This Is MS Multiple Sclerosis Knowledge & Support Community

thanks, Lyon.

What needs to be done is to determine a conclusive test (venography?) to run on an even number of people with and without MS with absolutely equal effort to determine what the numbers are and whether stenosis does have some kind of unique relationship to MS. That would be a good first step towards ...

Eric593, I am a patent lawyer who has been involved in the stent/angioplasty industry for 20 years. I assure you it is getting attention. In fact, I was told about CCSVI for the first time by a fellow patent lawyer who knows I have MS. He had been told about it by one of his clients who had an inven...

Speculation is how science works. Hyothesis, experiement to text hypothesis, evidence generated to support or contradict hpothesis. New and improved hypothesis, new experiment, etc. Speculaon in a forum serves a different purpose, but useful nonetheless as long as the speculators do not start to sta...

I was thinking about this after I wrote my last post. I think the way you would do it is to treat angioplasty or stents as a treatment for fatigue caused by MS, and compare it head-to-head with the current standard of care or an acceptable drug used as an acceptable treatment. You see this all the t...

I would think it would be enough to initially open up veins to help alleviate fatigue. That way the end points would be shorter and the treatment would be available much sooner. Following treated patients over the long term to assess levels of progression and number of relapses could just be built ...

Would the hookworms take enough Iron out of the blood to avoid creating deposits? The MSers with anemia seemed to throw that theory off. Ever since, I've been looking for a way to reconcile the two ideas. I have no idea about hookworm, but there is nothing at all inconsisitent about anemia and high...

Let me take back my words and say this: if you dont have fatigue, you dont have CCSVI ... :? Buffalo study is a good example, normal people have CCSVi. Maybe their body is just waiting to morph into MS, who knows. I seriously doubt this. Something like 26% normal subjects had CCSVI. Nowhere close t...

Just 6 months back I was hoping that we see cure for MS within next decade. Six months later, we are here staring at a treatment as real as CCSVI. Hooray Zamboni! who looked at things as they are and did not try to overcompliate things .... When I was diagnosed, I put off making some decisions I sh...

During my procedure, they put something on my head to measure oxygen level in my brain. The oxygen level increased 14% when the stents went in. One of the biggest problems with MS is there is no good objective measure of disease severity. Even the number of leasions on an MRI is not too objective. ...

Once again...there is nothing regarding stents in any of this. There is no PR bent to the initial post. We do not know what is going on there, and should NOT speculate. It could be scheduling, it could be staff problems, we simply do not know. I agree we don't know, but as long as we all know it is...

i would think that is due only to overwhelming demand and they have to deal with the patients they currently have. But wouoldn't patient's already lined up also call in and get that message? Seems more likely that staff is tied up or on vacation for a couple weeks and maybe they are using the time ...

. However, recent findings of significant stenoses in the extracranial veins that drain the brain and spinal cord shed new light on these MR results. With the assumption that a majority, if not all, of multiple sclerosis patients exhibit such extracranial venous obstacles, the perfusion MR images o...

Steinman would like to go directly to a human trial to test his proposal, but there are practical difficulties. "Who's going to pay for it?" he asked. A standard proof-of-concept study with about 200 patients would cost in the vicinity of $20 million. ACE inhibitors are as inexpensive as a...

Family elder Zap posted an excellent study from the 80's on the struggle between the vascular theory and the autoimmune theory as the cause of MS. It is at http://www3.interscience.wiley.com/cgi-bin/fulltext/119454590/PDFSTART?CRETRY=1&SRETRY=0 It is so good I though it deserved its own topic. s...