This Is MS Multiple Sclerosis Knowledge & Support Community

Today is 1 week post procedure, wanted to update the blog with some new videos but Blogger is currently under maintenance so I thought I would post them here for the time being. Below you'll find three videos, similar to pre-procedure videos you can find one the blog @ ourmsjourney.blogspot.com One ...

Courtney said she was in a bit of pain during her ballooning, said it felt like the fentanyl would wear off slightly before the ballooning was finished. The only discomfort she has now is pain in her chest/back when she sneezes. Edit: additionally, Courtney is mentioning today that she does have som...

I don't treat MS, I find and treat issues with blood flow.

Hate to see this thread die down, here are a couple of pictures of my wife's azy which was recently treated by Dr S.

Great thread docs!

I don't understand why it has to be one way or another? Why is everyone so intent on creating a line in the sand and forcing you to decide which line to stand on. One person points a finger at the Pharma industry, and the response is generally "well look what these other Dr's are doing" (i...

She is doing well, at this point continuing to see little changes in the way she feels (literally and figuratively). Bladder urgency is something that I would add to the list of improvements. I just posted on Dr S's thread with a few details and will continue to keep the blog updated every week or t...

Dr S. Thanks again for everything you've done, and continue to do! Courtney is doing well, still a little sore in the chest area if she sneezes or coughs, but other than that recovery has been smooth. A couple of things I'd like to share to date: 1) Bladder urgency seems much improved. She is no lon...

Have update the blog (link below), thats the best place to follow improvements, will pop in here as well from time to time.

Cheers,
John

Filmmaker wrote:Hum Johnnymac, why is IRIS a bad thing, maybe it was trying to rebuild brain tissue.... and I think this resolves spontaneously anyway...

Swelling in the brain is not a good thing

Wow J... You brought tears to my eyes, our wedding 8 years ago we had nothing from the bible read, instead it was passages of Gibran that we pledged our love for one another to. Your quote was quite unexpected, and perfect. Day 2. Courtney's feet are still warm, there is still some spasticity but it...

Maggie, make sure you and your husband ask your neuro about the risk of IRIS when discontinuing the use of Tysabri. My wife had a rather scary set of symptoms when she stopped Tysabri (was on it for 2 years), she had a near constant tingling on the back right side of her skull, developed severe atax...

Cheerleader posted this in a thread on the general forum, but not sure how many folks actually read anything but the CCSVI area, so wanted to put a link to it here: http://www.thisisms.com/ftopict-16474.html The big business of MS is a huge burden in the progress of CCSVI as a condition, its testing...

Hello TIMS, I haven't posted as much as I used to, but want to share our experience with Courtney's liberation procedure yesterday. Yesterday we arrived at the clinic a little before 11am, had a wonderful consultation and examination with Dr Sclafani who took the time to explain everything to us, an...

we were caught in this BCBS mess, and I would implore everyone faced with insurance challenges to write your local government, senators, congressmen, and anyone who has a say/vote in healthcare legislation. Talk to your HR/Benefits department and find out who your patient care advocate is and get in...

I spoke with Dr Lin at Baylor yesterday regarding after care for Courtney. He seems like a really nice guy and I'm getting him and our Dr in NY in touch to consult. I can't confirm how they are currently performing their diagnostics or overall experience level with CCSVI but its a great thing to see...