Search found 212 matches

by Johnnymac
Thu May 26, 2011 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AAN early report on 3 CCSVI studies
Replies: 33
Views: 7381

Your outright dismissal is a little hypocritical of the position you take is it not? It takes doubters to balance the science and push for real numbers but outright dismissal that it even exists is more than being a doubter. To each their own, ccsvi is still a theory, albeit one with a lot of real s...
by Johnnymac
Thu May 26, 2011 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AAN early report on 3 CCSVI studies
Replies: 33
Views: 7381

Scorpion says: More studies finding not much of anything. Zamboni needs to step up and admit his study was flawed and then maybe some of this foolishness will go away. You really kinda make yourself look bad with the above statement, there are numerous things here that could be argued significant. T...
by Johnnymac
Thu May 26, 2011 8:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW: Clinical Trial in Texas w/Dr. Diana
Replies: 29
Views: 5872

If anyone is interested in this but may need help getting around in Dallas just send me a PM, I'm more than happy to help. I live about 30 minutes drive to where this study is being held, its about 5 miles from the DFW airport as well.
by Johnnymac
Mon May 23, 2011 2:37 pm
Forum: Copaxone
Topic: What is Copaxone, really?
Replies: 1
Views: 3070

What is Copaxone, really?

When my wife first started taking copaxone in 2006 it was described to us as a 'protective coating' the mimics myellin and protects the damaged nerves from the immune system. Even the Teva website uses language like "COPAXONE is believed to..." which really makes me wonder. Is there any re...
by Johnnymac
Mon May 23, 2011 5:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8235

Wishing you best of luck!
by Johnnymac
Sat May 21, 2011 10:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Youtube pre and post procedure / testimonial videos
Replies: 212
Views: 155666

I've consolidated our three sets of videos so far and put them into a YouTube Channel. Will update that channel with new videos weekly.
Cheers,
John

http://www.youtube.com/user/mcbride0611
by Johnnymac
Sat May 21, 2011 10:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Court's Liberation - 2 Week Update (new vids)
Replies: 19
Views: 5494

Two weeks and a day post procedure and Courtney continues to get a little better. Her walking and balance are starting to improve in the mornings. Blog updated with new videos.

http://ourmsjourney.blogspot.com/
by Johnnymac
Sat May 21, 2011 5:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2350426

JOIN THE REST OF US. tHESE PROBLEMS ARE QUITE DIFFICULT TO DETECT ON VENOGRAPHY BECAUSE OF ARTEFACTS CAUSED BY THE BEATING HEART AND RESPIRATORY MOTION. IF COURTNEY HAD AZYGOUS PROBLEMS (MY HEAD CANNOT REMEMBER SO MANY FACTS ON ALL THE PATIENTS :oops: THEN THEY WOULD HAVE LIKELY BEEN DETECTED BY IV...
by Johnnymac
Thu May 19, 2011 12:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2350426

Hi Dr S, I've been looking over some of the pictures from Courtney's procedures and I'm not sure exactly what I'm looking at. Figured this would be an appropriate place for a little training. Since Courtney's disability is primarily on her right side, I was looking closest at images of her rijv and ...
by Johnnymac
Thu May 19, 2011 11:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Court's Liberation - 2 Week Update (new vids)
Replies: 19
Views: 5494

Hey everyone, Courtney and I decided to start tracking how she was feeling daily with each of her symptoms, along with the amount of exercise and stretching she is doing. Wanted to share what we were doing not so much for folks to follow along, but to perhaps give you an idea on tracking your own po...
by Johnnymac
Thu May 19, 2011 10:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: question
Replies: 4
Views: 1339

I'd recommend getting in touch with your Dr if possible just to let them know so they have the opportunity give you their take. From what I've seen soreness can vary person to person, my wife took about 9-10 days before the soreness from her azygos ballooning went away
by Johnnymac
Mon May 16, 2011 6:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ASPRIN
Replies: 26
Views: 5211

Done and done, got her started on them this evening. Thanks for clearing things up doc.
by Johnnymac
Mon May 16, 2011 11:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ASPRIN
Replies: 26
Views: 5211

I've been wondering about this as well since Court is supposed to start taking low dose asprin daily after we finish with her arixtra.
by Johnnymac
Sun May 15, 2011 12:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Court's Liberation - 2 Week Update (new vids)
Replies: 19
Views: 5494

Hi bill, we too are awaiting the actual report in the mail, I'd be interested to see if there are any similarities. 9 days post procedure and the pain and discomfort are all gone. Walking isn't any better but it seems like she is getting better in all the other areas. Simple tasks do not now wear he...
by Johnnymac
Sat May 14, 2011 10:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 44947

Dr. Sclafani has his patients' best interests at heart and will do whatever is necessary to help them. I'm so glad he's my doctor. I know I'm in good hands. Laura I second this... I only wish we lived closer and could have all of our followup with dr s. All the folks at aac were all really great wh...

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