This Is MS Multiple Sclerosis Knowledge & Support Community

Well, this is a VERY long survey lol

Did you ever get an MRI of your brain? Have you seen an MS specialist neuro? If you don't mid sharing, what is your b12 level at? And what tests were used to obtain the number? I do not know much about it or if there is even testing for it, but does Fibromyagia fit as a diagnosis? My advice to you i...

What "labs" are you referring to?

Have you done MRI's? Spinal tap? Bloodwork?

How old are you? M/f? Any family history of autoimmune diseases? What other symptoms do you deal with?

It is very possible. From no vision loss to total vision loss. For me, it starts with just pain that gets worse and worse until vision is affected as well. My regular "daily" symptoms tend to include some random eye pain that strikes for no reason. I always have to hold my breath and pray ...

Thanks guys, exactly what I wanted to hear. That's a big part of it too, they cant prove anything works or even how some of the drugs work lol. I won't be stupid, if a lot of stuff happens and it gets out of control I will do what I need to do. For the time being, I am comfortable and semi-confident...

I am so excited to have received this news. I have not taken any medication in over 2 months now. I was on Copaxone but I became allergic to it. I am STRONGLY considering going medicine free. Most of you guys know my back story and what I have been through. I seem to have every indicator and sign of...

ElliotB wrote:Eat better, sleep better, take nutritional supplements, exercise more, and let the doctors diagnose and don't get yourself crazy.

Hope you feel better soon!

^^^^Exactly this.

OP, how old are you? M/F? Any family history of autoimmune diseases?

Ohhhhh sooooooooooo true David, so true. We r literally in the same boat lol. I am 26 and male. I eat very clean and as healthy as possible with limited cheating. I am in incredible shape physically. I weight lift and do cardio five days a week (for over 7 years now) and work as a chef/pizza man 50+...

Awesome. I do strenuous activity daily. I weight lift and do cardio, and I also work as a chef/pizza man. I have been doing both ever since I was 19 years old when I had optic neuritis for the first time. I am in heat all day and night (live in south Florida). I have always felt that all those thing...

Man, this does not sound like fun :( Have you been tested for Lyme? Or all the other things that need to be ruled out in order to diagnose MS? NMO? Do you have any family history of autoimmune diseases? I am so against spinal taps.... but in this case I would personally do it. I am not sure if it wo...

It is different for everyone. It is even different for each single person from time to time.

Everything is a a variable when talking about symptoms with MS.

Patience is very important with MS. That is probably the top of the list of things I have had to learn.

On a good note though, regular everyday problems are nothing compared to this battle. I have such a better understanding and appreciation of life aside from MS.

That is completely normal. It can take a lot of time to "reduce" the symptoms. That does not mean the steroids are not working. Some of the symptoms, unfortunately, could linger around forever. Some may get better tomorrow, 1 months, or years... or never. There is a lot of stuff you can do...

How long ago was the testing? How long ago for the MRI? Have you only done 1 MRI?

MS is different for everyone.

Literally EVERYTHING is a variable. The symptoms, severity level, timing, progression, etc all vary.

Basically, what you are saying could be MS but there are a lot of other things to rule out first. Have you been to a doctor?