Search found 85 matches

by nicknewf
Tue Sep 07, 2010 2:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Society of Interventional Radiology position statement
Replies: 15
Views: 5094

Scorpion, sorry if I was overbearing there. Full disclosure, I'm here because my wife has MS, and I have been helping MS Liberation . ca in my free time; they put me on to TIMS, and my wife's pending treatment in less than 3 weeks. For my own sanity, I need to stay positive about this for just a lit...
by nicknewf
Mon Sep 06, 2010 3:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Society of Interventional Radiology position statement
Replies: 15
Views: 5094

Scorpion, I'm relative new here, so if you've answered this before please just point me to the thread -- are you someone with ms, a family member, a volunteer, just interested? You seem down on this whole thing, and yet you make a ton of posts. Love the contrarian spirit here, but saying the ms soci...
by nicknewf
Sat Sep 04, 2010 8:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Have you heard of a recent procedure w/a rupture and stroke?
Replies: 27
Views: 6322

From the Symposium, Siskin admitted that he might be under-treating too. Dr. Sinan in Kuwait was having better results without being allowed to use stents at all, but he was very aggressive with the balloons (sizes and techniques), and in severely damaging the valves (where that was the case). Dr. P...
by nicknewf
Sat Sep 04, 2010 10:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The article says decision was fair.
Replies: 14
Views: 3083

The only way you can say there is "no evidence" that Zamboni's theory works, is if you say Zamboni is a liar, Simka is a liar, Petrov is a liar, Sinan is a liar, MacDonald is a liar. They didn't invite any of these people to the meetings - in fact they didn't invite anyone who has done the...
by nicknewf
Sat Sep 04, 2010 10:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: URGENT!! Request 'Mark Lane' CCSVI Facebook!! LAST CHANCE!!
Replies: 14
Views: 4307

The more information the better - PCakes, maybe you should retitle this post as "Canadians - Give Mark Lane your treatment results by 10Sept2010
by nicknewf
Thu Sep 02, 2010 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian MS Society’s stand sparks resignation
Replies: 3
Views: 1883

I applaud Ted Warren's stance on this.
by nicknewf
Thu Sep 02, 2010 4:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372292

Dr. Sclafani, Since your symposium, have the physicians who participated started to fall in line around a common treatment protocol... are most sharing information between each other - or are most people practicing in silos? Thanks Absolutely not! i.... the promise by SIR (society of interventional...
by nicknewf
Wed Sep 01, 2010 6:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The first national CCSVI treatment study is approved
Replies: 31
Views: 8112

So upset about the CanGov back down after their meetings with the MSSC "experts" that I missed the Albany Study gettign the go ahead. Sweet!

(Anyone know the rules on unblinding the study?)
by nicknewf
Wed Sep 01, 2010 1:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian experts & MS Society dismiss CCSVI therapy
Replies: 50
Views: 10602

I am literally fuming right now. How cruel and unusual is this - wait 2 years to do treatment studies? Everyone who suffers any symptom progression, or any symptoms while waiting for these guys to pluck their noggan's out of the re behinds should consider who is responsible - probably these unreason...
by nicknewf
Wed Sep 01, 2010 12:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a huge setback for the thousands
Replies: 1
Views: 1950

The President of the Canadian institute for health research announced to a parliamentary subcommittee that they would fund this in June, and now they reneging. This is shocking - and the MS Society is behind it: "Backed by experts from the Canadian Institutes of Health Research and the MS Socie...
by nicknewf
Mon Aug 30, 2010 11:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MSRC CCSVI Diary Update - Tony
Replies: 2
Views: 2078

Squiffy, any word on David Boyle. I watched his videos on youtube, and at the end he seemed a bit disappointed with the relatively mild improvements. He hasn't posted anything in a while He really opened up and put himself out there and did a great job raising awareness. I hope he is doing OK, and i...
by nicknewf
Sun Aug 29, 2010 10:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Institutes of Health Reseach Meeting
Replies: 3
Views: 1914

I can't wait to find out who attended this meeting. I fear no one with any actual experience in performing the treatment was invited to present what they have learned.
by nicknewf
Sun Aug 29, 2010 10:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372292

Dr. Sclafani, Since your symposium, have the physicians who participated started to fall in line around a common treatment protocol? Balloon sizes? Order of treatment? It sounds as if there are many doctors performing the treatments; are most sharing information between each other - or are most peop...
by nicknewf
Sun Aug 29, 2010 9:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Coverage on CCSVI!!!!!!!!!
Replies: 283
Views: 78635

For every good news story - a bad.

What do people think of this one?

http://www.thestarphoenix.com/entertain ... story.html
by nicknewf
Fri Aug 27, 2010 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The next Buffalo study commences this week
Replies: 45
Views: 12845

Joge, sorry to hear that your own Dr. not only doesn't have an open mind, but is prepared to call you a liar instead. Just to be clear, I am interested in hearing/reading about the 10 person safety study at UB Neurosurgery which took place the last 2 days of June, and whether they have started the 2...

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