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by hope410
Sat Mar 13, 2010 11:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FCSC in Vancouver doing the MR imaging
Replies: 47
Views: 13075

Also, we were all encouraged to send the technicians the procedures provided by the well known doctors performing the investigations. I gather FCSC was also provided the same printouts many times by patients so they were as informed as any other technician outside of Zamboni, Stanford or Poland abou...
by hope410
Thu Mar 11, 2010 11:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stanford Relapses?
Replies: 39
Views: 11929

I also thank those who continue to update us on how they're doing post-treatment.

I would love to hear MRI results post-treatment compared to pre-treatment too. That would be really helpful in objectively assessing the improvement in symptoms.
by hope410
Thu Mar 11, 2010 11:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI concerns
Replies: 57
Views: 12701

I think we all do our own risk/benefit analysis when it comes to what we're willing to do in the name of addressing our disease, at what point we're willing to do it, and at what cost. Some people here are willing to take far greater risks than I am in pursuing CCSVI even though their disease status...
by hope410
Thu Mar 11, 2010 11:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Back home, safe and sound.
Replies: 39
Views: 9645

Glad to hear you made it through the procedure in good stead. I too have been reading of your trials over the past while. Anyone who has read this forum is well aware that the treatments used to address the stenoses were originally designed for arteries that are very different structures than veins....
by hope410
Thu Mar 11, 2010 11:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angiogram and Venogram scheduled!
Replies: 25
Views: 5669

I have been reading all the CCSVI info for some time with interest. I congratulate you on your initiative to find a local doctor with the skills and willingness to look into this. Please keep us updated on what comes of it. If he is prepared to do the angioplasty if it's deemed necessary, I'd want t...

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