Search found 475 matches
- Mon Mar 21, 2011 9:10 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Can ultrasound see a clot?
- Replies: 23
- Views: 5235
Thanks, I'm trying (and I don't know we've done a good job of this as a forum) to understand how people know (if they know) if they have a clot ... or if there's recoil ... or if there's something else. I've seen a lot of threads talking about thrombosis, but nobody has (in what I've read) had commo...
- Mon Mar 21, 2011 8:04 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Can ultrasound see a clot?
- Replies: 23
- Views: 5235
- Sun Mar 20, 2011 4:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Getting a handle
- Replies: 82
- Views: 12604
Re: Naysayer Warning
If you are seeking balanced information on balloon venoplasty go to www.ccsvi.org and read the info many times over. Listening to the naysayers is dangerous as they appear to raise doubts by asking questions but are naysayers. Scientists know that nothing is ever proven. Balloon venoplasty for sten...
- Wed Mar 16, 2011 12:18 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: plethysmography neck collars (Zamboni)
- Replies: 102
- Views: 27550
- Wed Mar 16, 2011 10:43 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: plethysmography neck collars (Zamboni)
- Replies: 102
- Views: 27550
I (as admittedly into the CCSVI theory as I can figure it out) don't think it's a good idea to be throwing poor analogies, that can be easily disputed, out there. The hose analogy isn't how the jugulars work ... because it's when laying down that the hoses (jugulars) don't work in those with CCSVI. ...
- Wed Mar 16, 2011 7:13 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Vascular Access Centers open house and CCSVI info session
- Replies: 10
- Views: 3810
Her ascending lumbars were checked and fine - you can see them in a great picture posted by Dr. Sclafani. Her renal was checked and fine. Her jugulars were checked and ballooned (obviously). Remember she had May-Thurner ... again that was checked on 2nd appointment and still fine. Her azygous, we kn...
- Wed Mar 16, 2011 5:19 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Vascular Access Centers open house and CCSVI info session
- Replies: 10
- Views: 3810
Hopefully Cece re-finds this ... I know we're having an ongoing discussion that nobody else can follow across about 7 threads. But my wife made an interesting comment to me last night ... and it semi-relates to this. Though the conversation was a bit longer than this ... I'll give you the general hi...
- Wed Mar 16, 2011 4:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Up, then down, then up again!
- Replies: 4
- Views: 2125
- Tue Mar 15, 2011 4:48 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Vascular Access Centers open house and CCSVI info session
- Replies: 10
- Views: 3810
- Tue Mar 15, 2011 12:42 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Zivadinov finds CCSVI in 100% of pwMS, 0% of controls
- Replies: 71
- Views: 16524
- Tue Mar 15, 2011 10:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Annals of Neurology (what the neuros are reading)
- Replies: 6
- Views: 2451
They did not do venograms. Venograms are the gold standard for CCSVI diagnosis! All other diagnostic methods are operator dependent. My daughter had CIS and CCSVI. Her double candy wrapper twist almost blocked her Azygos..... It was quite dramatic. Her int jugular was less pronounced and may have b...
- Tue Mar 15, 2011 7:47 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Zivadinov finds CCSVI in 100% of pwMS, 0% of controls
- Replies: 71
- Views: 16524
Not just doctors ... but scientists. And now we have a standardized way of detecting and quantifying CCSVI ... So now, all those neurologist studies have a guide ... I'd be interested to see the patients they choose to study going from the neurologist led CCSVI study, right next door to a vascular/I...
- Mon Mar 14, 2011 8:44 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: [someone]
- Replies: 22
- Views: 4336
HP ... where'd your post go? That was GREAT (and true) ... too bad it's gone now. How hurtful and wrong can you be Lyon? Certainly not to this degree Has anyone lost the ability to move their legs after CCSVI and still not got the ability back after 6 months. Also regain lost ability to transfer aft...
- Mon Mar 14, 2011 6:49 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: [someone]
- Replies: 22
- Views: 4336
^ agree with cheer 100% ... they ain't worth it ... and nothing we say is going to change their opinion, hopefully science proves it to them before it's too late for them to do anything about it personally ... If not ... anecdotal is enough for me and you! :lol: Enjoy this beautiful day and your imp...
- Mon Mar 14, 2011 6:19 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: [someone]
- Replies: 22
- Views: 4336