This Is MS Multiple Sclerosis Knowledge & Support Community

I am so sure that I have MS, but I cannot seem to get a definitive response from a doctor. I am so frustrated. Hi imsureihavems- I'm sorry to hear of your frustration. Unfortunately, MS can be difficult to pick up on, especially with the relapsing/remitting variety. Symptoms come and go away after ...

Hello Amity- you're not being lazy at all! I get overheated very easily myself and unfortunately, tend to be a hermit in this hot weather. I avoid outdoor activities during the hottest part of the day. For example, I walk my dog first thing in the morning and evening hours when the sun is less bruta...

Welcome Jim! This is definitely a great group of supportive people. A couple of ideas. While I am still able to walk, the bathroom was a rather scary place, as I have problems with balance and sometimes lifting myself up. I have a seat riser on the toilet as well as rails, which help a lot. I also h...

Ah, critters! We certainly have had the gamut. A raccoon was camping out in our neighbor's chimney and getting in to the trash. This is even with a locking lid! There is a number of deer that live close by and we see them periodically coming from our back yard and wandering through the yards across ...

I'm the same way with housework! I find that doing things in small doses while resting in-between seems to help with the fatigue level. As far as cooking, getting some things like veggies pre-chopped can be a huge energy-saver. A friend introduced me to sliced mushrooms, which is great. I also use f...

After reading your posts, and knowing I have huge cognitive issues, I'm scared I'm setting myself up for failure. Scaring you is the last thing we want to do! Since you have cognitive issues, I would first get a psyc/neurological assay done to determine where your weaknesses are. I had one done in ...

the pain never goes into remission completely. If it's not too awkward, what sort of pain are you dealing with? From experience, it depends on whether or not a symptom will go away after a relapse. I was taking flying lessons a number of years ago and could not land the plane. I had my eyes checked...

I can certainly relate to your situation. My last job was as an assistant curator at a regional archives on the Outer Banks in North Carolina. I was frequently tired and at times could not focus. I also had to deal with a lot of politics and bureaucratic garbage which did not help matters. It was ho...

I've switched a couple of times and if you're unhappy with who's treating you, find someone who's more compatible. My first neurologist was preoccupied and her office was totally unprofessional. It's not a good sign when you can't even get a hold of the physician-on-call during a relapse after hours...

I had been completely symptom/progression/relapse-free for eight years and not taking any disease modifying therapy. That's great! You're obviously doing something right. I know that stress can wreck havoc on one's system and I'm very sensitive to it. Since moving last year, I'm much happier and my...

So far, so good with the Rebif. I get the occasional next day malaise and still fight with flu-like symptoms, but overall I've done very well on it. My old neuro wanted to enroll me in a Gilenya study last year, but I requested an MRI to see where I was. No new lesions, so I stuck with the Rebif. As...

Hi Jon- I'm sorry to hear of your travails! It is crucial to have a good working relationship with your doctor! If you can find an MS specialist, even better. They tend to be more responsive and understanding. My first neurologist was preoccupied with other things and her office was totally unprofes...

Have you ever tried to do the injection in the morning? I have, with good results. I know it sounds counterintuitive, but it might be worth a try. Counterintuitive is right! I've done evening injections to sleep through the flu-like symptoms. My body has adjusted very well, though I have problems a...

Greetings all- I've been on Rebif for over two years now and while I've managed to deal with any flu-like symptoms, I still sometimes feel worn out and "wifty" the next day. I do my injections at night with 400-600 mg of Ibuprofen and drink lots of water during the day. Any suggestions?

I do have a medical ID that says I have MS, but there is so much ignorance about symptoms! A friend with MS lived in Chicago for a stint and unfortunately fell on the sidewalk and couldn't get up. I forgot how long she waited for help, but most people just walked around and ignored her thinking she ...