This Is MS Multiple Sclerosis Knowledge & Support Community

Just a little info! I emailed Dr. Siskin yesterday as I was wondering where I was on the list. I rcvd. my initial call in July saying they would call when they had an appt. I was told the appt. would most likely be Dec. Yesterday Dr. Siskin replied it would be mid 2011. I was so disappointed & a...

Haven't I read that Dr. Siskin in Albany has had good luck with getting insurance to cover? I thought he had it preauthorized in advance . Also, I thought medicare covered it accept for co-payments or deductibles. Anyone know?

Glad you're doing well, BadCopy. Take care & may all your improvements
continue.

I was contacted yesterday by email by Phoenix, Arizona where I was on thier waiting list. I was told they are only doing it on a out of pocket payment plan. No insurance. I didn't understand this as I don't know why they can't bill insurance. I, also, asked about they opinion on being at risk to be ...

I, too, have an extremely large eye floater for at least 18 years. I have tried my hardiest here in Minnesota to find a Doctor willing to use laser but they won't do it due to complications. Seems it is very risky I'm told. I agree that it is so annoying & interferes with reading in that eye. If...

Boor Bear you are so right. We definetly need to work on getting the proof & getting Doctors onboard so we can all have an opportunity to feel better. I am so happy you have positive results. Well deserved.

I am looking to receive testing & treatment here in Minnesota or in the Midwest. If anyone can share anything please PM me. Thanks!

I, also, contacted Mayo & one Dr. who was an interventional radiologist emailed back & said he would have his co worker contact me as it was more his field. Later I rcvd. a reply from the 1st Dr. who emailed a copy of the 2 negative instances from ccsvi. They will not do anything till trials...

Just a bit of advice for letter writers. Mark personal on the envelope. I saw a vascular surgeon and I asked if he had received other letters as I read that others had sent to all vascular surgeons here & his name was on the vascular surgeon list here. He answered "no". I really feel u...

This is great press! Thanks for all the work you do to bring ccsvi to the public. Can't wait for the day when we don't have to fight to find treatment close to home.

Thanks Dr. for all your dedication. I know with your decision the battle to get treatment will be much easier. What a truly dedicated man & friend to us all.

Does anybody know of a Dr. in Minnesota willing to test or treat CCSVI? It's hard for me to travel but I do have my name on 2 lists. I haven't had good luck with finding one local. I came close with consultations twice only to be told they wouldn't pursue it after going in. So frustrating.