Search found 179 matches

by Katie41
Fri Jul 02, 2010 8:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Badgers wonderful adventure in Poland!!!!!!!!!!
Replies: 156
Views: 41272

Congratulations to you and Katie!!! Many new adventures to experience together :D
by Katie41
Tue Jun 29, 2010 3:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204114

Val57gal, please check your PM. Thanks, Katie41
by Katie41
Mon Jun 21, 2010 10:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How soon have you seen improvements?
Replies: 14
Views: 4393

Congratulations!!! "All things come to those who wait." You certainly are the patient one (or one patient) LOL. Enjoy your new job! They are lucky to have you!
by Katie41
Fri Jun 11, 2010 7:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 12158

Pam,
I'm so happy for you! Great job getting the appointment at just the right time! Best wishes for a wonderful outcome for you :D
Katie41
by Katie41
Wed Jun 02, 2010 5:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Plodding to Poland with Johnson...
Replies: 92
Views: 17338

Johnson, all the very best wishes for the best outcome imaginable.
Katie41
by Katie41
Tue Jun 01, 2010 6:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Patience everyone, CCSVI is real.
Replies: 13
Views: 3175

Magoo, So true, so true! As usual, so well stated. StentorKate, That is what I've found. I, also, have been amazed at the things that I didn't know were problems until they went away! Even though I am not a person who journals, I found that by recording the symptoms that vanished, those that returne...
by Katie41
Fri May 28, 2010 3:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zeureka and others in Katowice 26 May
Replies: 35
Views: 9160

Zeureka, I'm so happy for you! Sounds like a great beginning! Onward and upward! :D
by Katie41
Wed May 26, 2010 5:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My second trip to Poland
Replies: 48
Views: 13943

Oh, Brynn, I'm so happy for you that you were able to return to Poland and get the stent. Things should be improving more and more. Can't wait for your next update!
by Katie41
Wed May 12, 2010 9:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 68367

Fantastic! What great news! Thanks for leading the way!
Forever grateful to you both!!!
by Katie41
Wed May 12, 2010 5:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katie41 in Poland!
Replies: 46
Views: 10178

Thanks, you guys! It's always so surprising to be able to do the "little" things that you could do before MS. Zeureka - I didn't go on any rollercoasters and held (supported) my neck when on Pirates and anything that jerked at all. My daughter, however, went on a large rollercoaster and se...
by Katie41
Tue May 11, 2010 10:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katie41 in Poland!
Replies: 46
Views: 10178

6 weeks post procedure: I was so excited on Mother's Day to walk several places without the crutches at Disneyland and California Adventure! My walking is much stronger and my balance much better! I would never walk in a crowd, even with the crutches. Mother's Day, I walked with and without crutches...
by Katie41
Tue May 11, 2010 8:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370902

If it can be any help: 1. Immediately after procedure, daughter noticed my feet were pink and felt warm. They were icy cold and dusky prior to procedure. 2. I did not have to get up during the night to go to the bathroom. Prior, I had to get up 2 to 3 times a night. 3. I could walk without crutches ...
by Katie41
Sat May 08, 2010 5:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: sunlounger 2nd procedure in Poland
Replies: 32
Views: 8753

Ted, Great idea! I sent the following to Euromedic as suggestions, but, much better to get it translated and sent to them: Written instructions in several different languages that can be handed to patients upon arrival in Katowice and in the hospital. 1. Keep leg straight, don't bend at groin, for s...
by Katie41
Sat May 08, 2010 5:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prepping for Poland
Replies: 22
Views: 4164

Hi Johnson, A great adventure awaits you! Check on the hotel's website re the safe. There was one in our room. They want you to stay in bed for 6 hours after the procedure so there are no bleeding problems at the insertion site in your groin. They are quite strict about that. It usually prevents lar...
by Katie41
Wed May 05, 2010 4:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MSRC CCSVI Diaries - New Diary by Denise added
Replies: 4
Views: 2147

Way to go, Denise!!! :D

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