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Donnchadh wrote:For me personally getting rid of iron has been a major help in dealing with symptoms and their progression.
Donnchadh

How have you been able to do that? Do you have any metric as to wheter it has been successful?

Bluesky, see you pm's

Okay, this is my first post... I have been contacting, or I should say, attempting to contact Stanford University and Buffalo for updates on the CCVSI surgeries. I am willing to go wherever I need too. I can't say about Buffalo, but on the outside shcne that SCGIRL is Southern california and not So...

It's so interesting how the same material can be interpreted so vastly differently. Words are certainly subjective. I don't find Lyon extreme in any way. For all things, I'd like the strengths and weaknesses pointed out. Lyon focuses on the weaknesses. That adds to our information base. Why is that...

I would think it depends how mild your wife's symptoms are. Also probably the most important question: What does your wife want? :lol: That my friend is a LONG story in itself, OR I could as easily and accurately answer it with three words "I don't know". she doesn't want to think about t...

That said, my wife doesn't have aggressive or late stage MS so we have the luxury of not acting out of desperation and wishful thinking and instead looking at the "science" pragmatically and accepting that it's just not "there" yet. I too have very unagressive MS ( still not in ...

Resulting studies down the road will basically confirm what it looks to be at present, that angioplasty works for some not others. I am not interested in the testing trials as much as the procedural trials. These trials, all perhaps underfunded, the NMSS not funding them are relying on our fundrais...

Lyon wrote:

fogdweller wrote: See your pm

Nothing so far...

Try again, I think I got it this time.

Actually I am fogdweller because I live on the coast in Northern California. The photo in my avitar was taken out my back window. :oops: All the time you've been here I assumed it regarded "cogfog" and that the pic was just kind of a play on words. Awesome friggin' view. Please attach a b...

Lyon wrote: Hard to believe your moniker is "fogdweller" since you've made the first coherant response that I've seen in this thread.

Actually I am fogdweller because I live on the coast in Northern California. The photo in my avitar was taken out my back window.

The comments are also interesting.... Hi Sharon, My name is Tim and i had the ccsvi treatment sept 2009 and it is now almost aPR 2010 and 1 of my Jugular veins and vertabrae veins have closed up again on the left side.My right side is still o.k. Because the blood has to travel across to the other s...

Well that's my worry - the longer it's left, the more chance I have of developing MS. The last neurologist basically wanted to 'wait and see' for it to develop in me. Have had the evoked potentials and lumbar puncture, all clean. This was almost a year ago now though, along with my last brains scan...

I agree with compassionate use exception where the patient is in danger of sufferin death. And I know there are MS cases in this catagory, and CCSVI angioplasty should be made available to them. (I am not sure it would not be.) The difficulty for the professional is that while compassionate use if a...

Fodweller, it was a lot more than that! MS Canada served on the CIHR "expert panel" which unanimously recommended against doing clinical trials. MSS snubbed experts like Drs. Haake, McDonald in granting funds for research. Instead, they pandered to Dr. "Hoax" Freedman and others...

Hey, hey folks, easy. As a proud scientific skeptic (in the general sense of the word) I recognize that a big leap forward we have made in our century is the practicing of scientific medicine. We do not rush into a new idea without scientific proof. Very difficult in a disease like MS without a good...