Search found 63 matches

by beyondms
Sun Dec 03, 2006 8:33 am
Forum: General Discussion
Topic: SPMS, what would you do?
Replies: 38
Views: 7308

I should up your dose to 200mg of doxicycline a day. Maybe statins too? Or LDN? gibbledygook, I am up to 200 mg of doxicycline a day (2 x 100 mg) and I added slow release B12 twice a day (1,200 mg) to my other supplements. I wonder should I remain on doxicycline at least one year? Am I harming myse...
by beyondms
Tue Nov 28, 2006 4:38 pm
Forum: General Discussion
Topic: SPMS, what would you do?
Replies: 38
Views: 7308

Thak you all for your responses. Napay, I will discuss the combo treatment of Novantrone and Copaxone with my neurologist. I will also look into getting time release B12. Muu, my back problems are horrible. My right leg is so weak that when I do the dishes, I crunch over. People are noticing my limp...
by beyondms
Mon Nov 27, 2006 5:49 pm
Forum: General Discussion
Topic: SPMS, what would you do?
Replies: 38
Views: 7308

SPMS, what would you do?

I have been off of Avonex since early July. I was one of the first patients to take it in North America but after a couple of episodes and nine years later, it is clear that Avonex is not doing much for me now. My MS progressed very slowly, affecting my right leg. It is my only problem now but it is...
by beyondms
Mon Nov 27, 2006 5:12 pm
Forum: General Discussion
Topic: Drug Combo Shown to Reverse MS
Replies: 3
Views: 2430

This is an old article. I discussed it with my neurologist when it first appeared and we both agreed that it is dubious. Be very careful when you read these articles. For example, my neurologist has seen enough MS patients that when they're diagnosed, they think and act as if they're paralyzed. They...
by beyondms
Thu Nov 16, 2006 2:41 pm
Forum: General Discussion
Topic: Feeling down
Replies: 15
Views: 5184

I've never done the fish oil, but I am going to stop on the way home and try to find it. If I took every supplement everybody has recommended to me since this all began, I wouldn't have to eat, but the D3 and fish oil are the two most recommended, so I'm going to give it a whirl. Make sure that the...
by beyondms
Thu Nov 16, 2006 2:22 pm
Forum: Avonex
Topic: My experience with Avonex
Replies: 18
Views: 10748

My experience with Avonex

I was one of the first patients to try Avonex after a single episode. I took part in the CHAMPS trial roughly nine years ago and I was on Avonex until July of this year. There were definite benefits to taking the shot once a week. I mastered doing it right in my thigh, alternating thighs from one we...
by beyondms
Thu Nov 16, 2006 2:02 pm
Forum: General Discussion
Topic: Feeling down
Replies: 15
Views: 5184

Re: Feeling down

I think I may have to finally accept this disease AND I DON'T WANT TO. It just pisses me off. Not from a why me place, but it just does anyway. Hi Lew, First, you're not alone. Come here vent, we all understand. We are all here to support each other through thick and thin. Second, if you need profe...
by beyondms
Wed Nov 15, 2006 6:08 pm
Forum: Antibiotics
Topic: Calling all Minocycline Users
Replies: 42
Views: 56853

minocycline vs. doxycin

Interesting discussion here on minocycline. I actually started taking minocycline early July (50 mg daily). My neurologist prescribed it to me for back acne. I then saw a dermatologist who told me to increase it to 100 mg before I go to bed. Just two days ago, I saw my dermatologist again but he tol...
by beyondms
Wed Nov 15, 2006 5:55 pm
Forum: General Discussion
Topic: Stem cells help dogs with dystrophy
Replies: 0
Views: 1539

Stem cells help dogs with dystrophy

This article should interest us all even if it isn't about MS. The potential for adult stem cells to treat all sorts of neurological diseases might be a lot more significant than we first thought. beyondms Stem cells help dogs with dystrophy By MALCOLM RITTER, AP Science In promising new research, s...
by beyondms
Sun Nov 12, 2006 9:28 pm
Forum: Introductions
Topic: Hello from beyondms
Replies: 5
Views: 2643

I thank you all and I look forward to sharing and learning from this great community.

beyondms
by beyondms
Sun Nov 12, 2006 9:07 pm
Forum: General Discussion
Topic: Researchers Closer To Cure For Multiple Sclerosis...
Replies: 3
Views: 2721

Researchers Closer To Cure For Multiple Sclerosis...

Researchers Closer To Cure For Multiple Sclerosis And Other Myelin-related Diseases 06 Nov 2006 A breakthrough finding on the mechanism of myelin formation by Jonah Chan, assistant professor of cell and neurobiology at the Keck School of Medicine of the University of Southern California, could have...
by beyondms
Sun Nov 12, 2006 9:02 pm
Forum: Stem Cells
Topic: How stem cels helped this man
Replies: 0
Views: 2129

How stem cels helped this man

I am very weary of these stem cell procedures. Most of them are scams and the companies are frauds extorting money from desperate patients. Here is another "miracle" article but read it with your filters on: http://icnewcastle.icnetwork.co.uk/sundaysun/news/tm_headline=stem-cells-gave-me-m...
by beyondms
Sun Nov 12, 2006 8:47 pm
Forum: Regimens
Topic: EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO
Replies: 44
Views: 20939

I am amazed at some of the posts on this thread and I will share them with my neurologist. I am off Avonex since early July. I started taking minocycline for some acne on my back and now my dermatologist suggested I take doxycin (100 mg before bedtime). He told me that doxycin is better in terms of ...
by beyondms
Sun Nov 12, 2006 1:52 pm
Forum: General Discussion
Topic: Horrid story
Replies: 27
Views: 7328

Robin, Thank you very much for posting this information. I will discuss Campath with my neurologist even though he was skeptical of its efficacy given the results of some trials. beyondms In my case there was no chance of getting a placebo, the trial was not blinded. Also, given the aggressive natur...
by beyondms
Sun Nov 12, 2006 1:34 pm
Forum: General Discussion
Topic: when MS is NOT MS
Replies: 18
Views: 5080

Hughes (antiphospholipid) syndrome (APS) can mimic multiple sclerosis (MS). The authors of this article believe that testing for aPL should become routine in all patients with MS: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10670410&dopt=Abstract Anothe...

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