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by patientx
Sun Jul 17, 2011 6:28 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Positive topline results for first phase 3 study of Lemtrada
Replies: 6
Views: 4539

I found these results a little disappointing, too - especially compared to the CAMMS223 results which showed a 74% reduced risk of relapse and 71% less risk of accumulated disability compared to Rebif. I guess the one caveat is that the CARE-MS I trial was for people who had an onset of MS symptoms ...
by patientx
Fri Jul 15, 2011 5:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: First published research from Stanford
Replies: 19
Views: 4917

Re: First published research from Stanford

Somehow it doesn't seem accurate to compare the time this study took to go from beginning to print with the time it took articles you don't happen to agree with to go from submission to acceptance, but this is your circus so please do continue. you mean how stanford took 2 years vs articles took 6 ...
by patientx
Sun Jul 10, 2011 6:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 18677

(3 in a row.. I'm sure we will be accused of being the same person). You give ONE paper on ONE healthy patient followed for only 4 years, patientx...... I didn't realize Dr. Sclafani went by so many user names, or at least so many feel compelled to respond for him. But since you chimed in... Maybe y...
by patientx
Sun Jul 10, 2011 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 18677

Re: "published data"

Do you have any studies to show that impaired blood flow is good for the brain or at least produces no ill-effect? Thank-you. "Venous outflow of the brain after bilateral complete jugular ligation," Ensari S, Kaptanoğlu E, Tun K, Gün T, Beşkonakli E, Celikkanat S, Dere H, Cekirge S. http:...
by patientx
Fri Jul 08, 2011 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 18677

Re: "published data"

Could you please point me to the published data that demonstrates that destroying valves is 1) safe, and 2) efficacious and has some sustained, demonstrable, tangible and measurable health benefit beyond improved blood flow to your patients? Can you direct me to the published data that shows that i...
by patientx
Wed Jun 29, 2011 6:02 pm
Forum: General Discussion
Topic: Breakthrough in the search for new treatments for MS
Replies: 24
Views: 5549

Some of the comments on here are amazing. I really don't understand how people hold the neuros and "big pharma" together in some sort of conspiracy to make money. First off, neurologists (or any medical doctor for that matter) do not find cures for diseases. They simply apply the best tre...
by patientx
Mon May 23, 2011 6:37 pm
Forum: Copaxone
Topic: What is Copaxone, really?
Replies: 1
Views: 3082

I'm not sure why someone would describe Copaxone as a "protective coating." As you probably already know, Copaxone is a synthetic polymer of 4 amino acids. Originally, I think it was believed it worked by acting as an MBP analog - that is, a "decoy" for myelin. However, after fur...
by patientx
Wed May 11, 2011 5:07 pm
Forum: General Discussion
Topic: Serono lawsuit--legal threats issues, removed
Replies: 12
Views: 3190

by patientx
Mon May 09, 2011 6:10 pm
Forum: Daily Life
Topic: tired
Replies: 92
Views: 21005

is there a limit to how much disability you can take i have always thought that when or if my hands are badly affected i would stop it do we hold on no matter what some do some don't it's scary to think about my wife and i have talked about it and she understands I can't imagine what you're dealing...
by patientx
Mon May 09, 2011 6:56 am
Forum: General Discussion
Topic: new guy looking for starting advice.
Replies: 15
Views: 3744

I would certainly look at having your jugular veins checked for CCSVI. The liberation treatment is quite new and there hasn't been a lot of research done yet in this area. As of now, there is not enough scientific evidence that it works but there has been a lot of positive anecdotal reports for it....
by patientx
Mon May 09, 2011 6:55 am
Forum: General Discussion
Topic: new guy looking for starting advice.
Replies: 15
Views: 3744

Are there any studies in relation to NMO and ms and treatment? I think it's pretty important to determine if you might have NMO as opposed to MS. While I don't know a whole lot about NMO, from the little I have read, the treatments are different. For example, I don't think the standard MS DMDs help...
by patientx
Mon May 09, 2011 6:47 am
Forum: Rebif
Topic: Side effects question....
Replies: 15
Views: 8583

Bubba, I don't have any good answers for you. It's possible you got a bad batch, but I would tend to think unlikely. This is just pure speculation on my part, but I wonder if you are developing antibodies to the Rebif that might be causing your adverse reactions. What does your neuro have to say abo...
by patientx
Wed May 04, 2011 8:29 am
Forum: Copaxone
Topic: Why did you choose Copaxone?
Replies: 5
Views: 3561

When I was diagnosed, I got the usual little guidance from the docs (both the original neuro and the MS specialist I went to for a 2nd opinion). They both said all the first line injectables showed similar efficacy, so the choice really came down to me, based on how many times I wanted to inject, si...
by patientx
Fri Apr 29, 2011 7:39 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Five year results
Replies: 10
Views: 4918

Hey Freiguy,

How have you been doing - in terms of MS and otherwise?
by patientx
Fri Apr 22, 2011 5:55 am
Forum: Copaxone
Topic: Copaxone Users. Need some info fast. Thanks
Replies: 6
Views: 3785

P, Thanks for writing me I did called Shared Solutions and nothing has changed with them. They seem to rattle the same mumbo jumbo they always do and it's never helpful in anyway. I just give up on them period. I'm seeing my Neuro next week and will talk to her again because I simply cannot do this...

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