Search found 82 matches
- Wed Feb 10, 2016 8:10 pm
- Forum: Daily Life
- Topic: Bladder issues?
- Replies: 9
- Views: 6287
Re: Bladder issues?
D mannose powder helps prevent UTIs better than cranberries pills or juice
- Wed Feb 10, 2016 7:56 pm
- Forum: Drug Pipeline
- Topic: Has anyone here had BOTOX injections in the bladder ?
- Replies: 27
- Views: 23976
Re: Has anyone here had BOTOX injections in the bladder ?
I haven't tried Botox for the bladder but tried Botox for the face about 5 yrs ago. The buried made my legs weaker for about 3 days then went back to normal( my normal). Do other MSers experience the leg weakness after bladder bkrox shots? I have been wearing pads for yrs w detrol. Tried detrol rece...
- Wed Feb 10, 2016 7:23 pm
- Forum: Daily Life
- Topic: My wife has MS and libido is gone.
- Replies: 19
- Views: 17014
Re: My wife has MS and libido is gone.
Maybe ck hormones
- Wed Feb 10, 2016 7:05 pm
- Forum: Daily Life
- Topic: So, what is the most affordable treatment for MS?
- Replies: 23
- Views: 15049
Re: So, what is the most affordable treatment for MS?
Dr Ciscerio in Brazil, high dose Vitamin D protocol. No side effects
- Mon Feb 08, 2016 1:15 pm
- Forum: Coimbra High-Dose Vitamin D Protocol
- Topic: Coimbra Protocol Summary
- Replies: 76
- Views: 117740
Re: Coimbra’s Protocol Summary
I tried LDN yrs ago. Didn't help me. I also have insomnia problem which LDN made worse. So I choose to get off LDN, take oxy for pain and Lunesta for sleep. Love Lunesta! W oxy still not pain free
- Sun Feb 07, 2016 4:37 pm
- Forum: Coimbra High-Dose Vitamin D Protocol
- Topic: Coimbra Protocol Summary
- Replies: 76
- Views: 117740
Re: Coimbra’s Protocol Summary
I am following Dr Ciscero's C protocol. Started in 7-1-15. Stopped for 1 mo in 10-1-15 by another doctor....I felt worse so started back know high dose D. I get the blood work every 6 Wks by a local doc to ck my PTH levels. My body is VERY resistance to D. I had Ph consult w Dr Sanja on 9-1-15. It t...
- Mon Jan 25, 2016 7:38 pm
- Forum: General Discussion
- Topic: MS mimics and bartonella: more attention needed?
- Replies: 2
- Views: 1248
Re: MS mimics and bartonella: more attention needed?
Yes, Bart/Lyne triggered MS issues doe me. Beg igenex testing NOT lab Corp or quest!
- Mon Jan 25, 2016 7:11 pm
- Forum: General Discussion
- Topic: How do I buy HSCT treatment?
- Replies: 11
- Views: 2170
SCT
I went to StemGenex in CA. Used own fat cells. Didn't work for me. I also have Lyne. My friend went to mex for embryo SCT she is still in wheelchair. Didn't help her. If I do it again. Will go to celltex in Houston tx
- Mon Jan 25, 2016 7:06 pm
- Forum: General Discussion
- Topic: Disappointed
- Replies: 8
- Views: 1332
Re: Disappointed...pain
My MS pain turned out to be Lyme/confection pain. Get ingenex lyme testing nit lab Corp or quest not sensitive enough
- Mon Jan 25, 2016 7:04 pm
- Forum: General Discussion
- Topic: Disappointed
- Replies: 8
- Views: 1332
Re: Disappointed..pain
When j was dx w MS 26 yrs ago..had a lot of pain legs, etc. the neuro says..huh..normally there is ni pain when MS. Then 10 yrs after found out I had Lyme/co infections. When pain..look at Lyme
- Thu Jan 14, 2016 8:42 pm
- Forum: General Discussion
- Topic: Copaxone vs eating those 4 amino acids
- Replies: 12
- Views: 2235
Re: Copaxone vs eating those 4 amino acids
I think injecting the proteins triggers a different immune reaction. Ingesting would break down the proteins. I have been on copaxone for yrs. when I try to stop I get worse so it is helping I inject w/o the auto injector ..less painful for me
- Thu Dec 24, 2015 6:13 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: BG-12 and IC
- Replies: 2
- Views: 4798
Re: BG-12 and IC
I have taken BG 12 on/off for a couple of yrs. seems like every time I try it I get more bladder infections and more bladder pain/issues. I wasn't dx w IC but have overactive bladder. Does anyone else have more bladder problems w tec/BG 12?
- Tue Dec 22, 2015 8:29 pm
- Forum: Coimbra High-Dose Vitamin D Protocol
- Topic: My experience with high doses vitamin D
- Replies: 24
- Views: 35231
Re: My experience with high doses vitamin D
I am trying the high dose D. I had low D levels even though a doc put me in D2 3 yrs ago w/o knowing better! I have tried Lyme treament, SCT, LDI, EAP,tecfidera, Prokarin, BV shots, copaxone. I started D this past July..it took a couple of months to learn that my PTH levels weren't low enough ..then...
- Tue Dec 22, 2015 7:32 pm
- Forum: Aimspro
- Topic: AIMSPRO THE MIRACLE DRUG I WAS ON
- Replies: 3
- Views: 31764
Re: AIMSPRO
I am in USA and working w my local doc to try Aimspro. Anyone else in US using this?
- Tue Dec 22, 2015 7:29 pm
- Forum: Aimspro
- Topic: Coming to America... ?
- Replies: 1
- Views: 7394
aimsoro
I am working w my local doc wanting to try Aimspro. I live in TX. Anyone in USA trying this?