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by fogdweller
Sat Feb 13, 2010 6:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who is a statistician out there?
Replies: 25
Views: 5168

Msgigisji wrote: However. I believe the question you are asking given the data we know from the article is "What is the chance of having MS given you have CCSVI? " Actually not. I am trying to find out what level of confidence is there in the difference in frequency actually observed. My u...
by fogdweller
Sat Feb 13, 2010 2:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who is a statistician out there?
Replies: 25
Views: 5168

This was a serious question, not a challange to the data. If there is a correlation, it is statistically significant to some level of convidence. Depending on what factors you look at, you can make the data say dilfferent things, but for any given correlation wilth any given number of subjects there...
by fogdweller
Sat Feb 13, 2010 11:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who is a statistician out there?
Replies: 25
Views: 5168

Who is a statistician out there?

I confess, after my final exam I promptly forgot all my statistical analysis. Will someone give us the statistics on the figures from the Buffalo study? I am sure they are found somewhere in one or more of the press releases, but I was having a hard finding links to the study. Also, moderators, woul...
by fogdweller
Wed Feb 10, 2010 3:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Need to vent!!!
Replies: 34
Views: 6635

Kacey, I feel for your frustration. Hang in there and get a good pain specialist that can help. I have had MS for 30+ years (PPMS) and now have significant neuropathic pain. I have no illusions that relieving CCSVI will elliminate the pain at all, it just hopefully will not get worse. However, that ...
by fogdweller
Wed Feb 10, 2010 2:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Only 55% for buffalo study?
Replies: 91
Views: 22064

thisisalex wrote: i think i have an explanation for the 55%... its very simple. Zamboni worked backwards. First he had the 65 patients, but no criterias. He examined all of them, and he defined the 5 criterias. OF COURSE he had 100%. Because he has defined the rules for the game But these rules are ...
by fogdweller
Mon Feb 08, 2010 10:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inflammation
Replies: 25
Views: 6638

Cheer wrote: I truly hope that some PPMS patients may be able to get MRVs and stent surgery. There's been a fire lit under me, and I want to get the word out I too am PPMS and plan to have the diagnosis at Stanford if they ever resume testing. I am a bit cautious abut stenting, though. I have been i...
by fogdweller
Mon Feb 08, 2010 9:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371890

Analogy

When I was in college, we had a litle bathroom with a plywood floor that had press-on tiles. When one of the drains backed up, water would flow onto the floor, the tiles would curl and come off, and the plywood got moldy. Zamboni proposes that we unstop the drains. Maks sense to me. So far we have b...
by fogdweller
Sun Feb 07, 2010 2:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Newsletter
Replies: 107
Views: 23640

For someone who has read your post after a couple of glasses of red wine, what is the point you are making? Weegie, I re-read my post and you are right, not very clear. You would think I was the one with several glasses of wine! (Unfortunately not.) The point is, no sham surgery. Patients segregate...
by fogdweller
Sun Feb 07, 2010 2:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371890

BTW, Taxi, don't you
Aussie's watch the Supper Bowl? I realize it is a different kind of football and all ...
by fogdweller
Sun Feb 07, 2010 2:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371890

I was having problems too, lack of authority or something.

I copied the entire document, pasted it to a new WORD document, and saved that. It worked fine for me. Good luck.
by fogdweller
Sun Feb 07, 2010 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Immune system activation in CCSVI
Replies: 11
Views: 4577

Glad to see you back

It was great to see you posting I thought you were taking a break.

Wonder why Haake sceduled his workshop for Superbowl Sunday? Canadian I guess.
by fogdweller
Sat Feb 06, 2010 6:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is Stanford doing a study yet?
Replies: 1
Views: 2126

Is Stanford doing a study yet?

I have seen a couple references in various posts to the Stanford study. I knew they were going to do one, they told me so when they cancelled my appointment there in early December. Since them I have not heard anything, and have not seen a protocol. Does anyone know if they have started their study ...
by fogdweller
Sat Feb 06, 2010 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Newsletter
Replies: 107
Views: 23640

Weegie: Stunningly valuable, groundbreaking, historic, and the first bright ray of hopefullness since I was diagnosed 30 years ago!!! I was addressing the questions that had been raised about how we would do a valid double blind study involving surgery, and the thought that the researchers might per...
by fogdweller
Sat Feb 06, 2010 12:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Newsletter
Replies: 107
Views: 23640

blinded surgical studies

Happy_canuk wrote: UBC is only talking of doing angioplasty surgeries and, with a double-blind study, they will need to fake that part too. I am not sure why this discussion is developing in this thread, and I am not a clinical trials expert, here is what we did at my last company and what I believe...
by fogdweller
Fri Feb 05, 2010 4:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Newsletter
Replies: 107
Views: 23640

I was in line for diagnosis and treatment at Stanford when someone apparently caused Dr. Dake to pull the plug and stop seeing everyone, almost without notice.

I wonder who feels sheepish now that they have been scooped as an institution? I have not yet even seen a protocol out of them.

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