This Is MS Multiple Sclerosis Knowledge & Support Community

Thinking of you Holly and your friends and family. Miss you...

I emailed the Dr. Oz website a couple months ago suggesting CCSVI for a segment. No reply...

They still did not delete the anecdotal report about one death -- how many of us emailed the NMSS about this falsehood? I did, four times to three different people -- on the National website, our local chapter, and twice in the dialoge I've had with a very nice lady at the NMSS in Colorado. Looks l...

Cat, So good to hear from you, and it sounds like things are going really well. That's great! I hope you continue to feel better every day.

Cheer, Wouldn't it be great if it aired on Wednesday, the 16th? That's the one-year anniversary of your first post on CCSVI. Talk about timing!!

I consider myself a human barameter. I can feel any change in the weather. Winter or summer -- ice, snow, rain, sleet, drizzle, humidity, greyness, and even that stuff on the radar map that's rain in the upper atmosphere but doesn't make it to the groud (I forget what they call it). It's a tie betwe...

Hi Sew, My speech has been slurring on and off the last couple of weeks, too. The faster I want to talk, the worse I sound. But then sometimes I don't do it at all. Soo aggravating. I'll be interested in what your doc has to say.

So glad you went and now you know there is a problem and it can, and will be, fixed. Congrats! And a huge thanks for passing on all the info.

This paragraph appears at the bottom of page 4 in Novartis’ press release today. I hadn’t known about the “rolling submission.” So it sounds like they’re nose-to-nose with Cladribine… · FTY720 (fingolimod), a once-daily oral compound in development for certain forms of multiple sclerosis, is on trac...

Hope you're having a great day!

I've always had the feeling that once I stopped the daily shots, I wouldn't feel like I had a disease. It's just a constant, in-your-face reminder that there's something wrong with you. Yeah, I know it only takes 5 minutes or so, but it's always THERE. I haven't had a relapse in almost 4 years on Co...

Robbie, You look awesome! Standing right out of that chair, moving around so well. And standing on your own, too. You look so strong and stable. I went back and watched your other two videos, and your improvement is just fantastic. I hope you’re feeling well and made out OK at your doctor appointmen...

Bummer. I hope it doesn't take them too long to sort it out. I also hope Novartis does better with their app for Fingolimod. Novartis said they had been in contact with the FDA throughout the later stages of the trial, so I hope their application is complete and doesn't delay the review. They're sup...

OC, You're going to Detroit on Dec. 7 to get scanned by Dr. Haacke ? I must have missed that somehow. You're more excited about your scan than the entire bunch of Stent-o-teers combined were about their interventions.

Great to hear all went well and you're doing fine. Keep the updates coming, please!