Search found 774 matches

by Wonderfulworld
Mon Sep 04, 2006 1:00 am
Forum: General Discussion
Topic: Working with MS
Replies: 3
Views: 2167

Hi Art
this is terrific. I wish I'd seen this years ago when dx'ed !!
Found myself reading it and thinking of all the botched jobs I made of communicating about my MS over time. Older and wiser and all that :lol:
Thanks
WW
by Wonderfulworld
Thu Aug 31, 2006 4:43 am
Forum: Mental & Spiritual Health
Topic: MS Bible Study Support Group
Replies: 25
Views: 20092

Hi I'm am not religious but I value the people out there that do pray for me. My parents are religious and they attend an inter-faith prayer group who pray for people locally, they just use a first name and a short history. Each member of the group prays for 2 people, and they have a daily and weekl...
by Wonderfulworld
Thu Aug 31, 2006 3:24 am
Forum: Introductions
Topic: Hi from a sad and frustrated MS mom
Replies: 9
Views: 3628

Hi OneCleverWoman I was dx at 26 with bad relapse, paralysis and deafness, but I had had a whole load of relapses prior to that for about 7 years but they were passed off as depression/viruses/inner ear problems/whatever. I am now 34, work fulltime, am married and have a good life. I got over that b...
by Wonderfulworld
Wed Aug 30, 2006 10:51 am
Forum: Diet
Topic: Best Bet Diet discussion
Replies: 161
Views: 92030

Hi it is hard :lol: Actually I am a coeliac so gluteny stuff was out anyway. I find dairy and eggs hard to cut out but the funny thing was I was told I was allergic to them as a child, but gradually my parents reintroduced them into my diet when I was younger as I seemed to be less allergic. I think...
by Wonderfulworld
Tue Aug 29, 2006 2:25 am
Forum: Diet
Topic: I have MS
Replies: 7
Views: 5261

Hi Dahlia it took me a long time to decide to go on a CRAB, as I was thinking along the same lines as yourself, why go on something that sounded so severe and may not work. The thing is though, you are far more likely to stay the way you are now, and not get additional symptoms and damage if you sta...
by Wonderfulworld
Tue Aug 29, 2006 2:19 am
Forum: Diet
Topic: Best Bet Diet discussion
Replies: 161
Views: 92030

Anyone on "Best Bet Diet"?

Hi is anyone out there living on the Best Bet diet? - no milk, no dairy, no gluten, no legumes, very low saturated fat? I am on a modified form of it - I got ELISA food intolerance test done and I showed up as being intolerant of gluten, milk, eggs and slightly intolerant of soy and lentils. I eat s...
by Wonderfulworld
Tue Aug 29, 2006 2:10 am
Forum: General Discussion
Topic: Why me?
Replies: 13
Views: 2972

It's interesting I never thought why me, more like "why not me". My big question is generally WHY - for all of us, so that we can find a cure. I am still struck by the mutual exclusivity of gout and MS, and bilharzia and MS. There has to be a potential treatment at the very least in one of...
by Wonderfulworld
Mon Aug 28, 2006 2:15 am
Forum: Copaxone
Topic: Trying to conceive and Copaxone
Replies: 13
Views: 24308

Trying to conceive and Copaxone

Hi I know you're supposed to give up Copaxone before trying for a baby. I have read all the literature I can and there is no data that I found that links Copaxone to birth defects. It sounds a bit clinical but I have to weigh up risks here. I have very active MS, but it has been very quiet on Copaxo...
by Wonderfulworld
Mon Aug 28, 2006 2:03 am
Forum: General Discussion
Topic: MS/Shistosoma: mutually exclusive
Replies: 4
Views: 2300

Hi Lyon that's fascinating! I have seen other research that said that gout is also mutually exclusive - gout caused by excess uric acid. Have seen another set of messages that link to the uric acid effect. Many of our current meds for MS can raise uric acid slightly..... Wonder if this kind of resea...

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