Search found 6019 matches

by Lyon
Mon Feb 27, 2012 10:10 am
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

fact check: I do not call CCSVI the cause of MS. That is part of the title of Marie Rhodes' book (titled by her publisher) called CCSVI as the Cause of MS: The Science Behind the Controversial Theory. I know the title of Marie's book. The question is, why is the Facebook page's title (copied and pa...
by Lyon
Mon Feb 27, 2012 8:05 am
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

I've been around long enough and read enough of your similar comments in the past to assign the level of importance that your post deserves. You can figure that out in your spare time. Coming from someone I consider a personal friend, that hurts my feelings. I wasn't calling you a liar, I was only ...
by Lyon
Mon Feb 27, 2012 4:58 am
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

DougL wrote: sorry i don't follow the FB sites very often. i did not know that.
Nothing to be sorry about, I didn't know it either until I noticed it when looking for something else.
by Lyon
Mon Feb 27, 2012 2:58 am
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

From what I was told, they did these MRI's on healthy university students because they wanted to compare them to MRI's from people who had diseases such as MS. I will have to contact someone who perhaps may be able to point me to the study. It kind of makes sense to do that, especially in the early...
by Lyon
Sun Feb 26, 2012 7:56 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

I believe you are wrong on that point. Lesions are seen on MRI scans in healthy people. A number of years ago I read information on that and was also told the same info by a person who does MS research. And they also discovered that lesions do come and go on their own and they are not sure just why...
by Lyon
Sun Feb 26, 2012 3:43 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

don't like the title. the community is no longer trying to say CCSVI is the cause of MS. Not to belabor the point Doug but I just noticed that when you type "ccsvi" into the Facebook search box at the top, the first link is cheer's ccsvi Facebook which says "cause" as does the a...
by Lyon
Sun Feb 26, 2012 1:23 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

Thanks for your input Joan but I intentionally didn't post this neutral article in the ccsvi forum because didn't want to deal with the hysterics. I had hoped you wouldn't bring it here... Dr. Fox was at ISNVD, and had some good conversations with the other doctors. This is an earlier paper, his tea...
by Lyon
Fri Feb 24, 2012 3:07 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Re: Matter of fact overview of ccsvi

Hi Doug, originally I didn't pay any attention to the title of that article but you're right and it seems they could have EASILY come up with something better or at least explained the reasoning for that title. I suppose it's important that we keep in mind that peer reviews written for other researc...
by Lyon
Thu Feb 23, 2012 5:06 pm
Forum: General Discussion
Topic: Question about ms and heat exposure.
Replies: 8
Views: 2778

Re: Question about ms and heat exposure.

Anyways, how frequent does heat exposure i.e. hot showers affect or serve as an ingredient to the onset of your symptoms? The hot shower was among the tests used to put together an MS diagnosis but the idea was that the heat further reduced the reduced conductivity of the nerves due to the reduced ...
by Lyon
Thu Feb 23, 2012 4:36 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: HiCy in Europe
Replies: 8
Views: 8357

Re: HiCy in Europe

In your self education process you might also want to look into Campath if you haven't already. Not trying to sell anything else short because I don't have any personal favorites but Campath and Rituximab have also been used for rebooting the immune system with seemingly good results. Considering th...
by Lyon
Thu Feb 23, 2012 4:13 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 5166

Matter of fact overview of ccsvi

I think this is a more than fair assessment of the ccsvi situation to date.

https://docs.google.com/open?id=0B3me8Y ... XzNYUmdBZw
by Lyon
Tue Feb 21, 2012 2:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani at ISNVD
Replies: 13
Views: 3147

Re: Dr. Sclafani at ISNVD

Pretty level headed, thanks Mark.
by Lyon
Sun Feb 19, 2012 9:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Burks at ISNVD
Replies: 33
Views: 5787

Re: Dr. Burks at ISNVD

20 hours ago, national ccsvi society.
by Lyon
Sun Feb 19, 2012 9:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Burks at ISNVD
Replies: 33
Views: 5787

Re: Dr. Burks at ISNVD

That makes more sense of the situation, thanks Sharon. Burk has been one of the few receptive neuros and it seemed that he must have really soured to ccsvi to start throwing flying saucer comments out there. I only signed up for twitter today and don't know what I'm doing. It seems I'm skipping to v...
by Lyon
Sat Feb 18, 2012 7:10 pm
Forum: General Discussion
Topic: New Symptoms
Replies: 13
Views: 4190

Re: New Symptoms

Wow, hard to tell but my wife's older sister has always had that (not diagnosed with MS) and my wife has it (is diagnosed with MS) and I don't think either of them knows that their heads jiggle around just a tiny bit. In the years preceding her MS diagnosis she went to the hospital several times bec...

Go to advanced search