Search found 48 matches

by Alexandra
Sat Mar 12, 2011 1:32 am
Forum: General Discussion
Topic: Any other control freaks out there?
Replies: 10
Views: 2586

Control Freak

Before I was diagnosed I had my life planned out: my career was going really well, got seconded to another country which I enjoyed, had made plans for marriage..kids... Then my mom passed away with cancer and 2 days later the MS monster entered my life....took me more then one year to accept it, has...
by Alexandra
Mon Jan 31, 2011 9:15 am
Forum: General Discussion
Topic: MS AND Meniere's common or uncommon???
Replies: 10
Views: 7919

Ms and Meniere

I suddenly had vertigo and blocked year and the doctor gave me Betaserc. He said temporary Meniere syndrom, but the neurologist thinks is an MS attack. Don't know what to think. Under the treatment for 3 weeks it got better, then suddenly got worse again.
by Alexandra
Fri Jan 21, 2011 11:46 pm
Forum: Avonex
Topic: Anyone else can't take Nsaids? (Ibuprophen/Aleve)
Replies: 4
Views: 3583

Nsaids

I had a period of allergy and I could not take any non steroidal antiinflamatory drugs. I also had ulcerus 2 times. My neugo suggested this and works for me: - morning of injection: 40mg of Nexium for stomach protection - 1 antihistamine he suggested it before the injection: Xyzal or Telfast - then=...
by Alexandra
Mon Jan 17, 2011 7:38 am
Forum: Avonex
Topic: Didn't work for me
Replies: 16
Views: 12525

Avonex not working?

Hi All, I am on Avonex since mid March 2010 when I was diagnosed. I had 7 months of injections until a bad flu caused me serious allergic reactions and I had to discontinue Avonex. I stopped for 6 weeks when I regained my life: my energy level tripled and I was great for 6 weeks, until my vision dec...
by Alexandra
Sat Oct 30, 2010 7:54 am
Forum: General Discussion
Topic: Problems on Avonex
Replies: 2
Views: 2054

Problems on Avonex

Thank you NHE. I am using the preffiled injections. I will talk to my doctor to see if I can get the powder form and try that. I really really don't want to move to Betaseron.
by Alexandra
Fri Oct 29, 2010 9:40 am
Forum: General Discussion
Topic: Problems on Avonex
Replies: 2
Views: 2054

Problems on Avonex

I've been on Avonex for 6 months and 3 weeks until now and I skipped only one injection due a very serious flu that was not reacting to antibiotic. the doctor asked me to stop Avonex and put me on 2grams of Augmentin for 10 days. During the antibiotic treatment I had rashes (urticaria). becuase of t...
by Alexandra
Mon Sep 27, 2010 12:28 am
Forum: General Discussion
Topic: Spinal tap / lumbar puncture negative
Replies: 4
Views: 5972

Negative spinal tap

My diagnosis took around 1 year and 10 neurologists from 4 different countries. I made three lumbur punctures and the first two came negative. Only the last one came positive for oligoclonal bands but very small quantity. However, during the one year diagnosis I had several MRIs done at least every ...
by Alexandra
Thu Jul 22, 2010 1:10 am
Forum: Avonex
Topic: Is Avonex an immunosupressant?
Replies: 2
Views: 4384

Imunnosupressant

Avonex is an imunomodulater, not supressant. It targets the Tcells in your body, not all immunity cells.
by Alexandra
Sat Jul 17, 2010 10:32 pm
Forum: Exercise and Physical Therapy
Topic: Running with MS
Replies: 21
Views: 26872

running with ms

Hi Julia, Lovely to hear from you. It helps a lot talking to others that struggle with the same issues. It is quite frustrating to see that you can't do what you used to do with pleasure. To answer your questions, I also have spasticity. After testing my running capacity for the last 4 months, i got...
by Alexandra
Sat Jun 05, 2010 9:04 pm
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 130991

Noni juice

I am monitored by both neurologists and immunologists as I do believe this is an immunity disorder. My immunologist also recommended me this noni juice. Anyone else tried it?
by Alexandra
Fri Jun 04, 2010 9:22 pm
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 130991

Aloe vera and Goji Berry plant

Did anyone try aloe vera and goji berry for MS? I did a bit of reading about aloe vera and it seems it has MMP9 reduction properties and people say pain also disappears. would be interesting to see if others had any results on it. my concern is that these plants also boost the immune system http://i...
by Alexandra
Mon May 31, 2010 9:53 pm
Forum: Avonex
Topic: Anybody take Interferon and has no side effects?
Replies: 24
Views: 19446

no side effects

oh..i just wish...my forth injection put me in the emergency room due to an extremelly high fever that I couldn't even drive myself to hospital. Thanks to having great friends. Afer 6 injections, I still have about 48h of bad side effects. Thanks NHE for your advice without which I don't think I wou...
by Alexandra
Sun May 23, 2010 9:40 am
Forum: Copaxone
Topic: Question about immune reaction to the cold or flu
Replies: 5
Views: 2895

flu

I am on Avonex for 5 weeks now and about 10 days ago I got a flu as I don't remember having since I was a child. My temperature went extremelly high under 1gram of panadol and antibiotics and ended up in emergency room to reduce the fever. The doctors are telling me is not because the medicine is ki...
by Alexandra
Mon May 17, 2010 9:36 pm
Forum: Natural Approach
Topic: of iron and MS
Replies: 190
Views: 74867

iron pills

to my knowledge, iron intake is to be avoided by people with MS. vitamins are recommended, but preferably without iron. maybe you should do a blood test first to see if you do have an iron deficiency first of all?
by Alexandra
Sat May 15, 2010 10:29 pm
Forum: Avonex
Topic: getting flu on Avonex?
Replies: 0
Views: 3132

getting flu on Avonex?

I had my forth Avonex injection on thursday evening and got the usual shivering and fever during the night, but Friday afternoon I was ok. Then during the night a whole new shivering and fever started and it kept going up till 39C. I got so weak and dizzy that ended up in the emergency room where th...

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