This Is MS Multiple Sclerosis Knowledge & Support Community

Do you use the liver extract too? You can put 1cc in the same syringe. It is supposed to make a big difference, though for me it didn't. I was assured by Dale Humphreys it would work for ALL MSers unless there was an underlying problem, which I obviously have due to mmmmy iron. I got the liver extra...

Hi L

I posted a private message to you about this when I (belatedly) found yours.

Thanks for that costumenational

Has anyone in the UK had success getting a venogram with dye to show stenoses through their GP? If so, on what grounds was it achieved? Zamboni reported that PPMS was more difficult to treat as the blockages were near/in the spinal column. Is this to do with the azygous vein? If not, then where? Hav...

Thanks, Downunder. Yes, I was clearly mistaken. I was thinking stents were an option to some sort of other metal 'expander'. So is the option stent, or no stent? Or am I still missing something? Another thought: we have been lead to understand that our MS symptoms are due to demyelinisation of the n...

Thanks for all your posts re PPMS. It seems as if the Polish clinic will take all patients and just see how it goes. Perhaps it may be possible to request stents to get round the possibility of collapsing ballons, but surely they must take that into consideration? Are stents less safe than balloons?...

Is anyone posting here PPMS? I was dx in late '80's and would love to know of other PPMSers results with Dr Simka.

Has anyone here been on the Klenner protocol? I've been doing this for about 18 months, but despit early assurances, I haven't seen improvements. This was latterly put down to the HH factor. Has anyone else got the same non-outcome?

Has anyone on here tried NCD Liquid Zeolite? Effects? I've never heard of it. It seems to be a cure-all for everything from kidney stones to pancreatic cancer, and much more besides. Or is it fool's gold?

Well I've got tinnitus!

Merlyn, you could send your message to Zamboni via a forward from Dr Marian Simka of Poland:

mariansimka@poczta.onet.pl

Am considering a plan of action if my doctor doesn't come up with the goods - a phlebotomy appointment. I think the next step will be to get an appointment with my neuro - hardly 'my' neuro as I've only seen a neuro three times in 25 years! Last time, about 7 years ago he said all he could offer me ...

On Monday Feb 22nd my UK NHS doctor seemed positive towards my request for phlebotomy re haemachromotosis resulting from a mutated gene CYS282Tyr.

Today is Friday March 5th. Not a word since. Am having doubts as to his intentions, or whether other doctors in the group practice have blocked him.

Hi Merlyn,

I went back to your first post on this site, and ended up wondering if you might consider adding ' Iron overload' and 'Genetic mutation' to the title, or something similar. It might just bring the topic to a wider readership, don't you think?

Thanks Bethr, I read somewhere that the magnetic aspect of an MRI can affect the iron in the brain.
My doctor hasn't got back yet - nine days - so I'm beginning to suspect it's not going to be as straightforward as I'd hoped.