Search found 255 matches

by newlywed4ever
Thu May 05, 2011 6:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

BCBS wil do whatever they can to avoid paying a claim. I sued them in 1983. They paid the inpatient hospital bill on a minor surgery, denied the doctor's part ($300), which meant my major medical couldn't release the balance of the doctor's reimbursement. My major medical approved the claim. When I...
by newlywed4ever
Thu May 05, 2011 6:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Get treated ASAP if you want insurance to cover it
Replies: 71
Views: 14389

1eye Angioplasty should not be denied to anyone because they have had a diagnosis of 'MS'. Insured treatment of known health problems with known health procedures should not be denied to anyone because they have had a diagnosis of 'MS'. Full stop. People with MS are seeking diagnosis of ccsvi and t...
by newlywed4ever
Thu May 05, 2011 5:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

If this BC/BS policy change wasn't effective until 4-12-11 why was newlywed4ever who had the procedure on 1-28-11 & a check to AAC cut on 4-5-11 denied? I don't understand. Actually, the BC/BS medical policy was the last excuse (following many) AAC gave me for not reimbursing the BC/BS check to...
by newlywed4ever
Thu May 05, 2011 4:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

I am not seeing any posts on Joan Beal's or CCSVI Alliance facebook pages re: BC/BS medical policy and am wondering if a separate thread should be started to get more people aware that time is of the essence...for everyone, not just people with BC/BS.
by newlywed4ever
Wed May 04, 2011 5:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

I actually happen to be one of the few that does not have the ms label. I have had the procedure and have re-stenosed and looking forward to Dr. Sclafani doing my next procedure. The Drs. can't seem to find what my problem is. I think I will try and fight this one. Like I have been told though, eve...
by newlywed4ever
Wed May 04, 2011 5:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

Medical Policy link

I am reluctant to copy the entire policy here as there is some clause at the bottom prohibiting electronic copying.... but here's the link:

http://www.empireblue.com/medicalpolici ... 136297.htm
by newlywed4ever
Tue May 03, 2011 7:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

As I sat wondering about the wisdom of my public post and opinion and whether to figure out how to delete a post, Dr Sclafani posted after me. It is more important than my post. I think we are warned here, folks. God help us. My problems are merely a grain of sand when it comes to the bigger picture...
by newlywed4ever
Tue May 03, 2011 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 17171

AAC billing

Here's what AAC has done to me... First, please note that I think the world of Dr Sclafani and do not wish to hurt him and what he is doing. However, I am very frustrated with AAC billing. I had my 2nd procedure 1/28/11 by Dr Sclafani (my 1st procedure was with Dr Siskin and BC/BS covered 100%). Pri...
by newlywed4ever
Mon Apr 25, 2011 6:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: QUESTION for those with thrombosis or occlusion
Replies: 13
Views: 3021

Re: QUESTION for those with thrombosis or occlusion

What symptoms did you have that led you to believe you had thrombosis or occlusion of your jugular veins following CCSVI liberation? Not MS symptoms (necessarily) ... but those related to your jugulars being thrombosed or occluded? I'm thinking Dania, Vivavie and Newlywed ... all have had this ... ...
by newlywed4ever
Thu Apr 21, 2011 6:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI without success?: numbers in statistic do not lie
Replies: 33
Views: 9973

As patients I think we go into this knowing it is a new use of an old procedure, all the details have not yet been ironed out. The feeling of being left high-and-dry may be because there is nothing more the doctor can do? The extra costs of IVUS (both in hardware and time added on to the procedure)...
by newlywed4ever
Mon Apr 18, 2011 5:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Follow Up UltraSound & Dr. Makris tomorrow
Replies: 15
Views: 4491

Cece wrote:Hope all is well, Donnchadh, take care.
ditto. We care :)
by newlywed4ever
Mon Apr 18, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Makris 5th procedure
Replies: 20
Views: 5917

That's great news, anamishguy! Thanks for the update and keep celebrating your health ;)
by newlywed4ever
Tue Apr 12, 2011 5:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372386

My GP said she called you but didn't leave a message because you don't identify yourself on voice mail :roll: So, instead, she called a vascular surgeon, a neuroradiologist, & a neurologist - all 3 had never heard of CCSVI :( ...which then led to ??s like was my procedure done in a real medical...
by newlywed4ever
Tue Apr 12, 2011 5:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A request
Replies: 56
Views: 10823

BlueSky - hope you're feeling the love and positive energy in abundance!
by newlywed4ever
Mon Apr 11, 2011 6:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 84945

Ahh, yes! My first ccsvi youtube was also the "I Can Jump" - I watched & shared that video a dozen times with tears each time. The hope it ignited! And, on the opposite end of the spectrum, worse case testimonials also bring the tears. Thank you to all those who came before me and all ...

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