Search found 154 matches

by ElMarino
Sat Dec 26, 2009 4:11 pm
Forum: General Discussion
Topic: Two articles regarding stem cells 'reversing MS'
Replies: 24
Views: 5137

You know Sou, there was some good news earlier in the month. I am (fairly) excited by the research being conducted by Dr Zhegang at the Boston Children's Hospital and Dr Smith's team at the Carleton University in Canada. Both are investigating nerve regeneration resulting from the repression of a mo...
by ElMarino
Sat Dec 26, 2009 3:43 pm
Forum: General Discussion
Topic: spinal tap advice
Replies: 11
Views: 2545

My one took four attempts and brought on the worst relapse I ever did have. One of my worst experiences. I'd say, refuse it at the risk of missing a diagnoses of something worse than MS. If you feel you have to go through with it, ensure that whoever is performing the procedure has a great deal of e...
by ElMarino
Wed Dec 23, 2009 5:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FAST TRACKING CCSVI DIAGNOSIS AND TREATMENT ! QUESTION ???
Replies: 5
Views: 2363

If Zamboni's findings are replicated I suppose that the treatment has still to be approved by the FDA and other regulatory bodies. But I don't think that it will require fast tracking since angioplasty isn't an unkown.
by ElMarino
Mon Dec 21, 2009 7:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jugulars used only in supine position?
Replies: 14
Views: 4035

Sorry to revive an old thread, but I founmd this interesting. I have slowly got used to having only a few hours sleep in bed. This has slowly become a habit because the longger I sleep in bed the worse my symptoms are. My body just slowly insisted that this would be the amount of sleep that I get. I...
by ElMarino
Mon Dec 21, 2009 6:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A doctor's questions re: CCSVI
Replies: 87
Views: 19278

Re: A doctor's questions re: CCSVI

A doctor posted the following comment with some intelligent questions concerning the CCSVI theory on the Buffalo News web site article. I posted a quick answer that they are finding pressure gradients across stenosis and they are finding problems with the azygous vein, but perhaps some people have ...
by ElMarino
Mon Dec 21, 2009 6:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Green Tea and Iron
Replies: 1
Views: 1964

Green Tea and Iron

http://www.ncbi.nlm.nih.gov/pubmed/16470637

According to the people who wrote this paper Green Tea acts to chelate iron and it tastes good too (that last bit is my opinion, not necessarily theirs).
by ElMarino
Sat Dec 19, 2009 3:49 pm
Forum: General Discussion
Topic: activities and having fun
Replies: 2
Views: 1742

I make music. It's one of the only things that I do now that I used to do before the MS. But, before I met my girlfriend, downloading films and watching them on a wall with a projector saved me. I have got through a list of the top hundred films of the 40's, 50's and 60's, I have watched every Russi...
by ElMarino
Sat Dec 19, 2009 3:36 pm
Forum: General Discussion
Topic: Experience with Optic neuritis
Replies: 7
Views: 2346

Poor you. I'm sorry to hear about your trouble. I was never as bad as you but I have recovered a great deal from where I was five years ago. I had lost sensitivity to light and the centre of my visual field was completely blurred. Over three years I recovered functional vision. I still have blurrine...
by ElMarino
Sat Dec 19, 2009 3:12 pm
Forum: General Discussion
Topic: Two articles regarding stem cells 'reversing MS'
Replies: 24
Views: 5137

sou, I know, the news is never that good ):

I really need some good news.. If I hear of any I will let you know :)
by ElMarino
Wed Dec 16, 2009 8:29 am
Forum: General Discussion
Topic: Does anyone else think that anti-spasticity drugs are crap?
Replies: 16
Views: 4888

Baclofen was useless but Tizanadine has some effect on me.

I just received botox injections in my abductor and hamstring muscles. That was a week ago and it takes effect after one week to ten days. Nothing yet but I still have three days to go.. I'll let you know if anything happens..
by ElMarino
Mon Dec 14, 2009 3:56 pm
Forum: General Discussion
Topic: Two articles regarding stem cells 'reversing MS'
Replies: 24
Views: 5137

Yes, newspaper articles and TV interviews don't give too much away!
by ElMarino
Mon Dec 14, 2009 3:07 pm
Forum: General Discussion
Topic: Two articles regarding stem cells 'reversing MS'
Replies: 24
Views: 5137

Two articles regarding stem cells 'reversing MS'

Most of us will be familiar with the trials involving bone marrow derived stem cells.Here are two articles detailing an Australian man and two American men. It sounds as though all three have (had) RR, two of the men were younger, one of those was wheelchair bound. http://www.frcblog.com/2009/12/mul...
by ElMarino
Fri Dec 11, 2009 5:23 pm
Forum: General Discussion
Topic: Barometric Pressure
Replies: 8
Views: 4719

When it's humid the stiffness in my legs is always much worse.
by ElMarino
Thu Dec 10, 2009 6:53 pm
Forum: General Discussion
Topic: The Caribbean sun anemone...
Replies: 0
Views: 1355

The Caribbean sun anemone...

...disables its prey with a potent neurotoxin that could provide a new treatment for the disabling auto-immune disorder, multiple sclerosis.


http://www.lifescientist.com.au/article ... 304&fpid=1
by ElMarino
Wed Dec 09, 2009 9:25 am
Forum: General Discussion
Topic: News On Axonal Regeneration
Replies: 0
Views: 1471

News On Axonal Regeneration

Well, it could be (a lot) better but, still, it's one of the most encouraging reports on axonal regeneration that I have seen to date.. http://www.eurekalert.org/pub_releases/2009-12/chb-cin120809.php Coaxing injured nerve fibers to regenerate by disabling 'brakes' in the system Mouse study suggests...

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