Search found 63 matches
- Sun Dec 03, 2006 8:33 am
- Forum: General Discussion
- Topic: SPMS, what would you do?
- Replies: 38
- Views: 7308
I should up your dose to 200mg of doxicycline a day. Maybe statins too? Or LDN? gibbledygook, I am up to 200 mg of doxicycline a day (2 x 100 mg) and I added slow release B12 twice a day (1,200 mg) to my other supplements. I wonder should I remain on doxicycline at least one year? Am I harming myse...
- Tue Nov 28, 2006 4:38 pm
- Forum: General Discussion
- Topic: SPMS, what would you do?
- Replies: 38
- Views: 7308
Thak you all for your responses. Napay, I will discuss the combo treatment of Novantrone and Copaxone with my neurologist. I will also look into getting time release B12. Muu, my back problems are horrible. My right leg is so weak that when I do the dishes, I crunch over. People are noticing my limp...
- Mon Nov 27, 2006 5:49 pm
- Forum: General Discussion
- Topic: SPMS, what would you do?
- Replies: 38
- Views: 7308
SPMS, what would you do?
I have been off of Avonex since early July. I was one of the first patients to take it in North America but after a couple of episodes and nine years later, it is clear that Avonex is not doing much for me now. My MS progressed very slowly, affecting my right leg. It is my only problem now but it is...
- Mon Nov 27, 2006 5:12 pm
- Forum: General Discussion
- Topic: Drug Combo Shown to Reverse MS
- Replies: 3
- Views: 2430
This is an old article. I discussed it with my neurologist when it first appeared and we both agreed that it is dubious. Be very careful when you read these articles. For example, my neurologist has seen enough MS patients that when they're diagnosed, they think and act as if they're paralyzed. They...
- Thu Nov 16, 2006 2:41 pm
- Forum: General Discussion
- Topic: Feeling down
- Replies: 15
- Views: 5184
I've never done the fish oil, but I am going to stop on the way home and try to find it. If I took every supplement everybody has recommended to me since this all began, I wouldn't have to eat, but the D3 and fish oil are the two most recommended, so I'm going to give it a whirl. Make sure that the...
- Thu Nov 16, 2006 2:22 pm
- Forum: Avonex
- Topic: My experience with Avonex
- Replies: 18
- Views: 10748
My experience with Avonex
I was one of the first patients to try Avonex after a single episode. I took part in the CHAMPS trial roughly nine years ago and I was on Avonex until July of this year. There were definite benefits to taking the shot once a week. I mastered doing it right in my thigh, alternating thighs from one we...
- Thu Nov 16, 2006 2:02 pm
- Forum: General Discussion
- Topic: Feeling down
- Replies: 15
- Views: 5184
Re: Feeling down
I think I may have to finally accept this disease AND I DON'T WANT TO. It just pisses me off. Not from a why me place, but it just does anyway. Hi Lew, First, you're not alone. Come here vent, we all understand. We are all here to support each other through thick and thin. Second, if you need profe...
- Wed Nov 15, 2006 6:08 pm
- Forum: Antibiotics
- Topic: Calling all Minocycline Users
- Replies: 42
- Views: 56853
minocycline vs. doxycin
Interesting discussion here on minocycline. I actually started taking minocycline early July (50 mg daily). My neurologist prescribed it to me for back acne. I then saw a dermatologist who told me to increase it to 100 mg before I go to bed. Just two days ago, I saw my dermatologist again but he tol...
- Wed Nov 15, 2006 5:55 pm
- Forum: General Discussion
- Topic: Stem cells help dogs with dystrophy
- Replies: 0
- Views: 1539
Stem cells help dogs with dystrophy
This article should interest us all even if it isn't about MS. The potential for adult stem cells to treat all sorts of neurological diseases might be a lot more significant than we first thought. beyondms Stem cells help dogs with dystrophy By MALCOLM RITTER, AP Science In promising new research, s...
- Sun Nov 12, 2006 9:28 pm
- Forum: Introductions
- Topic: Hello from beyondms
- Replies: 5
- Views: 2643
- Sun Nov 12, 2006 9:07 pm
- Forum: General Discussion
- Topic: Researchers Closer To Cure For Multiple Sclerosis...
- Replies: 3
- Views: 2721
Researchers Closer To Cure For Multiple Sclerosis...
Researchers Closer To Cure For Multiple Sclerosis And Other Myelin-related Diseases 06 Nov 2006 A breakthrough finding on the mechanism of myelin formation by Jonah Chan, assistant professor of cell and neurobiology at the Keck School of Medicine of the University of Southern California, could have...
- Sun Nov 12, 2006 9:02 pm
- Forum: Stem Cells
- Topic: How stem cels helped this man
- Replies: 0
- Views: 2129
How stem cels helped this man
I am very weary of these stem cell procedures. Most of them are scams and the companies are frauds extorting money from desperate patients. Here is another "miracle" article but read it with your filters on: http://icnewcastle.icnetwork.co.uk/sundaysun/news/tm_headline=stem-cells-gave-me-m...
- Sun Nov 12, 2006 8:47 pm
- Forum: Regimens
- Topic: EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO
- Replies: 44
- Views: 20939
I am amazed at some of the posts on this thread and I will share them with my neurologist. I am off Avonex since early July. I started taking minocycline for some acne on my back and now my dermatologist suggested I take doxycin (100 mg before bedtime). He told me that doxycin is better in terms of ...
- Sun Nov 12, 2006 1:52 pm
- Forum: General Discussion
- Topic: Horrid story
- Replies: 27
- Views: 7328
Robin, Thank you very much for posting this information. I will discuss Campath with my neurologist even though he was skeptical of its efficacy given the results of some trials. beyondms In my case there was no chance of getting a placebo, the trial was not blinded. Also, given the aggressive natur...
- Sun Nov 12, 2006 1:34 pm
- Forum: General Discussion
- Topic: when MS is NOT MS
- Replies: 18
- Views: 5080