This Is MS Multiple Sclerosis Knowledge & Support Community

Re: Cure Or Bust's post: I'm surprised to hear that doppler is the first test to have. There seems to be a certain amount of confusion and no real clear approach to the testing we should get. It would be extremely valuable if we can get discussion and agreement going here as to the procedures and pr...

Cheer -- If I have a private MRV at my local university hospital by an IR/Vasular guy how does that information contribute to the worldwide connection of CCSVI & MS? Where does my data go other than posting it to everyone on TIMS & Facebook. I am questioning how individual testing contribute...

Today is Day One of Inclined Bed. So far, it's great. I felt wide awake this first morning. Didn't need to grope for that first cup of black tea before I could function, wasn't grumpy. I also had a great massage by a new therapist yesterday so that may have had something to do with it. I'll track ho...

I was embarrassed to ask that question and now I'm really glad I did.

Mark, I'm printing your reply so I can view the pics and read at the same time.

Algis, thanks for clarifying the GE machine.

Jen,

Thanks for your "silly" response, which totally was Not silly. Yes, I was referring to the image on the first page. I get lost in here sometimes. TIMS FOG.

This is a valuable thread.
Thanks.

Wow, these are amazing pictures to look at. I'm so impressed with Mark's skill in getting them to us. Thanks to you both. However, I can't really know what I am seeing or even quite follow Mark's comments. Perhaps further study will enlighten me. My question is, were these done on a 1.5 Tesla? I can...

What about Zamboni's patients who have had angioplasty? Can we get any info on their status.

What about others who have had angioplasty? Info, please.

Thanks,

How do we get in contact with Dr. Simka? It seems everyone but me has been in touch with him. Would someone print his email for me so I can stop this fruitless search, please.

Thank you.

Thanks, Sharon. I kind of figured that from looking at my Anatomy Coloring Book. ha ha. In noodling through the TIMS threads, I found a photo of what I guess is an MRV complete with coded veins but I can't find it again. Does anyone know what I'm referring to & which thread it is in? I can see I...

I'm still so new at this I don't know if we're talking about the internal or external jugulars. Just for clarification. Thanks.

I sent an email to Meredith Vieira of the Today show. Her husband, Richard Cohen, has had MS for many years now. She did a piece last March 2009 on Bioness medical equiopment for MSers. It was a decent piece. Good enough to get me to buy the devices. I got a very nice form reply saying they'll get i...

We live near Univ of Calif Med Center in San Francisco. If we can get our neuro to write a scrip for MRV with contrast, do we then call the Vascular Department, Interventional Neuroradiology or just plain radiology? Do we then tell them we want an MRV on a 3 Tesla and a 2d or 3d? I am asking this qu...

Talking about jugulars--are you talking external jugs or intenal or both?

I've read this letter on another thread. So I'll ask the question I wanted to ask then: Who is Dr. Ashton Embry and why do we care?

Thanks

NMSS sent emails today or yesterday to neurologists and researchers asking for study proposals for CCSVI. Those of you who are in touch with radiologists, etc. who might not be on the NMSS email list, have them get in touch with NMSS immediately. NMSS is on board with money! That's all I know. I did...