Search found 293 matches

by Ernst
Sat May 12, 2012 3:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Iron accumulation in MS-brain
Replies: 8
Views: 1803

Iron accumulation in MS-brain

I have been interested about iron in MS-brain. Some neurologists explain it quite different way compared to Zamboni's paper (2006) or to Haacke's papers. Mark Haacke writes that iron accumulation can be explained by CCSVI point of view. He has wonderful slides / photos and texts about subject. One p...
by Ernst
Sat Jan 14, 2012 2:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New York Albany clinical trial - when?
Replies: 7
Views: 1799

Re: New York Albany clinical trial - when?

Nobody knows? I though that we can read (some) results in late spring 2012.. but now I have feeling that it will taka some years..
by Ernst
Fri Jan 13, 2012 11:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New York Albany clinical trial - when?
Replies: 7
Views: 1799

New York Albany clinical trial - when?

..is it ready and published?

- Ernst
by Ernst
Tue Jan 10, 2012 6:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 7500

Re: How are you doing since treatment??

I quess my wife had best possible effect with procedure, now 1,5 yrs ago. After procedure it was a bit up-down with symptoms, but about 3 weeks everything changed to better: fatique, balance issues, heat problem, "heavy legs", weakness in right side vanished and she began to enjoy exercisi...
by Ernst
Sun Nov 20, 2011 8:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 17799

Re: My wife's turn next week in Poland - am I dreaming or no

Some time ago I and my wife wondered that can we still do karate? We met in karatetraining about 20 yrs ago and now she has had 16 yrs break. Before angioplasty she had big problems with exericise, mostly cause of "heavy legs" (especially right side), fatique and balance issues. Since oper...
by Ernst
Fri Nov 18, 2011 1:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Expo with Dr. Zamboni, Joan Beal, Dr. Sclafani & more!
Replies: 11
Views: 3696

Re: CCSVI Expo with Dr. Zamboni, Joan Beal, Dr. Sclafani & m

Hello,

Waiting for sunday and broadcasting eagerly. I registered myself and got "ticket" in my email.. but not list of speakers or instructions to watch live. Do I need any specific instructions or is it just so simple, that I go to webpage and see the show? :)
by Ernst
Fri Nov 18, 2011 5:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's clinical trial prelim. results announced-
Replies: 33
Views: 6998

Re: Dr. Mehta's clinical trial prelim. results announced-

I have been also waiting for results of this Albany teams's research.. patience, patience..
by Ernst
Mon Nov 07, 2011 10:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: as patients worsen, they turn to internet for information
Replies: 20
Views: 3477

Re: as patients worsen, they turn to internet for informatio

I discovered CCSVI first time in june 2009.. and since that been reading and thinking about it quite a lot. When we (me+wife) decided to travel to Poland for operation, there was very careful planning and serious thinking. I was very interested about "worse scenarious" and risks too. In ma...
by Ernst
Tue Oct 18, 2011 11:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 17799

Re:

and exercise is very important. We decided that weight lifting is something wich could have big effect on MS. I red some trials with doing weights with MS and results were promising. (and Terry Wahls experiment was very interesting too). Weight training is quite a stimulus to muscle/brain/nerve sys...
by Ernst
Sun Oct 02, 2011 3:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Aaron E. Miller's lecture about CCSVI..
Replies: 0
Views: 1418

Aaron E. Miller's lecture about CCSVI..

..and many incorrect claims, about Zamboni study (2009). Im wondering why so educated doesn't read studies, what he is lecturing? Even for me (with poor english :) ) it was very easy to notice quite clear errors in this lecture:

http://www.youtube.com/watch?v=lF8WiAfmLzw (40 min --> to end)
by Ernst
Thu Sep 15, 2011 10:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW! Slower cerebral circulation in pwMS
Replies: 24
Views: 4505

Re: NEW! Slower cerebral circulation in pwMS

Professor Clive Beggs video is most interesting, about fluid dynamics.. and his opinion (about reduced CBF) is that the "reduced metabolic acitivty" can't be explanation to reduced CBF. In his video at 23 min --> .. http://www.youtube.com/watch?v=37hFWVFFgXs&feature=mfu_in_order&li...
by Ernst
Sun Aug 14, 2011 7:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 17799

Thank you for your kind comments :) ..and true, she feels great and is such a fighter! That's also one reason, she is doing so good.
by Ernst
Sat Aug 13, 2011 11:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 17799

Nearly 14 months from op and everything is fine. One more "ultimate test" was when wife went to spinning class in summer and there was very high temperature in gym.. and once again it was just fine. Before one problem was heat, she couldn't be in sauna proberly.. but since op it has been p...
by Ernst
Tue Jul 26, 2011 7:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Stanford research: stroke and the immune system
Replies: 9
Views: 2514

Found this one: "High prevalence of anti-alpha-crystallin antibodies in multiple sclerosis: correlation with severity and activity of disease" RESULTS: Sixty-three percent of MS patients exhibited immunoreactivity to alpha-crystallin and this was present in all 4 of 4 non-ambulatory patien...
by Ernst
Sun Jul 24, 2011 12:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: VIAGRA COULD REDUCE MS SYMPTOMS
Replies: 38
Views: 10868

.. and what about L-argine? It is quite commonly used by athletes and men with erection problems use it. It helps with Nitric oxide production in veins and there are many studies about it.. mostly with lab-rats, like this: http://www.ncbi.nlm.nih.gov/pubmed/12614590 "L-arginine and free radical...

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