This Is MS Multiple Sclerosis Knowledge & Support Community

Dr. S., Thank you so much for hanging in there for/with us. I hope you get back to plumbing ASAP!!!!!! Question: Are the other doctors in NY learning from your experiences? Is there a sharing of information between those who hope to start/continue testing/treating for CCSVI in the NY and surrounding...

I agree with cheer and msh ... If things were clear sailing that would be one thing but until the kinks are worked out, that doctor isn't going to stand any more of a chance in keeping it going.

Some descretion needs to be used...please..

Wow... never know what I'm going to learn! I've been on LDN for quite a while now and I was told to take it right before I went to bed, so that's what I do regardless of what time it is. I read somewhere that if you take it too early you might experience problems falling to sleep. Well, this just sh...

Ikulo .... I have had some positive changes but they have not all 'stuck' if that makes sense. Things seem to fluctuate quite a bit. I had improvement in fatigue for a while but it changes constantly now. The foot drop improved for a while but has returned (I sure hope it goes again!!!) I've had MS ...

Greetings all! I also had bone marrow aspiration then stem cell infusion by CTCI. So glad to hear of your good progress Ariehs! In one of your posts you mentioned relapses stopping for 3-5 years and I would like to get more information about this since I've not heard it mentioned before. I've re-rea...

You are the run away fav Mark.... go get 'em!

Trish

I've had stem cell treatment and am now looking for a vascular surgeon or interventional radiologist who is looking at CCSVI. I also have my name on more than one list for clinical trials... I think CCSVI is the way to go. After that, if there is still a level of disability I would consider more ste...

That's the kind of news that can keep you from sleeping! Seems like a long time but it'll go fast.

I'm new and want to ask if you have to send any specific information to Dr. Simka in order to be considered for the treatment. Thanks and GOOD LUCK!