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I wonder what the different treatment is????? Any guesses? Boy, that is a good question. I am a patent lawyer who has been involved in the stent industry for 20 years, so my first thought is some kind of new stent-like device. Since veinous walls are different than arthery walls, and the cardiac st...

Cheerleader, how excited are you?? many, many thanks for all your efforts.

Though no results announced, the tone of newsletter SCREAMS success A new machine invented and developed for this disorder; further expanded studies, negotiations begun with the insurnace companies to cover this (how can you do that without positive results???) all the things that they were able to ...

Don't know if anyone is going to find this useful but I've posted a white paper I wrote about CCSVI, introducing it, refuting the autoimmune theory of MS, describing CCSVI and showing the depth of research behind it. Here is an abstract from earlier this month that is interesting in regard to MS no...

I don't read Dutch, so I don't know where this test might be conducted. I did notice the reference to Stanford in the first web page cited. Might this be the upcoming Stanford study? if so, it is the first I have read the basic study outline of what Stanford proposes to do.

Its hard not to be anxious...does anyone have any update on when the first results will be released? If the are positive, I predict a real tidal wave of pblic interest. If they are negative, some of us believers will look for what defects might have been in the study, but getting much interest/money...

Wow, very good ideas and good info! I also hypothesize that it is something in the nature of active myelinltion pre-young adulthood that compensates for any loss of myeln; the damage thereafter is relatively slow as the veinous back-pressure slowly results in reflux which gradually results in compro...

This is a very smart, informed and and well educated group of people. Using our creativity, and assuming CCSVI is correct and the venous malformations are congenital, any speculations as to why childhood onset is rare and some cases of MS don't even show up 'til late adulthood?

Cheerleader wrote: There is so much we still don't know about the long term benefits of relieving CCSVI. My husband still has neuropathic pain in his legs, and we think that's from the large lesion on his cervical spine. His cerebral issues (brain fog/fatigue) are so much better. We think it's beca...

I have PPMS and am curious obout that too. I am convinced for scientific reasons that at least as of right now the CCSVI researchers are looking in the right directonl, but that leaves those of us with significant nerve damage already suffered pretty much the same as before. The big problem seems to...

I recognize that official scientific statement like this does not automatically mean that the insurance companies will cover treatment of the condition, but we should use this additional medical recognition to pressure the insurance companies to cover it. They cover all the far less useful antiinfla...

Researchers in Australia found more evidence that MS is not an autoimmune disease. A good study reported at this site. http://www.ncbi.nlm.nih.gov/pubmed/20035511?itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum&ordinalpos=30 Basically concludes "The findings suggest t...

Is Stanford still doing stenting? Is this Dr. Dake?

Mechanically inclined: I don't think that puts the cart before the horse. I have a personal experience in how long it takes to get a new medical device to market, including how long it takes to develop it, and I think we should have already started developing stents for Jugulars and large Cerebral s...

Having read the posts about high overhead and low contribution $$ to research, I I agree. Also I was reading a separate post about the timeline for approval of projects, and it was REDIDCULOUS. Not even starting until summer. Big hoopla about putting together an international group to review the pro...