o...

I just read my own thread and realised it's useful for myself to remember the intensity of some symptoms :D . I say hands&feet unchanged. But realise that the heavy blocks feeling in my feet is currently not as strong as often had it before. The numbness symptom is still there (that's why in pri...

Good news with little complications. I am without Carbamazepin for my nerve pain since July 7. The little complication is depressions. Carbamazepin contains some antidepressants. I knew it and as you know I was cutting Carbamazepin step by step but... I started my sleeping pills again about 6 weeks...