This Is MS Multiple Sclerosis Knowledge & Support Community

I am not on any ms med at this time. I am getting alot of pressure from my neuro to go on Tysabri. I am trying to hold out until BG12 comes out. I am not real happy about the risk of pml.. but more unhappy at the risk of the rebound effect. Keeping in mind Tysabri will have to be stopped at some poi...

I have to say I have had ms for many many years and can't say I have had too many stomach issues. I have had many poyps removed. I have a big family history of colon cancer.
If I did have your history I would really follow up on it though.. best wishes with it.. it seems worth the path.......

Do not rush in on any med I have learned.. and don't be the first nor the last. Good luck with your choices.

Just a note here. It is best not to give up your neuro if you decide to go without the injections. Some where down the road you may change your mind. Then you will have to start all over. It is never wise to throw the baby out with bath water. Usually a dr will require a once yr visit or 6 months if...

Have you considered he may have gotten something from the zoo? Has he been tested for a few things?

The spinal is really not bad at all. The MRI is a non evasive test. To be honest nothing is as bad as not knowing. I would think living not knowing and getting ER care is the worst. We have all lived that way in the beginning. Mine was not by choice, so by all means I would say if you now have that ...

MS is unpredicatable it can have remissions and relapses. Beta will not work right away. It can take a few month to build up in your system. It is not fair to quit any medication right away. If it is still not controlling your relapses after 6-8 months then I would consider maybe one of the other on...

I was on Gilenya for a year and one half. I stopped it and 4 months later I am having a very bad flare. I believe in the rebound effect for G. It is not proven to happen in G. But I have been told it can happen for all the drugs that "tank" the immune system. If I had known this I would no...

Zac can I ask did they put you on any DMD when you stopped TY.. ? They said I could take the test but it will now take a month to get the results back.
Fast forward to one month it will be Oct22.. just that much closer to BG-12 Did you see any gains on TY?

I thought knowing was part of the touch program. I just found out it was not. I told them at first I was so sure I wanted to start I was fine. Then I backed out, now I am glad. Not sure he is what I call responsible.
But he is all I have he has the script in his hand right now.

Thanks for the input, I have not had the test yet. They are not going to test me first. (unless I request it and it would change my mind) Since it takes so long to get back the results.. and all the expense of the test. Biogen told me it to take it. They said the test was free to me.. Biogen has bee...

I am still walking .. I think I can hold out for BG-12. I think it is the right thing to do. I know that is what I should do. Any benefits gotten from Ty would only be for a few years.. then it would be lost..... and at the risk of other things. Infections and pml.. so I might get a really great 3-4...

I am trying to decide if I should start Tysabri. One of my biggest fears is the rebound effect of having to stop the Tysabri. I don't have any garantee I can take it. I guess 2 yrs max. Bg-12 is soon to come out we hope. I know it is not suppose to be as good. I am progressing and that scares me. I ...

Then your a fan of the other type? Do you have success with it? Have you tried the other without success?

Was wondering if anyone tried it? It is high in omega 3's. Has the GLA.. it really looks a lot like what we need. I am not talking about the stuff made from weed. I am talking about what comes from the vitamin store. I know many of take flax and fish oil. It looks like to me this stuff would make a ...