This Is MS Multiple Sclerosis Knowledge & Support Community

Hey Anon, Its hard to tell with MS sometimes if you are going backwards or forwards:/ I hope this is all part of the healing process....only time will tell. I really hope your MS all goes in a positive direction xxx As for me, Im doing really well, my eyes are better again (I say better not 100% nor...

Hi Anon, Good to hear you are doing ok:) I'm ok too.....don't feel MSy or tired, feel pretty well. Eye issues aka vision are still up and down, some days I feel like I can see almost normal (well normal for me, who knows what real normal feels like lol) other times I feel it's a struggle to see. Ove...

I've shut down my cycle since jan this year as I have endo and I believe the inflammation and pain was aggravating the Ms.
I've cut back to 250mg of valtrex but I don't think my vision worsening is down to that but stress and also not been taking my aspirin 75mg which I'm gonna go back on.

So in the spirit of reporting good and bad eyes gone a bit downhill again:( knew it was too good to be true.better than they were originally but not as amazing as they have been. I had 6 sleepless nights recently due to stress so I'm thinking that probably contributed. I still get bouts of eye pain ...

Maybe I need t do a full vitamin mineral blood work (plus liver) my liver is always affected when I take meds..... Why did you suspect copper deficiency??? I'm thinking of lowering valtrex to 250mg to be on the safe side long term and 400mg acyclovir on the non valtrex days) but I feel so well atm i...

Eyes still improving, on valtrex 500mg on one day and next day acyclovir 800mg next (as acyclovir is so much cheaper)
Feeling pretty well, not MSy at all at the moment:)

Hi anon, Still doing well vision wise with some brain fog issues still occasionally, bladder with some urgency which is intermittent. (Had these pre rituxan) I will take some extra b12 too just in case. I might get my blood checked at some point to see how I'm doing iron/vitamin wise. I'm currently ...

Thanks anon xx do you mean your eyes are worse or better?? X

Hey all
Just wanted to let you know I have had some improvement with my sight....its much better, shadows improved and general fuzziness better.
I'm on 500mg valtrex and that coupled with the rituximab seems to be having a positive effect but its early yet to get too excited.

Just wanted to post an extra note....got my blood results back for b cell depletion today. There were no detectable b cells in my blood so rituximab has done what it was supposed to.
Now I suppose its a wait and see approach if it has a positive effect.

Xxxx I'm fine:) got so much on at the moment that haven't had time to come on here.
Hoping the rituxan makes the MS calm for a bit.
I had my bloods done last Monday to see if my B cells have depleted at all, will keep u posted xx

Hey anon, and everyone else, Just a quick update for me.... I did 1000mg rituxan in March then 500mg 2 weeks later (couldn't afford 1000mg again) My eyes are slightly better. I am still exhausted though (as mentioned I did have this pre rituxan) I still have brain fog issues. I started valtrex 250mg...

Hey all,
Just to keep you posted.
I had an awful headache for about a day, night and following day. It's gone now but have this really strong bruised feeling in my head.
Still feel sooo tired!

Anon glad to hear your numbness has cleared x

Hey all, Well 2 days later and I'm super tired!!! I was tired before the rituxan and felt a relapse brewing beforehand and post rituxan I'm so so tired, can't move myself off the couch (except to get myself food!) I hope this strong fatigue calms down soon. I also feel mildly fluey, just a hint of a...

Hi anon
Just checking in with you...
I had 1000mg rituxan a couple of days ago, nothing to report yet.
How you feeling?