Search found 48 matches
- Sat Mar 12, 2011 1:32 am
- Forum: General Discussion
- Topic: Any other control freaks out there?
- Replies: 10
- Views: 2586
Control Freak
Before I was diagnosed I had my life planned out: my career was going really well, got seconded to another country which I enjoyed, had made plans for marriage..kids... Then my mom passed away with cancer and 2 days later the MS monster entered my life....took me more then one year to accept it, has...
- Mon Jan 31, 2011 9:15 am
- Forum: General Discussion
- Topic: MS AND Meniere's common or uncommon???
- Replies: 10
- Views: 7919
Ms and Meniere
I suddenly had vertigo and blocked year and the doctor gave me Betaserc. He said temporary Meniere syndrom, but the neurologist thinks is an MS attack. Don't know what to think. Under the treatment for 3 weeks it got better, then suddenly got worse again.
- Fri Jan 21, 2011 11:46 pm
- Forum: Avonex
- Topic: Anyone else can't take Nsaids? (Ibuprophen/Aleve)
- Replies: 4
- Views: 3583
Nsaids
I had a period of allergy and I could not take any non steroidal antiinflamatory drugs. I also had ulcerus 2 times. My neugo suggested this and works for me: - morning of injection: 40mg of Nexium for stomach protection - 1 antihistamine he suggested it before the injection: Xyzal or Telfast - then=...
- Mon Jan 17, 2011 7:38 am
- Forum: Avonex
- Topic: Didn't work for me
- Replies: 16
- Views: 12525
Avonex not working?
Hi All, I am on Avonex since mid March 2010 when I was diagnosed. I had 7 months of injections until a bad flu caused me serious allergic reactions and I had to discontinue Avonex. I stopped for 6 weeks when I regained my life: my energy level tripled and I was great for 6 weeks, until my vision dec...
- Sat Oct 30, 2010 7:54 am
- Forum: General Discussion
- Topic: Problems on Avonex
- Replies: 2
- Views: 2054
Problems on Avonex
Thank you NHE. I am using the preffiled injections. I will talk to my doctor to see if I can get the powder form and try that. I really really don't want to move to Betaseron.
- Fri Oct 29, 2010 9:40 am
- Forum: General Discussion
- Topic: Problems on Avonex
- Replies: 2
- Views: 2054
Problems on Avonex
I've been on Avonex for 6 months and 3 weeks until now and I skipped only one injection due a very serious flu that was not reacting to antibiotic. the doctor asked me to stop Avonex and put me on 2grams of Augmentin for 10 days. During the antibiotic treatment I had rashes (urticaria). becuase of t...
- Mon Sep 27, 2010 12:28 am
- Forum: General Discussion
- Topic: Spinal tap / lumbar puncture negative
- Replies: 4
- Views: 5972
Negative spinal tap
My diagnosis took around 1 year and 10 neurologists from 4 different countries. I made three lumbur punctures and the first two came negative. Only the last one came positive for oligoclonal bands but very small quantity. However, during the one year diagnosis I had several MRIs done at least every ...
- Thu Jul 22, 2010 1:10 am
- Forum: Avonex
- Topic: Is Avonex an immunosupressant?
- Replies: 2
- Views: 4384
Imunnosupressant
Avonex is an imunomodulater, not supressant. It targets the Tcells in your body, not all immunity cells.
- Sat Jul 17, 2010 10:32 pm
- Forum: Exercise and Physical Therapy
- Topic: Running with MS
- Replies: 21
- Views: 26872
running with ms
Hi Julia, Lovely to hear from you. It helps a lot talking to others that struggle with the same issues. It is quite frustrating to see that you can't do what you used to do with pleasure. To answer your questions, I also have spasticity. After testing my running capacity for the last 4 months, i got...
- Sat Jun 05, 2010 9:04 pm
- Forum: Natural Approach
- Topic: herbals
- Replies: 578
- Views: 130991
Noni juice
I am monitored by both neurologists and immunologists as I do believe this is an immunity disorder. My immunologist also recommended me this noni juice. Anyone else tried it?
- Fri Jun 04, 2010 9:22 pm
- Forum: Natural Approach
- Topic: herbals
- Replies: 578
- Views: 130991
Aloe vera and Goji Berry plant
Did anyone try aloe vera and goji berry for MS? I did a bit of reading about aloe vera and it seems it has MMP9 reduction properties and people say pain also disappears. would be interesting to see if others had any results on it. my concern is that these plants also boost the immune system http://i...
- Mon May 31, 2010 9:53 pm
- Forum: Avonex
- Topic: Anybody take Interferon and has no side effects?
- Replies: 24
- Views: 19446
no side effects
oh..i just wish...my forth injection put me in the emergency room due to an extremelly high fever that I couldn't even drive myself to hospital. Thanks to having great friends. Afer 6 injections, I still have about 48h of bad side effects. Thanks NHE for your advice without which I don't think I wou...
- Sun May 23, 2010 9:40 am
- Forum: Copaxone
- Topic: Question about immune reaction to the cold or flu
- Replies: 5
- Views: 2895
flu
I am on Avonex for 5 weeks now and about 10 days ago I got a flu as I don't remember having since I was a child. My temperature went extremelly high under 1gram of panadol and antibiotics and ended up in emergency room to reduce the fever. The doctors are telling me is not because the medicine is ki...
- Mon May 17, 2010 9:36 pm
- Forum: Natural Approach
- Topic: of iron and MS
- Replies: 190
- Views: 74867
iron pills
to my knowledge, iron intake is to be avoided by people with MS. vitamins are recommended, but preferably without iron. maybe you should do a blood test first to see if you do have an iron deficiency first of all?
- Sat May 15, 2010 10:29 pm
- Forum: Avonex
- Topic: getting flu on Avonex?
- Replies: 0
- Views: 3132
getting flu on Avonex?
I had my forth Avonex injection on thursday evening and got the usual shivering and fever during the night, but Friday afternoon I was ok. Then during the night a whole new shivering and fever started and it kept going up till 39C. I got so weak and dizzy that ended up in the emergency room where th...