This Is MS Multiple Sclerosis Knowledge & Support Community

Joan and Jeff get my vote. They would be awsome.

I think the CINE I am getting is not an upright just one where the patient is in the supine position. Would be nice if neuros would realize the benefits of upright vs. supine position but I don't think they do. One thing I have noticed in my case is that I suffer with cold hands and sometimes feet i...

I've been successful at getting my new neuro tp order a CINE. Will see what it shows. Next step will be to get an upright MRI. If it does show a problem, then what can one do about it? I have to ask myself is it more practical for me to spend the money on medical tests or home modifications to accom...

I have MS and have had it for 27 years, 14 which were asymootomatic. Started after the birth of my first child with a case of optic neuritis. My daughter had a baby at 22 and had a case of optic neuritis also about 6 months postpartum. MS? who knows. She has a daughter. I have 2 brothers and 4 siste...

I was just thinking about this the other day. Any chance that undersized posterior cranial fossa could play a role in this or am I totally missing the mark. I had shared with Dr. Flanagsn that both I and my daughter had postpartum optic neuritis and a sister that had c-sections with her two children...

Dr. Dake who treated me for CCSVI mentioned this as a possibility since I continued to have some problems after initisl imptovements. I think it may be related to hypoxia and some stroke patients deal with this as well. You can google it on here and see what you find or google it just in general.

While people need to understand the risks associated with this surgery, all surgery has risks. Why the focus on this surgery's (procedure) adverse events and not other surgeries adverse events? Heck living has risks. We don't live in a risk free world. Why do we cling to this life so like it's going...

My condolences Robbie on your father-in-law's death. I know you want to be strong for your wife. It is frustrating how this disease affects one's ability to do the little things that others take for granted. I then think of Joni Erickson Tada who has been a quadriplegic since age 17 and I think I do...

Adding my congratulations. Hope all goes well.

Nice to see you are still around Harry. I always appreciate your point of view. Don't post much these days since I try to stick to my data entry but it's nice to take a break once in a while.

Such a cute boy and I am sorry he has such an awful disease. Sending prayers and hugs Sam's way.

We have BC/BS and pay a lot for it. My husband is a small business owner. I certainly hope they don't expect a retroactive payment for the procedures I had. Seems like the insurance companies come out on the winning end. I'm not opposed to companies making money, but have a problem when they do so a...

Dr. Diana, Don't know if this will be any help to you but my now 23 year old daughter had postpartum optic neuritis (blurred vision in right eye) about 1and1/2 years ago. Same way my MS started and then 14 years of no symptoms and slow progression until 2009 Sister with pseudo tumor cerebri years ag...

The auto immune theory for MS has been sucessfully promoted since the development of the immunosuppressive drugs. If one was never diagnosed with RRMS, a 14 year hiatus from first CIS then I am a little confused why these drugs are promoted for MSers since they too are based on a theory. Lots of neg...

What if as a patient who has had the procedure your symptoms you are dealing with now is not tingling in the extremities but balance issues that never improved and may be some worse now as well as what I call a swimmy-headed feeling. Kind of like being drunk but I don't drink (maybe a few times in m...