Search found 290 matches

by ndwannabe
Sat May 15, 2010 8:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Uncomfortable silence
Replies: 13
Views: 3873

I loved reading the Doctor's perspective. It's useful to look at things from another angle now and then...

Thank you mshusband!
by ndwannabe
Fri May 14, 2010 9:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Recuiting more Dr.
Replies: 7
Views: 1593

Excellent!

What country are you in? And state if applicable :)
by ndwannabe
Fri May 14, 2010 9:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: check out some of my pics
Replies: 27
Views: 5336

Thank you very much for posting. Hoping for great and sustainable improvements!

I did not catch it - did you have ballooning or stenting or combination?
by ndwannabe
Fri May 14, 2010 8:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 76507

Re: Who do I contact?

Trine wrote:Who should I be contacting to get my name on the list? I sent an e-mail to Dr. K, but never received a response. Can someone give me Kate's contact info?

Trine
This is Katherine's e-mail

biuro@europanostra.com.pl
by ndwannabe
Fri May 14, 2010 7:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had balloning ONLY and no re-stenosis?
Replies: 36
Views: 7270

tzootsi wrote:ndwannabe, check your PM.
Yeees? (there is nothing from you tzootsi)
by ndwannabe
Thu May 13, 2010 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had balloning ONLY and no re-stenosis?
Replies: 36
Views: 7270

My wife had ballooning 5 weeks ago in both jugulars. She just went back for a 1 month checkup, everything is still flowing great! Our doctor felt that keeping on Plavix for a month, and then baby aspirin for at least 6 months, is helpful in keeping re-stenosis away. This is wonderful! Thank you for...
by ndwannabe
Thu May 13, 2010 5:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Survey Wish lists for treatment outcomes of CCSVI
Replies: 23
Views: 5381

Fatigue

Leg drag
Leg spasm
Limp
Foot drop

Memory lapses / forgetfulness / word searching

Sensitive bladder

Bad sleep

Heat sensitivity

Sensitivity/ irritability in general - sounds, bright lights, strong smells, touches

Neck spasms
by ndwannabe
Thu May 13, 2010 2:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had balloning ONLY and no re-stenosis?
Replies: 36
Views: 7270

Hello all, on the topic of restenosis: I had the procedure (just ballooning) on March 10 in Poland and I lost most of my improvements about 15 days later. Now I am even worse than I was before the procedure. Also, it took them 3 times with the balloon in order to fix my left jugular, once for the r...
by ndwannabe
Thu May 13, 2010 2:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anybody had balloning ONLY and no re-stenosis?
Replies: 36
Views: 7270

I wonder what anyone is doing for their vein health to allay restenosis - diet, supplements, etc., and what difference this can make. I remember reading here (cheerleader?) about genetic collagen defects that show up in "MS" people - which leads to in-elastic vasculature. Doc. Sclafani wr...
by ndwannabe
Thu May 13, 2010 12:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Some Polish Phrases
Replies: 13
Views: 3617

mila77 wrote:ndwannabe,

Your Polish is getting better. By the time you come to Katowice you will be fluent.
Both websites you posted are great!!!
Yay! :)
by ndwannabe
Wed May 12, 2010 5:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Some Polish Phrases
Replies: 13
Views: 3617

Here we can listen to pronunciation http://www.apronus.com/polishlessons/lekcja01.htm

Mam nadzieję, że jest to przydatne. (it that correct, Mila?)
by ndwannabe
Wed May 12, 2010 5:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katie41 in Poland!
Replies: 46
Views: 10080

Great update Katie :)

My husband says he would be scared of me after liberation (he deems me smart :roll: ) and says he will not even attempt to play chess with me then :lol:
by ndwannabe
Wed May 12, 2010 1:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204067

So apparently when they said "At the present time, we are offering both diagnostic and endovascular treatment for CCSVI (Liberation Treatment)..." what they really should have said was "JUST LIKE EVERYONE ELSE, WE DON'T HAVE IRB APPROVAL YET EITHER". I just found out. I'M SO STI...
by ndwannabe
Wed May 12, 2010 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: English/Polish Phrase Translations for Euromedic People
Replies: 14
Views: 2719

Re: Focus on the hospital stay

fiddler wrote:Thanks, ndwannabe, that has a few of them, but I want to focus on phrases for the hospital stay. I'll send you the initial list if you want.
...Ted
Yes please :) I'll PM you my e-mail address.

Or maybe it should be posted here, for everyone's benefit?

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