Search found 26 matches

by nagsy
Fri Oct 15, 2010 5:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-CCSVI medication protocols????
Replies: 8
Views: 2217

Rhonda: My wife had Angio only of RJV. Algis: Regarding the wine, if my wife does not have a glass or two of red wine she will definatley have a spasm or two the following day. But my wife does not like drinking :? Can anybody recommend something else? My wife started on 100mg of Ginkgo extract (as ...
by nagsy
Fri Oct 15, 2010 2:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-CCSVI medication protocols????
Replies: 8
Views: 2217

My wife was given Heparin injection only for 7 days following ballooning of right jugular vein. I wonder how this compares to 3 months of Plavix???

Cheers,

Pinda
by nagsy
Tue Oct 12, 2010 7:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post-CCSVI medication protocols????
Replies: 8
Views: 2217

Post-CCSVI medication protocols????

Hello all, Following my wifes Angioplasty for CCSVI (in Poland with Dr Simka) she was given Heparin injections for 7 days. Over the last few months I have found that the post-CCSVI medication protocol differs widely depending on where (and when) you had the procedure. Could others who have had the A...
by nagsy
Tue Oct 12, 2010 6:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 346883

CCSVI TRACKING 06/24/2010 (24th June 2010) MS HISTORY Name: This tracking is for my wife…. Male/Female: F Age: 34 Date(s) & type of neurological diagnosis: Diagnosed 2004 with RRMS Lesion locations (most affected side, if known), number: Not known MS treatments: Will check and add info…….but fr...
by nagsy
Fri Jul 30, 2010 7:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: About 1/3 see no improvement at all?
Replies: 46
Views: 11073

I will be surprised to see the following cases: * wheelchair bound but no stenosis in azygos * stenosis in azygos but fairly stable * stenosis in only azygos but brain fog * IJV stenosis but no brain fog Just over 4 weeks ago when my wife was treated one of the patients was very stable and mobile -...
by nagsy
Fri Jul 30, 2010 6:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 3 Months Post Lib. Proc. In Bulgaria. WAY MORE DISABLED
Replies: 40
Views: 10921

Chris was treated in Tokuda by dr Petrov one day after i was. I was prescribed a 3 month regime of Plavix (which ended the day before yesterday) and a 6 month regime of Daflon and baby aspirin. Chris should have been advised to do the same cause if i remember correctly we both had only balloon dila...
by nagsy
Wed Jul 28, 2010 12:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is weight training bad if you have CCSVI?
Replies: 10
Views: 2939

Hi, I haven't got MS, but my thoughts on training heavy weights are as follows: Any exercises done in the supine position are probably not good for PwMS. For example, when I do heavy bench press I know I get a head rush of blood and my jugulars become more prominent. In the light of CCSVI if you do ...
by nagsy
Wed Jun 16, 2010 7:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12162

Catheter during treatment.....

Hello all, Just thought I would share this with you..... A friend of mine advised the following: "Depending on how mobile Sandi is, and how 'lively' her bladder may be, she may or may not want a catheter during the procedure. If she doesn't then she needs to tell the nurses as soon as they have...
by nagsy
Mon Jun 14, 2010 11:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12162

'practical advice' list....

Hi Pam, I am taking my wife Sandi along on the 22nd June to Katowice - could you possibly send me your 'practical advice' list please? I've haven't been an active member on this board and only relatively recently started using it again - but I have been doing as much as possible with ms-ccsvi-uk :D ...
by nagsy
Sat Sep 26, 2009 1:21 am
Forum: General Discussion
Topic: Oral methylprednisolone question....
Replies: 5
Views: 1971

lyndacarol wrote:Each person's situation requires us to collect information, examine ourselves, and make our own decision.
Yes I totally agree....
by nagsy
Fri Sep 25, 2009 11:50 am
Forum: General Discussion
Topic: Oral methylprednisolone question....
Replies: 5
Views: 1971

Oral methylprednisolone question....

Hi, This is my first post on behalf of my wife who is 33 and has MS since 2004. At present she is having a relapse - spasms in arms and numbness in foot. Neuro has prescribed 5 * 100mg of methylprednisolone per day for 5 days. Can you please provide your experiences with this steroid good or bad, si...

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