This Is MS Multiple Sclerosis Knowledge & Support Community

I have worked with people you are upset with and i am not of the opinion that they are only doing this for money or that they are not trying to get quality. I have no issue with professionals being well paid and I suspect many others would think the same. I was the third cab off the rank in Katowic...

Cece wrote:I am still amused by title of this thread.

Did anyone clear this humour with Bob before posting?

I've had 4 doppler assessments followed by venograms. None of the doppler results have matched the venogram results. As Dr Haskal said recently, CCSVI assessment and treatment is more art than science. I doubt much is going to be proven one way or the other by superficial studies.

vivavie wrote:I have a stent within stents within stents (3 layers)

Huh? Did I miss something? This thread goes so fast! Three layers of stents sounds a first. How did that happen and for what purpose?

This study shows that heavy smoking in midlife was associated with a greater than 100% increase in risk of dementia, AD, and VaD (vascular dementia) more than 2 decades later. http://archinte.ama-assn.org/cgi/content/abstract/171/4/333 If smoking becomes a problem for Bob, maybe some CCSVI treatment...

has been a blessing to many people but yeah there is certainly a small risk of Just trying to be objective - couldn't the same comment be made about CCSVI? In other words, less than ideal results for Tysabri is accepted by many but less than ideal results for CCSVI seems a threshold point for rejec...

drsclafani wrote:so far no thrombi with new protocol of sizing balloons....a sigh of hopeful relief

This sounds magnificent, and real progress! Now, how to get other doctors doing CCSVI on board and what to do about hyperplasia?

This is a recent article which could be of interest if someone has access to it. Apparently it covers 4-AP-3-MeOH

http://pdfs.journals.lww.com/co-neurolo ... .99802.pdf

If I knew it was going to work, Id pay $100,000, said Murphy.

I know this is just euphoric emotion, but let's not get too carried away. Most of us would like to see some sustained results first.

1eye wrote: Could you be a little more clear, please?

I think what is being said is that intelligent discussion on this site rests with just two members.

Honestly I do no see a problem with neurologists being singled out by name as long as there are no threats against them, veiled or otherwise. I haven't seen any neurologists embarrassed or attacked on sites, certainly not Aussie neuros which was the point of the newspaper slant. There were a couple...

Lyon wrote: If the world really is so full of devious people as the Neuros and Pharmas are reputed to be, the battle is probably already lost anyway.

'Self interest' is the term. You must be acquainted with that.

ErikaSlovakia wrote: - I am getting worse, not fast but I am - to say it exactly I am getting weaker, especially my arms

I'm similar to you Erika. It's frustrating, for sure. I'm especially bad at night. However, I know from my procedures that there is a connection.

Hang in there, Erika. You are a champion.

Opera wrote: I would have prefered if Dr Zamboni was allocated more time to respond to questions from the audience.

I agree. There were a few of us with hands up when questions were stopped. But I guess these sort of events need to run to tight schedules.

On the Australian Facebook page and other internet forums such as thisisms.com, neurologists are referred to by name and accused of ignoring evidence proving Zamboni's theory . This quote was from a newspaper article, apparently being relied upon by the author of this thread and directed cynically ...