This Is MS Multiple Sclerosis Knowledge & Support Community

Why would it be service-related?

EBV may not tell you anything. Too many people have it without any effects. I may be wrong but I think its a left-over from getting Chicken Pox.

I found this http://www.activemsers.org/gear/reviewcoolingvest.html but couldn't tell you anything about it. I did a google search for "cooling vest". If you can't find anything affordable, look on places that sell stuff for horses and horseback riding or sporting goods. I think I saw some...

Your disease progression sounds like me. I hope you don't mind, but I printed your post and am sending to to my GP in the hopes he will start me on abx.

Thank you for posting your story. I hope you continue to improve. Please post updates.

CRHInv wrote:I think rr = relapse remitting

Oh DUH!

Thanks Frank.

I have looked at the individual boards for CCSVI & ABX but its confusing so I thought I'd start fresh. I guess I should have posted my questions on those boards instead.

How do I know if I am a possible candidate for that?
Where is the closest place to So California that is doing it?
Is it still experimental with a huge waiting list?

What are the drugs?
How are they administered?
Why abx vs the CRAB's?
How do I find a doctor willing to try this?

Insurance is paying for Copax. Its possible the doctor did not put PPMS on the info.

I'm assuming he thinks Copax will slow down the progression.

I'm gonna start a new thread about abx.

Two things -- I have Anthem and Copaxone is considered out of network. My policy has a million dollar out of network lifetime limit, then I'm done. At 30K a year, it adds up faster than you'd like. Just something to be aware of. BUT that's just MY policy. They're all different. The good news is tha...

Absentee - What state are you, do you know what plan you have and is it purchased by you or an employer? I'd like to look it up & see what the wording is compared to my plan. I'm in MA and yes it is provided through my employer. But it was the same while on Harvard Pilgrim (another insurer here...

Welcome, but ummm I don't understand the rr.

Lovely. To my question "what type of MS do I have?" he replied "most likely Promary Progressive MS".

This keeps getting better and better.

Shared Solutions told me Blue Cross said 30%. Then I called Blue Cross's pharmacy myself and they told me the amount of $757.84. I called member services & he told me at first it was $30 copay for brand name drugs after a $250 deductible but when I asked if it was $30 or 30% he put me on hold an...

I called Blue Cross again and found out why it is so high. Since its an injectible, I am charged the rate for medical coverage (30% after deductible) rather than for Rx coverage which would be $30/mo!!!! WTF do they allowed to do that? Is that how insulin is charged? Any idea when this med will be i...