These questions have been swimming around in my head for a while also. Thanks for writing them down. I sure hope someone responds with answers from their trial investigators. I wouldn't enjoy a repeat of childhood vaccinations but if this is a possible cure I'll gladly roll up my sleeve.
Marcia
Search found 357 matches
- Mon Nov 05, 2007 11:29 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Immune state after HDC ?
- Replies: 11
- Views: 4455
- Sat Nov 03, 2007 12:00 pm
- Forum: General Discussion
- Topic: How to use canes. The psychological leap.
- Replies: 26
- Views: 7613
canes
About 6 months prior to my ms dx, I made it to the emergency room twice from injuries from falling down. My gp told me that when he was in the army the army physicians had a meeting once a year to discuss non-combat causes of death and injury within their ranks. He said that statistically, more deat...
- Sat Nov 03, 2007 10:36 am
- Forum: General Discussion
- Topic: HPV and MS
- Replies: 5
- Views: 2599
I think i will hold off
Thanks so much for that information. I think I will hold off for now. Hopefully, I will be able to table this one for a few more years. Maybe by then, more safety and efficacy data will surface. In the meantime, I will be vigilantly aware of the friends (boyfriends especially) she hangs out with. Ge...
- Fri Nov 02, 2007 6:50 pm
- Forum: General Discussion
- Topic: HPV and MS
- Replies: 5
- Views: 2599
HPV and MS
Has anyone ever heard of a link between HPV and MS? My daughter is at the age to receive the HPV vaccine but I'm hesitant to give the okay. I would never have had second thoughts about it if it weren't for my ms dx.
Marcia
Marcia
- Thu Nov 01, 2007 10:04 am
- Forum: General Discussion
- Topic: ECTRIMS 2007
- Replies: 7
- Views: 2653
passing ms on
I really hope this is what triggered the ms in me. It's too late for me unless they find a cure but I would worry less that I will pass ms on to any of my kids.
- Thu Nov 01, 2007 5:37 am
- Forum: General Discussion
- Topic: ECTRIMS 2007
- Replies: 7
- Views: 2653
mono and ms
This is the one of the possible MS causes that I'm really starting to believe in. When I was in 6th grade, many moons ago in the 70's, I had mono. It was considered a text book case (literally) and my pediatrician took pictures of my red rimmed puffy tired eyes for the textbook he was writing at the...
- Fri Oct 26, 2007 11:28 am
- Forum: General Discussion
- Topic: Good MS Doctor In Kentucky
- Replies: 7
- Views: 3309
Twyman
I like him very well. Good luck and please give me some feedback if or when you see him. Thanks!
- Fri Oct 26, 2007 11:18 am
- Forum: General Discussion
- Topic: Spironolactone - any affect on MS
- Replies: 2
- Views: 3019
Minocycline
Yes, I took minocycline for about 3 years from 1991 - 1994 until I felt that I was immune to it , then tried accutane, then tried bactrim for a couple years, then tried Retin A, then accutane again, then Keflex for a couple of years. In the midst of all these different treatments I got a horrible ca...
- Fri Oct 26, 2007 6:09 am
- Forum: General Discussion
- Topic: Spironolactone - any affect on MS
- Replies: 2
- Views: 3019
Spironolactone - any affect on MS
I used to take spironolactone for my skin but quit back in August of 2006 when I was diagnosed. I have done a google search but haven't found any info about it's possible affects on MS. Does anyone have any comments on it's use and if it affected their condition in any way? I would like to go back o...
- Wed Oct 24, 2007 9:50 am
- Forum: General Discussion
- Topic: Good MS Doctor In Kentucky
- Replies: 7
- Views: 3309
Lexington Doctors
Hi! I have a group of doctors in Lexington, KY called Associates in Neurology(AIN) that I was diagnosed by and still come to. There are several neuros on staff plus some PHD's who research different conditions. Dr. Cary Twyman is one of the doctors and his "pet disease" is MS. He was instr...
- Wed Oct 24, 2007 6:53 am
- Forum: Introductions
- Topic: Hello you guys - I'm new here!
- Replies: 5
- Views: 2505
Thanks for the encouraging words!
You guys are great! I think I really do need to feel as if I'm part of a community here. Back before MS, I had triplets and I remember always feeling like I was part of a carnival act and it felt wonderful to be around other families with multiples. It made me feel like I was around people who knew ...
- Tue Oct 23, 2007 7:42 am
- Forum: Introductions
- Topic: Hello you guys - I'm new here!
- Replies: 5
- Views: 2505
Hello you guys - I'm new here!
It's been a little over a year since I've been diagnosed and I still keep looking over my shoulder thinking my neurologist must be talking to someone else. I got the news right before the Tovaxin IIB trial got underway and was a prime candidate. I had my blood drawn and lucky me I had the t-cells ne...