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by Loobie
Mon Jul 11, 2011 8:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 10082

This is really distressing. Kathleen was one woman who had a major impact from CCSVI treatment. It was so apparent because there was just a massive correlation. She'd feel great right after surgery. Then she'd start feeling awful and sure enough she'd restenosed. Well when that got fixed, she was go...
by Loobie
Fri Jun 24, 2011 3:12 am
Forum: General Discussion
Topic: MS and Sexual Relationships
Replies: 42
Views: 11651

Ken started it! Bubba, I have a friend that was going through low T and he used Andro gel (probably what you're describing) and it helped in that area a lot. Don't forget dumbass!
by Loobie
Thu Jun 23, 2011 2:21 pm
Forum: General Discussion
Topic: MS and Sexual Relationships
Replies: 42
Views: 11651

Bubs,

I think I remember talking about this, but did you get the Low T test?
by Loobie
Thu Jun 23, 2011 2:19 pm
Forum: General Discussion
Topic: Has anyone read this book - 'No more MS'
Replies: 8
Views: 3827

One thing is for certain. Just as there are SOME remarkable reports out about having the CCSVI procedure done, there are just as many re; nutrition. Once again, since it seems to be a miracle for some and not others, it just appears that MS is so many things and not just one or MOST would benefit if...
by Loobie
Wed Jun 15, 2011 4:27 am
Forum: General Discussion
Topic: Lyme disease as the real cause of MS; an interesting read
Replies: 9
Views: 3346

That's what I'm going to do Joan; find a lyme literate doc. That movie does make you go hmmm. Not necessarily about the connection to MS, since there are so many, but the fact that those guys on the IDS appeared to be going "lalalala! I"m not listening to you!" with the data. Some of ...
by Loobie
Tue Jun 14, 2011 8:17 am
Forum: General Discussion
Topic: Lyme disease as the real cause of MS; an interesting read
Replies: 9
Views: 3346

Lyme disease as the real cause of MS; an interesting read

It is quite possible this has already been posted. Forgive me if this is redundant, but I found this article very interesting. Especially after watching the movie "Under our skin".

http://www.owndoc.com/lyme/multiple-scl ... -cover-up/
by Loobie
Sun Jun 12, 2011 6:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: JUST THE TRUTH
Replies: 6
Views: 2163

You sound just like me BC. Not back to the original, but doing better. Overload of my CNS (too much stress, exertion and heat) and I still feel like ass, but overall, doing lots better than before. As I've said many times, nothing yet can undo damage that has already occured.
by Loobie
Thu Jun 09, 2011 12:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kathleen Lynch (klynch56)
Replies: 39
Views: 10082

I hope she's ok. She's a trip for sure, but you can never question her dedication to all of this. Man I hope she's well.
by Loobie
Thu Jun 09, 2011 12:35 pm
Forum: Mavenclad (Cladribine)
Topic: Cladrabine - Movectro
Replies: 64
Views: 21908

I just read this entire thread and it kind of cracks me up. I've seen some hair splitting in my time, but this thread takes the cake! But along the way, there were some actual, fact based snippets for the original poster to contemplate/research further. So I hope the original poster got the the help...
by Loobie
Wed May 18, 2011 12:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a ccsvi story told in URLs
Replies: 4
Views: 1877

????????????
by Loobie
Wed May 18, 2011 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NEW: Flow quantification by Dr. Haacke
Replies: 10
Views: 3228

Dr. Siskin uses the flow 'stuff'. He's all about the flow and not just stenosis now.
by Loobie
Wed May 18, 2011 12:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LDN- pre/post Liberation?
Replies: 14
Views: 2882

If you stick with LDN, you will get over the sleep disruptions. Taking it during the day is a decidedly bad idea. I know about circadian rhythms, by there are other rhythms that our bodies go through during the day that are more than just 2x/24 hr. I tried taking it in the morning and felt actually ...
by Loobie
Tue May 17, 2011 3:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neuromyelitis Optica
Replies: 6
Views: 1994

If it's there, it's there in transverse myelitis, which is the 'myelitis' part of NMO. This is what my dx was for years. The japanese don't discriminate. To them, NMO is called Optico Spinal Multiple Sclerosis.
by Loobie
Tue May 10, 2011 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What was your MS "Trigger"
Replies: 37
Views: 7315

Interesting thread. I don't know how any of us can say what 'gave us' our MS. I mean what about all the people who MS just hit them out of nowhere? I think saying something triggered your MS is an exercise in futility. How do you really know?
by Loobie
Sat May 07, 2011 7:33 am
Forum: General Discussion
Topic: head pressure, please help!!
Replies: 11
Views: 2546

I had a 2 year long headache during my dx period and afterwards. I got a prescription for 800mg Ibuprofen and took one every six hours religiously. By the time ai got through with 2 bottles, the headache was only a transient thing. I have no earthly idea if the IB was responsible, but my theory is t...

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