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by PCakes
Thu Apr 21, 2011 10:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 6112

Re: I am an ass...

Started at 13 been smoking for 20 year's...still do...dumb ass right? nope, an innocent victim of greed. A wonderful friend of mine, life of the party, used to smoke. He also used to drink a little too much. Quit both after a peripheral artery disease scare and is healthy today. On occasion he woul...
by PCakes
Thu Apr 21, 2011 9:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 6112

i was smoking before i was born. mom smoked, dad smoked, i started at 13. as a rebellious teen i tried other no-nos. happily i was able to stop at 31. i was diagnosed with ms at age 48 (symptoms since 33). i don't personally see any connection .[/list] I'm sorry elyse but.. 8O imho systemic venous ...
by PCakes
Wed Apr 20, 2011 8:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 6112

I have never smoked but was exposed to second-hand smoke in a big way as were most in the 40+ age group. :(
by PCakes
Wed Apr 20, 2011 8:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: the Eye Doc blog
Replies: 92
Views: 22516

PCakes! So nice to "meet" you! I <3 your name and avatar, and am unable to look at either without smiling. :) YES!!! EDS and inner ear disorders!!! My sister was also diagnosed with Meniere's wow! http://www.hear-it.org/page.dsp?page=1841 thanks! Can you bookmark PrettyIll dot com? will d...
by PCakes
Wed Apr 20, 2011 7:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: the Eye Doc blog
Replies: 92
Views: 22516

Hi Dr Diana, Nice to meet ya :) Quick question.. Does Ehlers-Danlos carry auditory/inner ear symptoms? I have a sibling suffering with, what was diagnosed as, 'Meniere's' . There are three of us.. I with a CIS MS diagnosis, another with as many connective tissue issues a body might carry and the one...
by PCakes
Tue Apr 19, 2011 8:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 85% have had "very good results"?
Replies: 23
Views: 5101

It is unbelievable that they'd say such a thing. Even if they'd seen some miracles, it's clear very early on that different people get different results! edited to add: Here's another quote, from another fundraising article, that worries me for raising expectations too high. According to Garvey, on...
by PCakes
Tue Apr 19, 2011 8:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50454

If you follow the link to the Montel facebook page, after his announcement, among a flurry of responses, there were people asking, "What is CCSVI?" I think his research is already done. I don't think Montel's advisors would have approved this announcement without doing their homework. I w...
by PCakes
Tue Apr 19, 2011 5:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

Johnson wrote:...the Conservatives who don't give a flying fistula for us.
:lol: brilliant :lol:
by PCakes
Tue Apr 19, 2011 2:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

The MSSC has offered us up a useful tool.. http://mssociety.ca/en/involved/advocacy/gra_election2011.htm click on 'send message now'.. fill in your name, address, etc. Un-check box asking if you want updates, unless you do. Click 'continue' and the site takes care of the rest..finds your local cand...
by PCakes
Tue Apr 19, 2011 2:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

AMJ wrote:Done - thanks for the link pcakes :D
welcome :)
by PCakes
Tue Apr 19, 2011 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

eric593 wrote:I don't agree with the MSSC that the feds should "earmark" funds for CCSVI research "...if or when study is warranted".
I thought it a be a good awareness tool. I certainly agree that the 'when' is NOW!
by PCakes
Tue Apr 19, 2011 2:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

eric593 wrote:Jack Layton was on Canada AM this morning talking about CCSVI.
I heard that this was the plan. Great to hear that it happened!
by PCakes
Tue Apr 19, 2011 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do we vote Liberal?
Replies: 88
Views: 16212

The MSSC has offered us up a useful tool.. http://mssociety.ca/en/involved/advocacy/gra_election2011.htm click on 'send message now'.. fill in your name, address, etc. Un-check box asking if you want updates, unless you do. Click 'continue' and the site takes care of the rest..finds your local candi...
by PCakes
Mon Apr 18, 2011 1:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50454

*today's lesson.. blackberry posting is unpredictable.. sorry :oops:
by PCakes
Mon Apr 18, 2011 1:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50454

*oops

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